S02--Paradigm Shift in CF Care Model

Chair(s)

• 

  Rebekah Brown, MD (she/her/hers)

  Vanderbilt University Medical Center
• 

  Patrick Flume, MD

  Medical University of South Carolina

The experience of people living with cystic fibrosis in the US has changed over the past several years, influenced by improvements in therapies, approval of CFTR modulators, and the SARS-CoV-2 pandemic. With recent improvements in outcomes for people with cystic fibrosis, as well as advancements in therapies and remote technology to support healthcare, it is time to re-evaluate the cystic fibrosis model of care to attend to the various needs of people with cystic fibrosis. This symposium will discuss the support for changes in the model of care and cystic fibrosis team, outline interim guidance for care, and discuss future steps for evaluating potential modifications in cystic fibrosis care in the US.

Presentations:

• 2:30 PM – 4:30 PM ET

  S02.1- Setting the Stage
  

  Speaker: Rebekah F. Brown, MD (she/her/hers) – Vanderbilt University Medical Center
• 2:30 PM – 4:30 PM ET

  S02.2- Guidance on the Cystic Fibrosis Team Structure
  

  Speaker: Charlotte T. Close, MS, CGC (she/her/hers) – Columbia University Irving Medical Center
• 2:30 PM – 4:30 PM ET

  S02.3- Envisioning the New Cystic Fibrosis Model of Care
  

  Speaker: Danielle M. Goetz, MD (she/her/hers) – UBMD Pediatric Pulmonology/Oishei Children's Hospital
• 2:30 PM – 4:30 PM ET

  S02.4- Where Do We Go From Here?
  

  Speaker: Patrick A. Flume, MD – Medical University of South Carolina