Ivanya Ventures
I am a mother of a 4 year old beautiful and resilient girl who was diagnosed with CF at birth. On most days I am a working parent as I have my own line of furniture in India. I support a CF underprivileged support group in India where we support families with medicines every month. My struggle as a parent started the day we were told about CF, my fight to get genetic modulators started the same day. I am actively working and supporting all CF families in India to procure genetic modulators at the earliest. Before I became a parent I was Public relations and communications specialist for a leading audio systems company and in Asia.
S31.5- Global Access Challenges for CF Therapies
Saturday, September 28, 2024
10:15 AM – 12:15 PM ET