Lenox Hill Hospital/Northwell Health
Elinor Langfelder-Schwind, MS, CGC is the Senior Genetic Counselor at The Cystic Fibrosis Center, Lenox Hill Hospital, New York, NY. Elinor has been an advocate of genetic education and counseling for patients, professionals and the public for over two decades, working with adult and pediatric patients and their families as a genetic counselor in accredited cystic fibrosis (CF) care centers in New York City, including St. Vincent's Hospital, Mount Sinai, and Northwell Health/Lenox Hill Hospital. Elinor is an active participant in the New York State CF newborn screening consortium, National Society of Genetic Counselors’ CFTR Spectrum Disorders Special Interest Group, and first author of the NSGC Practice Resource on CF screening. She is involved with CFTR gene modulation and other research studies about the care and treatment of people with CF. Elinor educates genetic counseling students from numerous Master's level training programs as a clinical training site coordinator, thesis advisor, and lecturer. She recently served as principal investigator of a CF Foundation-funded screening improvement project which led to the development of CFF-endorsed consensus recommendations to improve access to genetic counseling for parents of infants with a positive CF newborn screening result. Currently, Elinor is leading a multi-site stakeholder assessment project to investigate feasibility of providing expert CF genetic counseling via telehealth.
S23.4- Genetic Counseling for CF & CF-related disorders, Present & Future
Friday, September 27, 2024
2:30 PM – 4:30 PM ET
Saturday, September 28, 2024
8:00 AM – 9:15 AM ET
S29.3- Genetic Equity & Family Autonomy: Evolving Issues in Genetic Counseling for CF
Saturday, September 28, 2024
10:15 AM – 12:15 PM ET