Full Schedule

7:45 AM – 9:45 AM ET

W30--Polymicrobial Interactions in CF
Location:156 A-C

Chair: Catherine R. Armbruster, PhD MPH – Carnegie Mellon University

Chair: Ken C. Malcolm – National Jewish Health

IMI

7:45 AM – 9:45 AM ET

W31--Progress Overcoming Premature Stop Codons in CFTR
Location:157 A-C

Chair: David M. Bedwell, PhD – Departments of Biochemistry & Molecular Genetics, University of Alabama at Birmingham (UAB), Birmingham, AL

Chair: Michelle Hastings – Chicago Medical School, Center for Genetic Diseases

PTAC/CFTR

7:45 AM – 9:45 AM ET

W32--Airway Differentiation, Pathogenesis, & Repair
Location:153 A-C

Chair: Margarida Amaral – FCUL-Faculty of Sciences, University of Lisboa

Chair: Vibha Lama, MD MS – Emory University, Atlanta, GA

Chair: Gianni Carraro, PhD – Cedars-Sinai Medical Center

APPTT

PTAC/CFTR

7:45 AM – 9:45 AM ET

DG19--East Meets West – Complementary Therapies in CF
Location:259 AB

Chair: Maureen Hoelzer, PA-C (she/her/hers) – Stony Brook Medicine

Chair: Jasmine Sanches-Ximenez

NRS

7:45 AM – 9:45 AM ET

DG20--Navigating ETI Mental Health Changes for Children Under 12
Location:162 AB

Chair: Claire Haglund, PhD LMSW-C MMT (she/her/hers) – Children's Hospital of Michigan

Chair: Jennifer Butcher, PhD (she/her/hers) – University of Michigan

SW/PSYCH

7:45 AM – 9:45 AM ET

DG21--Watch Your Step!: Navigating CFTR Modulator Potholes
Location:107 AB

Chair: Julie A. Langhorst (she/her/hers) – Riley Hospital for Children Indiana University Health

Chair: Sarah Foushee, PharmD, BCPS, CSP (she/her/hers) – University of Louisville Hospital

Speaker: Nicole Suzanne Lachner, CPhT (she/her/hers) – Fairview Pharmacy Services

Speaker: Madison Hill, PharmD (she/her/hers) – Primary Children's Cystic Fibrosis Clinic

Speaker: Denise Kwong

Speaker: Jenna M. Faircloth, PharmD (she/her/hers) – Baylor College of Medicine - Pediatrics; Texas Children's Hospital

PHARM

7:45 AM – 9:45 AM ET

DG22--Promoting Airway Clearance: Where are we now?
Location:152

Chair: Lucy E. Wadsworth, n/a – Manchester Adult Cystic Fibrosis Centre, UK

Chair: Jenelle Chidester, RRT, RPFT (she/her/hers) – Intermountain Health

Speaker: Tom Tobin – Adult Cystic Fibrosis Department, Royal Brompton Hospital

Speaker: Katherine Villagomez, RRT, RCP (she/her/hers) – Adult CF Center of Central Texas

Speaker: Danielle M. Goetz, MD (she/her/hers) – UBMD Pediatric Pulmonology/Oishei Children's Hospital

Speaker: Cathy Larson

PT&RT

7:45 AM – 9:45 AM ET

DG23--Pancreatic Prowess: Navigating CF, Liver Wellness, & Nutritional Implications
Location:160 A-C

Chair: Maegan Cook, MS, RD, CNSC, LD (she/her/hers) – Children's Healthcare of Atlanta

Chair: Christina Chadwick, MD – University of Florida

Speaker: Megha Mehta

Speaker: Kimberly G. Stephenson, MS, RD, CSP, CACFD (she/her/hers) – University of North Carolina Health

Speaker: Jay Freeman, MD, MSc (he/him/his) – Nationwide Children's Hospital

Speaker: Thomas J. Sferra, Cleveland, USA – UH Rainbow Babies and Children's Hospital? Case Western Reserve University

NTR

CLIN

7:45 AM – 9:45 AM ET

DG24--Aging with Grace
Location:252 B

Chair: Yelzaveta Sher, MD, FACLP (she/her/hers) – Stanford University School of Medicine

Chair: Annie R. Thomas-Diceman, RSW (she/her/hers) – St. Michael's Hospital, Unity Health Toronto

Speaker: Anne L. Stephenson, MD PhD – St. Michael's Hospital, Unity Health Toronto

Speaker: Yelzaveta Sher, MD, FACLP (she/her/hers) – Stanford University School of Medicine

Speaker: Annie R. Thomas-Diceman, RSW (she/her/hers) – St. Michael's Hospital, Unity Health Toronto

SW/PSYCH

7:45 AM – 9:45 AM ET

DG25--RC Updates & Special Topics
Location:254 AB

Chair: Patricia Burks, RN, MA, CCRC – Cystic Fibrosis Foundation

Chair: Adrienne DeRicco, BSN, RN, CCRC (she/her/hers) – UPMC Children's Hospital of Pittsburgh

Chair: Jill M. VanDalfsen, M.T. (ASCP)

Speaker: Margret Powell, CCRC (she/her/hers) – UNC School of Medicine

Speaker: Megan Devereaux

CLIN

7:45 AM – 9:45 AM ET

Overview of the Current State & Needs of the U.S. CF Physician Workforce
Location:257 AB

Chair: Traci M. Kazmerski, MD, MS (she/her/hers) – University of Pittsburgh School of Medicine

Chair: Donna Beth B. Willey-Courand, MD (she/her/hers) – University of Texas Health Sciences Center - San Antonio

Speaker: Jane E. Gross, MD, PhD (she/her/hers) – National Jewish Health

Speaker: Jennifer L. Goralski, MD – The University of North Carolina at Chapel Hill

Speaker: Anna K. Hughes, MD – Monroe Carell Jr. Children's Hospital at Vanderbilt

Speaker: Jennifer Kodela, DO

Speaker: Stephanie Davis

Speaker: A. Whitney Brown, MD (she/her/hers) – Cystic Fibrosis Foundation

Speaker: Christopher M. Oermann, MD – Children's Mercy Kansas City

Speaker: Gabriella Tupayachi-Ortiz

Speaker: Deb Boyer

Traci M. Kazmerski, MD, MS (she/her/hers) – University of Pittsburgh School of Medicine ### 1636937###Chair###Associate Professor of Pediatrics###University of Pittsburgh School of Medicine###
Chair: Traci M. Kazmerski, MD, MS (she/her/hers) – University of Pittsburgh School of Medicine
### she/her/hers @@@ Donna Beth B. Willey-Courand, MD (she/her/hers) – University of Texas Health Sciences Center - San Antonio ### 1716272###Chair###Program Director###University of Texas Health Sciences Center - San Antonio###
Chair: Donna Beth B. Willey-Courand, MD (she/her/hers) – University of Texas Health Sciences Center - San Antonio
### she/her/hers @@@ Jane E. Gross, MD, PhD (she/her/hers) – National Jewish Health ### 1404158###Speaker###Associate Professor###National Jewish Health###
Speaker: Jane E. Gross, MD, PhD (she/her/hers) – National Jewish Health
### she/her/hers @@@ Jennifer L. Goralski, MD – The University of North Carolina at Chapel Hill ### 62091###Speaker###Assistant Professor of Medicine###The University of North Carolina at Chapel Hill###
Speaker: Jennifer L. Goralski, MD – The University of North Carolina at Chapel Hill
### @@@ Anna K. Hughes, MD – Monroe Carell Jr. Children's Hospital at Vanderbilt ### 2079651###Speaker###Physician###Monroe Carell Jr. Children's Hospital at Vanderbilt###
Speaker: Anna K. Hughes, MD – Monroe Carell Jr. Children's Hospital at Vanderbilt
### @@@ Jennifer Kodela, DO ### 2324402###Speaker###Physician######
Speaker: Jennifer Kodela, DO
### @@@ Stephanie Davis ### 2325735###Speaker#########
Speaker: Stephanie Davis
### @@@ A. Whitney Brown, MD (she/her/hers) – Cystic Fibrosis Foundation ### 1716588###Speaker###Senior Director, Clinical Affairs###Cystic Fibrosis Foundation###
Speaker: A. Whitney Brown, MD (she/her/hers) – Cystic Fibrosis Foundation
### she/her/hers @@@ Christopher M. Oermann, MD – Children's Mercy Kansas City ### 1402834###Speaker###Division Director###Children's Mercy Kansas City###
Speaker: Christopher M. Oermann, MD – Children's Mercy Kansas City
### @@@ Gabriella Tupayachi-Ortiz ### 2326132###Speaker#########
Speaker: Gabriella Tupayachi-Ortiz
### @@@ Deb Boyer ### 2395444###Speaker#########
Speaker: Deb Boyer
###

8:00 AM – 9:15 AM ET

CC01--Sweating it Out- What do Sweat Tests Really Tell Us?
Location:104 AB

Chair: Greg McClelland, PA-C – Ascension Seton, Dell Children’s Medical Group

Chair: Catherine Enochs, BSN, RN (she/her/hers) – University of Michigan Health

NRS

8:00 AM – 9:15 AM ET

CC01.1- When sweat chloride does not align with clinical symptoms of disease
Location:8:00 AM

Speaker: Jennifer Kinsfather, RN (she/her/hers) – University of Utah Health

8:00 AM – 9:15 AM ET

CC01.2- Unveiling a Medication Mask To Reveal a CF De-Diagnosis
Location:8:00 AM

Speaker: Hanna Phan, PharmD, FCCP, FPPA – University of Michigan

8:00 AM – 9:15 AM ET

CC01.3- Variable sweat chloride levels with conversion from CRMS to CF
Location:8:00 AM

Speaker: Maxwell Vetter, PA-C (he/him/his) – University of Utah / Primary Children's Hospital

8:00 AM – 9:15 AM ET

CC01.4- Old age, New diagnosis?
Location:8:00 AM

Speaker: Kimberly Foil, MS (she/her/hers) – Medical University of South Carolina

8:00 AM – 9:15 AM ET

CC02--Compelling Cases: Collaboration Between Nutrition & GI
Location:102 AB

Chair: Bekah Sommer, MS, RD (she/her/hers) – Indiana University Health

Chair: Rosara Bass, MD MS (she/her/hers) – Nationwide Children's Hospital

NTR

8:00 AM – 9:15 AM ET

CC02.1- Overcoming Early GI complications in CF
Location:102 AB

Speaker: Danielle Levine, MD – Dartmouth Hitchcock Medical Center

8:00 AM – 9:15 AM ET

CC02.2- Low fecal elastase in an obese adult with diabetes, IBS-C, and normal absorption in a patient newly diagnosed with cystic fibrosis
Location:102 AB

Speaker: Jessa Engelken

8:00 AM – 9:15 AM ET

CC02.3- Managing Excessive Weight Gain Due to HEMT: Is the Answer Anti-Obesity Medications?
Location:102 AB

Speaker: Dorina Kordunova, MS, RD, CDCES – Northwell Lenox Hill

8:00 AM – 9:15 AM ET

CC02.4- An enzyme odyssey: Severe malnutrition with essential fatty acid deficiency in the setting of pancreatic enzyme intolerance in an 18-month-old girl
Location:102 AB

Speaker: Allyson F. Brown, MD, FAAP (she/her/hers) – Children's of Alabama/University of Alabama at Birmingham

8:00 AM – 9:15 AM ET

CC03--Advanced QI
Location:210 A-C

Chair: Anna K. Saulitis, AM, LCSW (she/her/hers) – Cystic Fibrosis Foundation

Chair: Lauren Mitchell, PT, DPT (she/her/hers) – Cystic Fibrosis Foundation

CLIN

8:00 AM – 9:15 AM ET

CC04--Complex Cases-Explain Yourself!
Location:206 AB

Chair: Darcy Chassé, MScPT (he/him/his) – Health Sciences North - NEO Kids

Chair: Shontae M. Hill, BS RRT AE-C (she/her/hers) – Primary Children’s Hospital

PT&RT

8:00 AM – 9:15 AM ET

CC04.1- Cystic Fibrosis + Asthma + Fungal Infection: What's a girl to do?
Location:206 AB

Speaker: Lynn M. Adams, BScPT (she/her/hers) – London Health Sciences Centre

8:00 AM – 9:15 AM ET

CC04.2- A troubling teen: managing adherence to airway clearance and exercise in the context of fluctuating infections and symptoms
Location:206 AB

Speaker: Julie Fairbairn

8:00 AM – 9:15 AM ET

CC04.3- What is causing the decline? CF or Aspergilloma?"
Location:206 AB

Speaker: Tammy Mayer, RRT II – University of Calgary Adult CF Clinic/Alberta Health Services

8:00 AM – 9:15 AM ET

CC04.3- Trial and error in home Airway Clearance Therapy with rapid onset Osteoporosis in pediatric Cystic Fibrosis
Location:206 AB

Speaker: Miranda S. Bradley, RT (she/her/hers) – MHealth Fairview, Minneapolis, MN

8:00 AM – 9:15 AM ET

CC05--Diagnostic & Counseling Challenges
Location:253 A-C

Chair: Karen Raraigh, MGC (she/her/hers) – Johns Hopkins University

Chair: Michael Smiley, MD (he/him/his) – Department of Pediatrics, Cardinal Glennon Children's Hospital, Saint Louis University School of Medicine

CLIN

8:00 AM – 9:15 AM ET

CC05.1- True, true, and unrelated or just another diagnostic dilemma?
Location:253 A-C

Speaker: Christopher M. Oermann, MD – Children's Mercy Kansas City

8:00 AM – 9:15 AM ET

CC05.2- Two adult siblings with CFTR variants F508del and A349V
Location:253 A-C

Speaker: Rebecca Cagnina

8:00 AM – 9:15 AM ET

CC05.3- A case of severe intestinal dysfunction: Was it Cystic Fibrosis all along?
Location:253 A-C

Speaker: Alma Chavez, MD – Pediatric Pulmonology Clinic

8:00 AM – 9:15 AM ET

CC05.4- When the algorithms don’t quite fit: Genetic counseling and diagnostic challenges in a healthy three-year-old with F508del and 5T
Location:253 A-C

Speaker: Elinor Langfelder-Schwind, MS, LCGC (she/her/hers) – Lenox Hill Hospital/Northwell Health

8:00 AM – 9:15 AM ET

CC06--You, Me, & Baby
Location:109 AB

Chair: Carol Chace, LICSW (she/her/hers) – Children's National Hospital

Chair: Andrea H. Roe, MD MPH (she/her/hers) – University of Pennsylvania Perelman School of Medicine

SW/PSYCH

8:00 AM – 9:15 AM ET

CC06.1- Case series of pregnancy outcomes in cystic fibrosis
Location:109 AB

Speaker: Nauman Chaudary, MD, FACP, FCCP (he/him/his) – VCU Health System

8:00 AM – 9:15 AM ET

CC06.3- Unique cases, unique treatments: the need to understand variability in maternal ETI efficacy for fetal meconium ileus.
Location:109 AB

Speaker: Marlies Destoop, MD (she/her/hers) – University Medical Center Utrecht

8:00 AM – 9:15 AM ET

CC06.3- The Bundled Joys of Pregnancy
Location:109 AB

Speaker: Kathleen Mahan, MD (she/her/hers) – University of Minnesota School of Medicine

8:00 AM – 9:15 AM ET

CC06.4- Title TBD
Location:109 AB

Speaker: Beth L. Pineles, MD PhD (she/her/hers) – University of Pennsylvania

8:15 AM – 9:45 AM ET

TPS06--Pre-Clinical Models of CF Organ Disease
Location:Exhibit Hall

Chair: Rabindra Tirouvanziam, PhD (he/him/his) – Department of Pediatrics, Emory University

Chair: Eszter K. Vladar, PhD – University of Colorado School of Medicine

APPTT

10:15 AM – 12:15 PM ET

S25--Might as Well Jump! Exercise by the Experts
Location:153 A-C

Chair: Ryan A. Harris, PhD, CEP, FACSM – Georgia Prevention Institute

Chair: Denee DiPilla George, Orange, Orange – Children's Hospital Orange County

PT&RT

10:15 AM – 12:15 PM ET

S26--From Just Surviving to Thriving: Unraveling the Complex Tapestry of CF & Aging
Location:210 A-C

Chair: Stefanie Krick, MD – Division of Pulmonary and Critical Care Medicine

Chair: Elizabeth Tullis, MD FRCPC – University of Toronto

CLIN

10:15 AM – 12:15 PM ET

S26.2- Emerging Complications in the Aging CF Population
Location:210 A-C

Speaker: Anne L. Stephenson, MD PhD – St. Michael's Hospital, Unity Health Toronto

10:15 AM – 12:15 PM ET

S26.3- Impact of Aging on CF Care Models
Location:210 A-C

Speaker: Nicholas Simmonds, MD (Res) FRCP (he/him/his) – Royal Brompton Hospital

10:15 AM – 12:15 PM ET

S26.4- Tomorrow's CF Landscape: Forecasting Patient Numbers, Disease Severity, and Treatment Outcomes
Location:210 A-C

Speaker: Sanja Stanojevic, PhD – Dalhousie University

10:15 AM – 12:15 PM ET

S27--Airway Stem Cells: Tools, Targets, & Therapies
Location:258 A-C

Chair: Viral Shah, MD, PhD – MGH

Chair: Amy L. Ryan, PhD – University of Iowa

PTAC/CFTR

10:15 AM – 12:15 PM ET

S27.1- Lung-on-Chip models to understand stem cell dynamics in Cystic Fibrosis
Location:258 A-C

Speaker: Amy L. Ryan, PhD – University of Iowa

10:15 AM – 12:15 PM ET

S27.2- Airway hillocks: An injury resistant stem cell reservoir in mouse and human airways
Location:258 A-C

Speaker: Viral Shah, MD, PhD – MGH

10:15 AM – 12:15 PM ET

S27.3- Shuttle peptides for in vivo delivery of base editors to epithelial cells
Location:258 A-C

Speaker: Paul McCray

10:15 AM – 12:15 PM ET

S27.4- Transplantation of pluripotent stem cell-derived basal cells for treating Cystic Fibrosis
Location:258 A-C

Speaker: Finn Hawkins

10:15 AM – 12:15 PM ET

S28--Models of CF Airway Infection
Location:254 AB

Chair: William H. DePas, PhD – University of Pittsburgh

Chair: Barbara C. C. Kahl, MD (she/her/hers) – University of Münster

IMI

10:15 AM – 12:15 PM ET

S28.1- CFTR loss-of-function zebrafish model
Location:254 AB

Speaker: Anna Pistocchi – University of Milan

10:15 AM – 12:15 PM ET

S28.2- Airway liquid interface cultures to study the effect of modulators on P. aeruginosa infections
Location:254 AB

Speaker: Helle Krogh Johansen, MD, DMSc (she/her/hers) – Dept. Clinical Microbiology, Rigshospitalet, Copenhagen, Denmark

10:15 AM – 12:15 PM ET

S28.3- Artificial sputum medium
Location:254 AB

Speaker: Joanna B. Goldberg, Atlanta, USA (she/her/hers) – Emory University

10:15 AM – 12:15 PM ET

S28.4- Rat model of infection
Location:254 AB

Speaker: Susan Birket, PharmD, PhD – University of Alabama at Birmingham

10:15 AM – 12:15 PM ET

S29.1- Best practice guidelines for newborn screening programs: driving towards equity
Location:253 A-C

Speaker: Marci K. Sontag, PhD (she/her/hers) – Center for Public Health Innovation

10:15 AM – 12:15 PM ET

S29--It Starts with a Diagnosis, Best Practices for Newborn Screening
Location:253 A-C

Chair: Susanna A. McColley, MD, FAAP, ATSF (she/her/hers) – Northwestern University Feinberg School of Medicine

Chair: Marci K. Sontag, PhD (she/her/hers) – Center for Public Health Innovation

CLIN

10:15 AM – 12:15 PM ET

S29.2- Beyond the statehouse: advocacy to improve CF newborn screening
Location:253 A-C

Community Speaker: Michele Wright

Speaker: Tanicia Daley, MD, MPH – Emory University

Speaker: Rachel Linnemann, MD – Department of Pediatrics, Division of Pulmonology, Asthma, Cystic Fibrosis, and Sleep, Emory University School of Medicine

10:15 AM – 12:15 PM ET

S29.3- Genetic equity and family autonomy: evolving issues in genetic counseling for CF
Location:253 A-C

Speaker: Elinor Langfelder-Schwind, MS, LCGC (she/her/hers) – Lenox Hill Hospital/Northwell Health

10:15 AM – 12:15 PM ET

S29.4- Awareness, education and community engagement for CF newborn screening: the ACED-CF project
Location:253 A-C

Speaker: Susanna A. McColley, MD, FAAP, ATSF (she/her/hers) – Northwestern University Feinberg School of Medicine

10:15 AM – 12:15 PM ET

S30--GI Symptoms in CF, Let’s Get to the Bottom of it!
Location:156 A-C

Chair: Jenifer Burke – Rush University Medical Center

Chair: Joanne Cullina, APRN-CNS – Northwestern University, Department of Medicine, Division of Pulmonary and Critical Care, Chicago, IL, US.

NRS

10:15 AM – 12:15 PM ET

S30.1- Constipation vs DIOS Difference in Management
Location:156 A-C

Speaker: Adam Stein, MD – Northwestern Medicine

10:15 AM – 12:15 PM ET

S30.2- Delayed Gastric Emptying Evaluation and Treatment
Location:156 A-C

Speaker: Shilpa Sood, MBBS (she/her/hers) – Boston Children's Health Physicians

10:15 AM – 12:15 PM ET

S30.3- SIBO-Evaluation and Treatment When to Consider as a Cause for Symptoms
Location:156 A-C

Speaker: Megan Gabel, MD – University of Rochester, Golisano Children's Hospital

10:15 AM – 12:15 PM ET

S30.4- GERD vs GRASP -evaluation and treatment
Location:156 A-C

Speaker: Jeffrey B. King, MD – National Jewish Health

10:15 AM – 12:15 PM ET

S31--Is the Price Really Right?: Keeping Innovations in CF Care Accessible
Location:205 A-C

Chair: Ryan C. Perkins, MD MPH (he/him/his) – Boston Children’s Hospital/Brigham & Women’s Hospital

Chair: Olivia Dieni, MPH (she/her/hers) – Cystic Fibrosis Foundation

HEAC

10:15 AM – 12:15 PM ET

S31.1- What is the Current Landscape for Cost and Coverage for CF Care in the US?
Location:205 A-C

Speaker: Anne Willlis, MA (she/her/hers) – Cystic Fibrosis Foundation

10:15 AM – 12:15 PM ET

Advocating with and for your patients: Colorado Case Study
Location:205 A-C

Speaker: Scott Sagel, MD, PhD – Children's Hospital Colorado/University of Colorado Anschutz Medical Campus

10:15 AM – 12:15 PM ET

S31.3- Global Access Challenges for CF Therapies
Location:205 A-C

Speaker: Marco Zampoli, PhD (he/him/his) – Department of Paediatrics and Child Health, University of Cape Town, Cape Town , South Africa

10:15 AM – 12:15 PM ET

S31.4- Comprehensive Care for PwCF: Optimizing Systems for Care
Location:205 A-C

Speaker: Rebekah F. Brown, MD (she/her/hers) – Vanderbilt University Medical Center

10:15 AM – 12:15 PM ET

S31.5- Costs of Cellular and Gene Therapy: The Train is Coming
Location:205 A-C

Speaker: Leslie Powell, MPA – Cystic Fibrosis Foundation

10:15 AM – 12:15 PM ET

W33--Impact of RT Education on Patient Care
Location:157 A-C

Chair: James Reed, RRT/NPS, RPFT (he/him/his) – IU Health

Chair: Miranda S. Bradley, RT (she/her/hers) – MHealth Fairview, Minneapolis, MN

PT&RT

10:15 AM – 12:15 PM ET

W34--Doing DEI in the Real World
Location:102 AB

Chair: Chandra Gordon, LMSW (she/her/hers) – University of Kansas Health System

Community Chair: Brandon M. Wright, MSW, LSW, CDP (he/him/his) – Senior Lifestyle

SW/PSYCH

10:15 AM – 12:15 PM ET

W35--Lung Transplantation & Pulmonary Vascular Biology
Location:109 AB

Chair: Keven Robinson

Chair: Don Hayes, Jr., MD (he/him/his) – Cincinnati Children's Hospital Medical Center

APPTT

10:15 AM – 12:15 PM ET

W36--Endocrine Screening - What You Need to Know
Location:104 AB

Chair: Jennifer Rounds, APRN,NP (she/her/hers) – Nebraska Medicine

Chair: Mary Sachs, MSN, APRN, CNP (she/her/hers) – Children's Minnesota

NRS

CLIN

10:15 AM – 12:15 PM ET

W37--Leading the Pack: Nutrition Research
Location:206 AB

Chair: Alix Wilson, MS, RDN, CDCES (she/her/hers) – National Jewish Health

Chair: Tara Griffin, MS, RDN, LD CACFD (she/her/hers) – University of Minnesota Adult Cystic Fibrosis Center

NTR

10:15 AM – 12:15 PM ET

W38--Epidemiology & Management of Infection in CF
Location:257 AB

Chair: Joy E. Gibson, MD, PhD (she/her/hers) – Children's Hospital Los Angeles

Chair: Bradley S. Quon, MD, MSc, MBA – Centre for Heart Lung Innovation, University of British Columbia, Vancouver, BC, Canada

IMI

12:30 PM – 2:00 PM ET

US Center & Program Directors’ Meeting

12:30 PM – 2:00 PM ET

Airway Clearance Post HEMT: Where Are We Now?

Facilitator: Ginger McPhail, MS RRT (she/her/hers) – Cincinnati Children's Hospital

PT&RT

12:30 PM – 2:00 PM ET

Bronchoscopy as a Clinical & Research Tool in CF

Facilitator: Alix Ashare, MD PhD (she/her/hers) – Geisel School of Medicine at Dartmouth

APPTT

12:30 PM – 2:00 PM ET

CFTR Outside the Respiratory Track: Importance to Fully Understanding the Disease

Facilitator: Wanda K. O'Neal, PhD – University of North Carolina at Chapel Hill Departments of Medicine and Genetics

PTAC/CFTR

12:30 PM – 2:00 PM ET

CFTR Therapeutics in the Real World: Impact of the Environment on Efficacy

Facilitator: Elizabeth Kramer, MD PhD (she/her/hers) – Cincinnati Children's Hospital

APPTT

12:30 PM – 2:00 PM ET

Child Pugh? Medication use in CF Liver Disease

Facilitator: Alexandra Carberry, PharmD (she/her/hers) – Helen DeVos Children's Hospital Cystic Fibrosis Care Center

PHARM

12:30 PM – 2:00 PM ET

Continuous Glucose Monitoring

Facilitator: Michelle McDonagh – Froedtert Hospital

NTR

12:30 PM – 2:00 PM ET

Diabetes Post-transplant

Facilitator: Henry Zelada, MD (he/him/his) – UCLA

CLIN

12:30 PM – 2:00 PM ET

Diabetes Technology

Facilitator: Brynn E. Marks, MD, MSHPEd (she/her/hers) – Children's Hospital of Philadelphia

CLIN

12:30 PM – 2:00 PM ET

Diet Approaches to Heart/Brain Health (Mediterranean, Portfolio, Plant-based)

Facilitator: Kathryn Kear

NTR

12:30 PM – 2:00 PM ET

Expanding the RT Role, Research, Program Coordination, & More!!

Facilitator: Katherine Villagomez, RRT, RCP (she/her/hers) – Adult CF Center of Central Texas

PT&RT

12:30 PM – 2:00 PM ET

From Bedside to Bench to Redcap: The Role of the Research Coordinator in Translational Research

Facilitator: Silvia Caceres, MSc – National Jewish Health

CLIN

12:30 PM – 2:00 PM ET

GLI

Facilitator: DeeAnna Serna, RRT-NPS, AE-C (she/her/hers) – University of California Los Angeles (UCLA)

PT&RT

12:30 PM – 2:00 PM ET

Help Wanted! How to Manage Staff Turnover

Facilitator: Sara Brayshaw, BS, RN, MSN (she/her/hers) – National Jewish Health

CLIN

12:30 PM – 2:00 PM ET

Illuminating the Impact of CFTR in Development

Facilitator: Amy P. Wong, PhD (she/her/hers) – The Hospital for Sick Children

PTAC/CFTR

12:30 PM – 2:00 PM ET

Illuminating the Impact of CFTR in Cancer

PTAC/CFTR

12:30 PM – 2:00 PM ET

I'm a Research Manager, Now What?

Facilitator: Sharon McNamara, MN (she/her/hers) – Seattle Children's Hospital

CLIN

12:30 PM – 2:00 PM ET

Improving OGTT Rates

Facilitator: Sylvia E. Szentpetery, MD (she/her/hers) – Medical University of South Carolina

CLIN

12:30 PM – 2:00 PM ET

It's Not so Scary! How to Make the Most of Your Program Site Visit

Facilitator: John N. Schuen, MD (he/him/his) – Corewell Health

CLIN

12:30 PM – 2:00 PM ET

LGBTQIA+ Participants in Research

Facilitator: Samantha K. Johnson (she/her/hers) – National Jewish Health

Facilitator: Cathy Larson

CLIN

12:30 PM – 2:00 PM ET

Mental Health for RCs & Patients

Facilitator: Margret Powell, CCRC (she/her/hers) – UNC School of Medicine

CLIN

12:30 PM – 2:00 PM ET

Models & Assays for CFTR Research

Facilitator: Deborah M. Cholon, PhD – Marsico Lung Institute/Cystic Fibrosis Research Center, University of North Carolina at Chapel Hill, Chapel Hill, NC, USA

PTAC/CFTR

12:30 PM – 2:00 PM ET

Nutrition Implications of CFTR Modulators

Facilitator: Shari R. Willy, MPH, RD, CACFD (she/her/hers) – University of Louisville

NTR

12:30 PM – 2:00 PM ET

Pass the Torch but Don't Get Burned: Transitioning the Ownership of CF Self Care

Facilitator: Abby Singer

PHARM

12:30 PM – 2:00 PM ET

Personal Care for Better Patient Care

Facilitator: Lindsay Miller, RRT – St. Luke's

PT&RT

12:30 PM – 2:00 PM ET

Phage Therapy in 2024: Clinical Trials or Compassionate Care- What Are the Options Now?

Facilitator: Jonathan L. Koff – Yale University

CLIN

12:30 PM – 2:00 PM ET

Assembling the Avengers: What the Addition of the Pharmacy Technician Brings to the Team

Facilitator: Megan E. Fultz, CPhT (she/her/hers) – Indiana University Health

PHARM

12:30 PM – 2:00 PM ET

Team Work Makes The Dream Work: Pharmacy Technician Role in Pre Visit Planning

Facilitator: Felicia Gandy

PHARM

12:30 PM – 2:00 PM ET

PI Oversite

Facilitator: Allison Messuri-Swan, RN (she/her/hers) – Boston Children's Hospital

CLIN

12:30 PM – 2:00 PM ET

Pulmonary Function Testing Interpretation for APPs, RN, RCs: Taskforce Updates

Facilitator: Tina Conti, BSRC-RRT-NPS (she/her/hers) – Stanford University

NRS

12:30 PM – 2:00 PM ET

Running a Successful & Efficient Pre-Clinic Meeting

Facilitator: Julie Seguin (she/her/hers) – SUNY Upstate

NRS

12:30 PM – 2:00 PM ET

Severe Vitamin Deficiencies: What to Do When Oral Replacement Fails?

Facilitator: Chandler Tucker, RDN – National Jewish Health

CLIN

12:30 PM – 2:00 PM ET

Ships Ahoy!: Navigating the Seas of Medicare

Facilitator: Ty Smith

PHARM

12:30 PM – 2:00 PM ET

The Biologic Therapies in CF

Facilitator: Alicia A. Mirza, MD (she/her/hers) – Stanford University School of Medicine

APPTT

12:30 PM – 2:00 PM ET

The Impact of Calcium Signaling Regulation on CFTR

Facilitator: Yunjie Huang, PhD – Indiana University

APPTT

12:30 PM – 2:00 PM ET

The Patient Navigator: The CF Clinic Superhero!

Facilitator: Chelsey Heron, MA (she/her/hers) – National Jewish Health

CLIN

12:30 PM – 2:00 PM ET

The Structural Biology of CFTR

Facilitator: Han-I Yeh, PhD – University of Missouri

PTAC/CFTR

12:30 PM – 2:00 PM ET

Theratyping CFTR Variants

Facilitator: Neeraj Sharma, PhD, DVM – Johns Hopkins University School of Medicine

PTAC/CFTR

12:30 PM – 2:00 PM ET

Transition

Facilitator: Reema Poonawala, BS, RRT (she/her/hers) – UT Southwestern Adult Cystic Fibrosis & Bronchiectasis Clinic

PT&RT

12:30 PM – 2:00 PM ET

Transplant Nutrition

Facilitator: Suzanne Jetton, MPH, RD, CSP, CCTD, LD – Texas Children's Hospital

NTR

12:30 PM – 2:00 PM ET

What's that Doo Hickey? Review of Devices for Diabetes

Facilitator: Matthew Delaney, PharmD – Norton Children's Hospital/University of Louisville

PHARM

12:30 PM – 2:00 PM ET

LL08--Eradication Protocols
Location:152

Chair: Lindsay J. Caverly, MD – University of Michigan Health

Chair: Anthony J. Fischer, MD/PhD – University of Iowa

IMI

12:30 PM – 2:00 PM ET

LL09--Site Collaboration
Location:259 AB

Chair: Julia Giancola, MSN, RN, CPN, CCRC (she/her/hers) – Boston Children's Hospital

Chair: Alix Wilson – National Jewish Health

Community Speaker: Stephanie Hansen

Speaker: Salma Moreno

Speaker: Rachel Rich, CCRC – Department of Medicine, University of Alabama at Birmingham, Birmingham, AL, USA

CLIN

12:30 PM – 2:00 PM ET

LL10--I've Got 15 Minutes: Show Me a Brief Clinical Intervention
Location:162 AB

Chair: Juliana Alba, PhD (she/her/hers) – Children's Health Dallas

Chair: Rachel Grimes, LCSW – Cook Children's

Speaker: Chelsea Rogen, DPT – University Hospitals Cleveland Medical Center

Speaker: Freda F. Liu, PhD (she/her/hers) – Seattle Children's Hospital

Speaker: Abigail Hoekstra, MS CCLS (she/her/hers) – Cook Children's Medical Center

Speaker: Michelle Hjelm – Pediatrics, Cincinnati Children's Hospital Medical Center

SW/PSYCH

12:30 PM – 2:00 PM ET

LL11--Gut Games
Location:107 AB

Chair: Kay Vavrina, MPA RD LD CACFD (she/her/hers) – UT Health San Antonio

Chair: Jason Rocha, MD – University of Texas Health at San Antonio

Speaker: Senthilkumar Sankararaman, MD – UH Rainbow Babies and Children's Hospital/Case Western Reserve University

Speaker: Kimberly Altman – New York Presbyterian/Columbia University Irving Medical Center

NTR

12:30 PM – 2:00 PM ET

LL12--Building Trust in the Care Relationship
Location:257 AB

Chair: Chandra Gordon, LMSW (she/her/hers) – University of Kansas Health System

Chair: Stacy Van Gorp, PhD (she/her/hers) – See What I Mean LLC

Community Speaker: Rowan Greenlaw

HEAC

12:30 PM – 2:00 PM ET

LL13--What's Up with Mary Jane?
Location:252 B

Chair: Hanna Phan, PharmD, FCCP, FPPA – University of Michigan

Chair: Anne M. Bowen, PhD (she/her/hers) – U. Arizona

Speaker: Hanna Phan, PharmD, FCCP, FPPA – University of Michigan

Speaker: Anne M. Bowen, PhD (she/her/hers) – U. Arizona

Speaker: Shannon Manzi

SW/PSYCH

12:30 PM – 2:00 PM ET

LL14--Highs & Lows of GI & Endocrine
Location:160 A-C

Chair: Marina Litvin – Washington University School of Medicine in St. Louis

Chair: Megan Gabel, MD – University of Rochester, Golisano Children's Hospital

CLIN

12:30 PM – 2:00 PM ET

LL15--Athletes with CF: Pairing Exercise and Nutrition Through the Years
Location:254 AB

Chair: Kelsey Reiter, PT DPT NTMC – Billings Clinic CF Center

Chair: Jamie Anderson, PT, DPT (she/her/hers) – Boston Children's Hospital

Speaker: Carla Nowicki, MS, RD, CSSD, CSCS – Prisma Health Midlands

Speaker: Taylor Lewis, PhD, CEP, CSCS, CMT – Pulmonary Performance Institute

Community Speaker: Lloyd Taylor

PT&RT

2:30 PM – 3:45 PM ET

Reproductive Health in Cystic Fibrosis

Location:Ballroom East&West

Community Speaker: Molly Pam – Cystic Fibrosis Reproductive and Sexual Health Collaborative

Speaker: Raksha Jain, MD, MSc (she/her/hers) – University of Texas Southwestern Medical Center

Speaker: Traci M. Kazmerski, MD, MS (she/her/hers) – University of Pittsburgh School of Medicine