Skip to main content
NACFC 2024 Main banner
Icon Legend
This session is not in your schedule.
This session is in your schedule. Click again to remove it.
Presentation Icons
Livestreamed Session
Livestreamed Session
Ticketed Session
Ticketed Session
Recorded Session
Recorded Session
Back

Karen Raraigh, MGC (she/her/hers)

Johns Hopkins University

Karen Raraigh, MGC, is a certified genetic counselor at Johns Hopkins University and Assistant Professor of Genetic Medicine. She received her MGC in Genetic Counseling from the University of Maryland School of Medicine in 2008. Immediately after, she completed a yearlong research project at St. Vincent’s University Hospital in Dublin, Ireland under the auspices of a US Department of State Fulbright grant. During this time, she investigated knowledge, attitudes, and education regarding cystic fibrosis (CF) in adult patients in Ireland, as well as developed a quality improvement questionnaire to assess patient views on their quality and delivery of CF care. Upon her return to the US, she joined the Genetics Department at Nationwide Children’s Hospital in Columbus, OH to provide genetic counseling for families with a variety of genetic conditions. In 2011, Ms. Raraigh joined a research team at Johns Hopkins University, where she is heavily involved in the Clinical and Functional Translation of CFTR (CFTR2) project and database, the CF Genome Project in which 5,000 adults with CF underwent whole genome sequencing, and an initiative to investigate the development of a CF specific genetic counseling service. Her primary interests are genotype-phenotype correlation and the impact of CFTR modulators, as well as communication of genetic information and CF genetics education. She has participated in the writing of several guidelines regarding CFTR testing and CF care and is the past chair of the Cystic Fibrosis Special Interest Group within the National Society of Genetic Counselors.

Presentation(s):