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NRS
Symposium

S17--Like Fine Wine - Better with Age

Friday, September 27, 2024
2:30 PM – 4:30 PM ET
Location:156 A-C

Recorded Session

Life expectancy has grown exponentially in the past five years, particularly with the FDA approval and release of elexacaftor-tezacaftor-ivacaftor (ETI) in November 2019. Increased longevity is a wonderful ‘problem’ to have, but it comes with new complications not previously focused on for most persons with cystic fibrosis. Familial diseases that surface with aging had previously been non-significant with a shortened life span, and retirement planning was not a focus for most persons impacted by CF lung and GI disease presentations. Diet had been focused more on calorie maximizing and less on healthy eating. So much has changed, and like a fine wine, aging needs to be focused on optimizing conditions and preventing factors that can spoil quality.

Learning Objectives:

  • Identify key points to focus on to improve adult life with cystic fibrosis.
  • Examine key resources that will improve the quality and safety of life for adults with CF.
  • Summarize the physical, mental, and emotional impacts that patients and their loved ones are experiencing and navigating with the improved life expectancy for persons with CF.

Presentations:

  • 2:30 PM – 4:30 PM ET
    S17.1- Sexual & Physical Caveats Aging with CF

    Speaker: Mary A. Jones-Gant, MSN, NP-C (she/her/hers) – ChristianaCare

  • 2:30 PM – 4:30 PM ET
    S17.2- Navigating Medicare, Insurances & Disability with Aging

    Speaker: Kelly Muldowney, BA (she/her/hers) – Cystic Fibrosis Foundation

  • 2:30 PM – 4:30 PM ET
    S17.3- D:D Interactions, Side Effects, Avoidance, & Preventions

    Speaker: Lauren N. Kormelink, PharmD, BCACP (she/her/hers) – University of Kentucky HealthCare, University of Kentucky College of Pharmacy

  • 2:30 PM – 4:30 PM ET
    S17.4- Patient & Family Perspective of Extended Warranty

    Community Speaker: Paul R. McCormick, JD MPA EdD (he/him/his) – Magnet School

    Community Speaker: Jess McCormick