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PHARM
Symposium

S12--Sugar, Spice, & Everything Nice- Recipes for Sweet Success in Pediatrics & Pregnancy Management

Thursday, September 26, 2024
2:30 PM – 4:30 PM ET
Location:258 A-C

Recorded Session

Highly effective CFTR modulator therapy (HEMT) has dramatically changed the care of people with CF. Interest in its use has expanded to special patient populations in recent years, including pregnant and lactating mothers as well as young children. This session will describe early clinical experience with elexacaftor-tezacaftor-ivacaftor (ETI) in young children with CF including adverse drug events and potential mitigation strategies. The session will also address the use of ETI during pregnancy and lactation as well as review current knowledge surrounding postnatal care for mothers and infants with CF. Pharmacy care team members will discuss insurance barriers that can limit access to off-label ETI use specifically in non-CF women who are pregnant with a fetus prenatally diagnosed with CF. Lastly, CF community members will share their personal experiences with HEMT, especially as it relates to family planning.

Learning Objectives:

  • Evaluate concerns for women with CF considering starting a family while on highly effective modulator therapy (HEMT). Describe the current state of practice for postnatal care for infants born to mothers who used HEMT during pregnancy.
  • Create a plan for assessing and addressing side effects related to HEMT in children using a multi-disciplinary approach.
  • Discuss ways to overcome access barriers to HEMT in pregnant women without CF.

Presentations:

  • 2:30 PM – 4:30 PM ET
    S12.1- Elexacaftor/Tezacaftor/Ivacaftor (ETI) in Pediatrics: Assessing Side Effects, Dose Modifications, & Mental Health

    Speaker: Sarah Kubiak, PharmD, BCPS (she/her/hers) – Boston Children's Hospital

    Speaker: Lena Joseph, MSN, RN, CPN – Boston Children's Hospital

  • 2:30 PM – 4:30 PM ET
    S12.2- Pregnancy & Infant Care with ETI: CF-PHARM Collaborative.

    Speaker: Sabrina Sherwood, PharmD, BCPS – St Lukes Cystic Fibrosis Center of Idaho

  • 2:30 PM – 4:30 PM ET
    S12.3- Insurance Issues with Modulators in Pregnancy

    Speaker: Wendy Bullington, PharmD (she/her/hers) – MUSC Health

  • 2:30 PM – 4:30 PM ET
    S12.4- Family Planning & CFTR Modulators

    Speaker: Lauren Miller, RN, BSN (she/her/hers) – Department of Pediatrics