Skip to main content


Icon Legend
This session is not in your schedule.
This session is in your schedule. Click again to remove it.
Presentation Icons
Livestreamed Session
Livestreamed Session
Ticketed Session
Ticketed Session
Recorded Session
Recorded Session

Full Schedule

Full Schedule

  • Thursday, September 26, 2024
  • 6:00 AM – 6:45 AM ET
    Boston Running Tour
  • 6:00 AM – 6:30 PM ET
    Registration Open
  • 6:30 AM – 8:00 AM ET
    Poster Set-up Time
  • 7:00 AM – 9:30 AM ET
    CFF EnVision Mentees Meeting
  • 7:15 AM – 8:30 AM ET
    Breakfast
  • 7:45 AM – 9:45 AM ET
    PGR--Physicians Grand Rounds
    Chair: Clement L. Ren, MD, MBA (he/him/his) – Children’s Hospital Of Philadelphia
    Chair: Manu Jain, MD, MSc – Northwestern University
  • 7:45 AM – 9:45 AM ET
    W01--Effect of CFTR Modulator Therapy on Infection & Inflammation in CF
    Chair: Emanuela M. Bruscia, PhD – Yale University
    Chair: Raul Rascon – Nationwide Children's Hospital
    IMIAPPTT
  • 7:45 AM – 9:45 AM ET
    W02--Agnostic Avenues: Alternatives to CF Gene Therapy
    Chair: Martina Gentzsch, PhD (she/her/hers) – University of North Carolina
    Chair: Nam Soo Joo – Stanford University
    APPTT
  • 7:45 AM – 9:45 AM ET
    DG03--Who Ya' Gonna Call? - Mentoring & Education in CF
  • 7:45 AM – 9:45 AM ET
    DG04--Ethics for Mental Health Practitioners
  • 7:45 AM – 9:45 AM ET
    DG05--Trivia Night
  • 7:45 AM – 9:45 AM ET
    DG06--Cutting Edge Nutrition Topics
  • 7:45 AM – 9:45 AM ET
    DG07--PharmASSISTing the Multidisciplinary Team: Transitions of Care & Care Models
  • 7:45 AM – 9:45 AM ET
    DG08--Tools for Your Practice: Updates & Resources for Genetic Counseling for CF & CRMS/CFSPID
  • 7:45 AM – 9:45 AM ET
    DG09--APP Grand Rounds
  • 7:45 AM – 9:45 AM ET
    DG10--Technology in Research
  • 8:00 AM – 9:00 AM ET
    Registry Data Update
  • 8:00 AM – 5:00 PM ET
    Exhibit & Poster Hall Open
  • 8:15 AM – 8:35 AM ET
    Full Body Restorative Stretch & Relaxation
  • 9:00 AM – 9:50 AM ET
    RFPT01--Nucleotide-Based Therapeutics: Delivery & Gene Editing
  • 9:00 AM – 9:50 AM ET
    RFPT01--Nucleotide-Based Therapeutics: Delivery & Gene Editing
    Chair: Patrick Harrison – University College Cork
    Chair: Shingo Suzuki, PhD (he/him/his) – University of Alabama at Birmingham
    PTAC/CFTR
  • 9:00 AM – 9:50 AM ET
    RFPT02--Aging
    Chair: Sophie Corriveau, MD, FRCPC – McMaster University
    Chair: Julian S. Tam, MD (he/him/his) – University of Saskatchewan
    CLIN
  • 9:00 AM – 10:00 AM ET
    Next Generation Registry (NGR)
  • 9:00 AM – 11:00 AM ET
    Coffee Break
  • 10:15 AM – 11:30 AM ET
    Registry Classroom Open Q/A Session
  • 10:15 AM – 11:45 AM ET
    TPS01--Pharmacotherapy
    Chair: Cori Muirhead, PharmD, BCPPS – Doernbecher Children's Hospital
    Chair: Madison Hill, PharmD (she/her/hers) – Primary Children's Cystic Fibrosis Clinic
    PHARM
  • 10:15 AM – 12:15 PM ET
    W03--New Insights Regarding CFTR Basic Biology & Implications for Future Therapeutics
    Chair: Carlos M. Farinha, PhD (he/him/his) – Faculty of Sciences, University of Lisboa, BioISI - Biosystems and Integrative Sciences Institute
    Chair: Kenichi Okuda – Marsico Lung Institute/Cystic Fibrosis Research Center, University of North Carolina at Chapel Hill, Chapel Hill, NC, USA
    PTAC/CFTR
  • 10:15 AM – 12:15 PM ET
    W04--Advanced Lung Disease & Lung Transplant
    Chair: Kathleen J. Ramos, MD MS (she/her/hers) – University of Washington
    CLIN
  • 10:15 AM – 12:15 PM ET
    W05--Advances Along the Path to a Cure
    Chair: John D. Lueck, Ph.D. – University of Rochester School of Medicine and Dentistry
    Chair: Alexandra S. Piotrowski-Daspit, PhD (she/her/hers) – University of Michigan
    PTAC/CFTR
  • 10:15 AM – 12:15 PM ET
    W06--The ABCs of Cancer Screening
    Chair: Katherine Stull, PA-C – Thomas Jefferson University Hospital
    Chair: Lynne M. Fries, PA-C, MPAS, DPT, AE-C – Cystic Fibrosis Center of Western New York
    NRS
  • 10:15 AM – 12:15 PM ET
    W07--Best Abstracts in GI & Hepatology
    Chair: Tanja Gonska, MD – the Hospital for Sick Children
    Chair: Linda C. Cummings, MD, MS – University Hospitals Cleveland Medical Center/Case Western Reserve University
    CLIN
  • 10:15 AM – 12:15 PM ET
    W08--PT & RT Research: Year in Review
    Chair: DeeAnna Serna, RRT-NPS, AE-C (she/her/hers) – University of California Los Angeles (UCLA)
    Chair: Clare Smith, BScPT (she/her/hers) – University of Calgary
    PT&RT
  • 10:15 AM – 12:15 PM ET
    W08--PT and RT Research: Year in Review
  • 10:15 AM – 12:15 PM ET
    W09--Airway Ions, Fluid, & Mucus Transport
    Chair: Juan P. Ianowski, PhD (he/him/his) – University of Saskatchewan
    Chair: Ian Thornell – University of Iowa
    APPTT
  • 10:15 AM – 12:15 PM ET
    W10--Psychosocial Research Showcase
    Chair: Janelle Heddings, PhD (she/her/hers) – WVU School of Medicine
    Chair: Bob Goodholm, LCSW (he/him/his) – Mayo Clinic Florida
    SW/PSYCH
  • 10:15 AM – 12:15 PM ET
    W11--Best Practice & Innovative Approaches in Clinical Research
    Chair: Lisa Bendy, BA, CCRC – Indiana University
    Chair: Samantha K. Johnson (she/her/hers) – National Jewish Health
    CLIN
  • 10:15 AM – 12:15 PM ET
    W12--Pathogenesis of CF Airway Infection
    Chair: Jaime L. Hook, MD – Icahn School of Medicine at Mount Sinai
    Chair: Christine H. Rumpf, n/a (she/her/hers) – Institute of Medical Microbiology, University Hospital Muenster, Muenster, Germany
    IMI
  • 10:15 AM – 12:15 PM ET
    W13--Best Abstracts in Endocrinology
    Chair: Marissa Kilberg, MD, MSEd (she/her/hers) – Children's Hospital of Philadelphia
    Chair: Christine L. Chan, MD (she/her/hers) – University of Colorado
    CLIN
  • 10:15 AM – 12:15 PM ET
    W14--Equity in Action
    Chair: Thida Ong, MD (she/her/hers) – Seattle Children's Hospital/UW
    Chair: Melissa Alao, MSW, LICSW (she/her/hers) – Boston Children's Hospital/Brigham and Women's Hospital
    HEAC
  • 10:20 AM – 10:40 AM ET
    Lower Body Relaxation
  • 10:50 AM – 11:10 AM ET
    Lower Body Relaxation
  • 11:30 AM – 12:15 PM ET
    Affiliate Program Directors' Meeting
  • 12:15 PM – 2:30 PM ET
    Lunch Time
  • 12:30 PM – 1:20 PM ET
    FSC01--Fireside Chat with Phil Thomas
  • 12:30 PM – 1:20 PM ET
    FSC02--Fireside Chat with Maggie McIlwaine
  • 12:30 PM – 1:20 PM ET
    RFPT03--Health Equity, Access, & Care Delivery
    Chair: Meghan McGarry, MD (she/her/hers) – Seattle Children's Hospital
    Chair: Bryan Garcia, MD – UAB
    HEAC
  • 12:30 PM – 1:20 PM ET
    RFPT04--Quality Improvement
    Chair: Sophie Corriveau, MD, FRCPC – McMaster University
    Chair: Amy Dettori, MD (she/her/hers) – University of Washington / Seattle Children's Hospital
    CLIN
  • 12:30 PM – 1:30 PM ET
    Core Center & Affiliate Program Meeting
  • 12:30 PM – 2:00 PM ET
    Junior Investigator Poster Judging Time
  • 12:30 PM – 2:00 PM ET
    LL01--Leveling Up Your ACT with CF Practice
  • 12:30 PM – 2:00 PM ET
    LL02--Alveoli: A Player in the CF Lung?
  • 12:30 PM – 2:00 PM ET
    LL03--Prenatal & Postnatal Management of ETI Exposed Infants
  • 12:30 PM – 2:00 PM ET
    LL04--Strategies for Strengthening Multi-Disciplinary Care
  • 12:30 PM – 2:00 PM ET
    LL05--Navigating Nutrition: Recent Research Findings
  • 12:30 PM – 2:00 PM ET
    LL06--Smart & a Little Scattered: Assessing & Intervening for Success
  • 12:30 PM – 2:00 PM ET
    LL07--Navigating Challenges with Health Insurance Coverage
  • 12:30 PM – 2:00 PM ET
    Group 1 Roundtables
  • 12:30 PM – 2:00 PM ET
    Group 2 Roundtables
  • 12:30 PM – 2:00 PM ET
    Group 3 Roundtables
  • 12:30 PM – 2:00 PM ET
    Group 4 Roundtables
  • 12:30 PM – 2:00 PM ET
    Group 5 Roundtables
  • 12:30 PM – 2:00 PM ET
    TPS02--Bugs & Drugs & Immunologic Thugs
    Chair: Daniel Cook, MD, PhD – University of Iowa
    Chair: Sheryl Fernandes (she/her/hers) – Cedars Sinai Medical Center
    IMIAPPTT
  • 12:30 PM – 2:30 PM ET
    TPS02--Bugs & Drugs & Immunologic Thugs

    Chair: Daniel Cook, MD, PhD – University of Iowa

    Chair: Sheryl Fernandes – Cedars Sinai Medical Center

  • 1:30 PM – 2:20 PM ET
    FSC03--Fireside Chat with Toni Moran
  • 1:30 PM – 2:20 PM ET
    FSC04--Fireside Chat with Lauren Ahrens
  • 1:30 PM – 2:20 PM ET
    RFPT05--Detection & Diagnosis of Infection
    Chair: Gina Hong, M.D., M.H.S. – University of Pennsylvania Perelman School of Medicine
    Chair: Matthew M. Schaefers, n/a (he/him/his) – Boston Children's Hospital
    IMI
  • 1:30 PM – 2:20 PM ET
    RFPT06--Psychosocial Research Showcase: The Sequel
    Chair: Sarah Pritt, PsyD – Adult CF Clinic Center, Geisinger Healthcare System
    Chair: Kristina G. Mertz, LICSW (she/her/hers) – Providence Medical Group
    SW/PSYCH
  • 2:00 PM – 2:45 PM ET
    Advanced Lung Disease (ALD)
  • 2:30 PM – 4:00 PM ET
    TPS03--Biomarkers of Infection & Inflammation
    Chair: Scott Sagel, MD, PhD – Children's Hospital Colorado/University of Colorado Anschutz Medical Campus
    Chair: Christina S. Thornton, MD PhD – University of Calgary
    CLIN
  • 2:30 PM – 4:30 PM ET
    S01--Fungal Infections in CF
    Chair: Deborah Hogan – Geisel School of Medicine at Dartmouth
    Chair: Stephen K. Dolan, PhD (he/him/his) – Clemson University
    IMI
  • 2:30 PM – 4:30 PM ET
    S02--Paradigm Shift in CF Care Model
    Chair: Rebekah F. Brown, MD (she/her/hers) – Vanderbilt University Medical Center
    Chair: Patrick A. Flume, MD – Medical University of South Carolina
    CLIN
  • 2:30 PM – 4:30 PM ET
    S03--Golden Girls: Care Considerations for the Aging CF Female
    Chair: Suzanne Roberson, BSN (she/her/hers) – University of South Florida Tampa General Physician Group
    Chair: Cheryl Kushner, APRN – Joe DiMaggio Cystic Fibrosis, Pulmonary and Sleep Center
    NRS
  • 2:30 PM – 4:30 PM ET
    S04--CF Around the World: Challenges & Opportunities
    Chair: Dana Albon – University of Virginia
    Chair: Golnar Raissi, ND, integrative physician – Columbia University
    HEAC
  • 2:30 PM – 4:30 PM ET
    S05--An Evolving Understanding of ETI: Potential Mechanisms of Lingering Disease
    Chair: Jerry A. Nick, MD (he/him/his) – National Jewish Health
    Chair: Jennifer Guimbellot – Arkansas Children's Hospital/Arkansas Children's Research Institute
    CLIN
  • 2:30 PM – 4:30 PM ET
    S06--Feeling Burnt Out?
    Chair: Alexandra L. Quittner, PhD (she/her/hers) – Joe DiMaggio Cystic Fibrosis Center
    Chair: Amy Sangvai, MSW, LCSW – UNC Health, Pediatric Cystic Fibrosis Center, Chapel Hill, NC, USA
    SW/PSYCH
  • 2:30 PM – 4:30 PM ET
    S07--CFTR 2024: Better Understanding of the Underlying CF Disease Mechanism
    Chair: Jeff L. Brodsky, PhD (he/him/his) – University of Pittsburgh
    Chair: Kathryn E. Oliver, PhD, MS (she/her/hers) – Emory University School of Medicine
    PTAC/CFTR
  • 2:30 PM – 4:30 PM ET
    S08--The Impact of Highly Effective Modulator Therapy (HEMT) on the Vicious Cycle of Obstruction, Infection, & Inflammation
    Chair: Deepika Polineni, MD MPH – Washington University in St. Louis
    Chair: Marcus A. Mall – Department of Pediatric Respiratory Medicine, Immunology and Intensive Care Medicine, Charité, Universitätsmedizin, Berlin, Germany
    Community Chair: Tré LaRosa
    APPTTIMI
  • 2:30 PM – 4:30 PM ET
    S09--Revolutionizing Health in Nutrition, Endocrinology, & Gastroenterology
    Chair: Gretchen Garlow, LDN – Massachusetts General Hospital
    Chair: Sara Hendrix, RD (she/her/hers) – Medical University of South Carolina
    NTR
  • 2:30 PM – 4:30 PM ET
    S10--Your Case: Airway Clearance vs Exercise in the New Era
    Chair: Melissa Richmond, MPT – BC Children's Hospital
    Chair: Jennifer Walzel, PT, DPT, PCS – Dell Children's Medical Center of Central Texas
    PT&RT
  • 2:30 PM – 4:30 PM ET
    S11--Nucleotide-Based Therapeutics Across Diverse Populations
    Chair: Jennifer L. Taylor-Cousar, MD (she/her/hers) – National Jewish Health
    Chair: Nicole Mayer Hamblett, PhD (she/her/hers) – University of Washington
    PTAC/CFTR
  • 2:30 PM – 4:30 PM ET
    S12--Sugar, Spice, & Everything Nice- Recipes for Sweet Success in Pediatrics & Pregnancy Management
    Chair: Taylor Imburgia, PharmD, BCPPS – The Johns Hopkins Hospital
    PHARM
  • 3:00 PM – 4:30 PM ET
    Registry Tools (PortCF and CFSmartReports)
  • 4:05 PM – 4:15 PM ET
    Foot Reflexology
  • 4:20 PM – 4:30 PM ET
    Foot Reflexology
  • 5:00 PM – 6:30 PM ET
    PL1--Challenges & Progress in the Pursuit of Genetic Therapies for Cystic Fibrosis
  • 6:45 PM – 7:45 PM ET
    Welcome Reception