Full Schedule

7:45 AM – 9:45 AM ET

PGR--Physicians Grand Rounds
Location:210 A-C

Chair: Clement L. Ren, MD, MBA (he/him/his) – Children’s Hospital Of Philadelphia

Chair: Manu Jain, MD, MSc – Northwestern University

7:45 AM – 9:45 AM ET

Evaluating Biologic Regimens for Treatment-Resistant Allergic Bronchopulmonary Aspergillosis
Location:210 A-C

Speaker: Alicia A. Mirza, MD (she/her/hers) – Stanford University School of Medicine

7:45 AM – 9:45 AM ET

Brain abscess in a 41 year old woman with cystic fibrosis.
Location:210 A-C

Speaker: Kim McBennett, MD, PhD – Case Western Reserve University

7:45 AM – 9:45 AM ET

A case of recurrent drug-Induced liver injury (DILI) in a pediatric patient with initiation of Cystic Fibrosis Transmembrane Conductance Regulator (CFTR) modulator therapy
Location:210 A-C

Speaker: Adalee Gardner

7:45 AM – 9:45 AM ET

Pancreatitis and CFTR dysfunction: A Young Adult with Broad Differential Diagnoses
Location:210 A-C

Speaker: Brian Carroll, MD – Children's Respiratory and Critical Care Specialists

7:45 AM – 9:45 AM ET

Discussion- Brain abscess in a 41 year old woman with cystic fibrosis.
Location:210 A-C

Discussant: Ranjani Somayaji, MD, MPH, FRCPC (she/her/hers) – University of Calgary

7:45 AM – 9:45 AM ET

Discussion- A case of recurrent drug-Induced liver injury (DILI) in a pediatric patient with initiation of Cystic Fibrosis Transmembrane Conductance Regulator (CFTR) modulator therapy
Location:210 A-C

Discussant: Zachary M. Sellers, MD, PhD – Stanford University

7:45 AM – 9:45 AM ET

Discussion- Pancreatitis and CFTR dysfunction: A Young Adult with Broad Differential Diagnoses
Location:210 A-C

Discussant: Mitchell Ramsey – The Ohio State University Wexner Medical Center

7:45 AM – 9:45 AM ET

W01--Effect of CFTR Modulator Therapy on Infection & Inflammation in CF
Location:156 A-C

Chair: Emanuela M. Bruscia, PhD – Yale University

Chair: Raul Rascon – Nationwide Children's Hospital

IMI

APPTT

7:45 AM – 9:45 AM ET

W02--Agnostic Avenues: Alternatives to CF Gene Therapy
Location:153 A-C

Chair: Martina Gentzsch, PhD (she/her/hers) – University of North Carolina

Chair: Nam Soo Joo, PhD (he/him/his) – Stanford University

APPTT

7:45 AM – 9:45 AM ET

DG03--Who Ya' Gonna Call? - Mentoring & Education in CF
Location:259 AB

Chair: Teresa Carney, MS, RNC, PPCNP-BC – Stony Brook University

Chair: Julie Seguin (she/her/hers) – SUNY Upstate

Speaker: Julie Seguin (she/her/hers) – SUNY Upstate

Speaker: Teresa Carney, MS, RNC, PPCNP-BC – Stony Brook University

Speaker: Erin Wilson, MSN, APRN, CPNP-PC (she/her/hers) – University of Kentucky

Speaker: Meier M. Ellen, CPNP, APRN (she/her/hers) – Children's Mercy Kansas City

Speaker: Christine Mavaro, DNP FNP-BC – NYU

Speaker: Shannon Whiteman, RN, BSN – University of Pittsburgh

Speaker: Kyle Johnson

Community Speaker: Gillian Mocek, MSW – Cystic Fibrosis Foundation

Community Speaker: Amita B. Mahajan (she/her/hers) – N/A

NRS

Teresa Carney, MS, RNC, PPCNP-BC – Stony Brook University ### 1716318###Chair###Program Coordinator, QI Lead, CFF Facilitator###Stony Brook University ###
Chair: Teresa Carney, MS, RNC, PPCNP-BC – Stony Brook University
### @@@ Julie Seguin (she/her/hers) – SUNY Upstate ### 1404942###Chair###Center Coordinator###SUNY Upstate###
Chair: Julie Seguin (she/her/hers) – SUNY Upstate
### she/her/hers @@@ Julie Seguin (she/her/hers) – SUNY Upstate ### 1404942###Speaker###Center Coordinator###SUNY Upstate###
Speaker: Julie Seguin (she/her/hers) – SUNY Upstate
### she/her/hers @@@ Teresa Carney, MS, RNC, PPCNP-BC – Stony Brook University ### 1716318###Speaker###Program Coordinator, QI Lead, CFF Facilitator###Stony Brook University ###
Speaker: Teresa Carney, MS, RNC, PPCNP-BC – Stony Brook University
### @@@ Erin Wilson, MSN, APRN, CPNP-PC (she/her/hers) – University of Kentucky ### 2079893###Speaker###Program Coordinator, Pediatric Nurse Practitioner###University of Kentucky###
Speaker: Erin Wilson, MSN, APRN, CPNP-PC (she/her/hers) – University of Kentucky
### she/her/hers @@@ Meier M. Ellen, CPNP, APRN (she/her/hers) – Children's Mercy Kansas City ### 1402835###Speaker###NP and Program Coordinator###Children's Mercy Kansas City###
Speaker: Meier M. Ellen, CPNP, APRN (she/her/hers) – Children's Mercy Kansas City
### she/her/hers @@@ Christine Mavaro, DNP FNP-BC – NYU ### 2314997###Speaker###CF Coordinator###NYU###
Speaker: Christine Mavaro, DNP FNP-BC – NYU
### @@@ Shannon Whiteman, RN, BSN – University of Pittsburgh ### 2314998###Speaker###Program Coordinator###University of Pittsburgh###
Speaker: Shannon Whiteman, RN, BSN – University of Pittsburgh
### @@@ Kyle Johnson ### 2314999###Speaker#########
Speaker: Kyle Johnson
### @@@ Gillian Mocek, MSW – Cystic Fibrosis Foundation ### 2079622###Community Speaker###Community Support Specialist###Cystic Fibrosis Foundation###
Community Speaker: Gillian Mocek, MSW – Cystic Fibrosis Foundation
### @@@ Amita B. Mahajan (she/her/hers) – N/A ### 2315000###Community Speaker###N/A###N/A###
Community Speaker: Amita B. Mahajan (she/her/hers) – N/A
### she/her/hers

7:45 AM – 9:45 AM ET

DG04--Ethics for Mental Health Practitioners
Location:107 AB

Chair: Kimberly Morse, MSW, LCSW (she/her/hers) – Children's Hospital Los Angeles

Chair: Diana Naranjo, PhD (she/her/hers) – Stanford School of Medicine

Speaker: Natacha D. Emerson, PhD (she/her/hers) – University of California, Los Angeles (UCLA)

Speaker: Siri Vaeth, MSW, MSW (she/her/hers) – Cystic Fibrosis Research Institute (CFRI)

Speaker: Yelzaveta Sher, MD, FACLP (she/her/hers) – Stanford University School of Medicine

Speaker: Jessica R. Balcom, MS, CGC

SW/PSYCH

7:45 AM – 9:45 AM ET

DG05--Trivia Night
Location:152

Chair: Jacqueline Vicencio – The Children's Hospital of Philadelphia

Chair: Donna K. Germuga, BS, RRT, CPFT (she/her/hers) – University of Rochester

PT&RT

7:45 AM – 9:45 AM ET

DG06--Cutting Edge Nutrition Topics
Location:252 B

Chair: Angel Maree Jones, MS, RD, CACFD (she/her/hers) – Children’s Hospital of Los Angeles

Chair: Kanan Patel, MS, RD, CSP, CACFD (she/her/hers) – Children's Healthcare of Atlanta

Community Speaker: Stephanie Hansen

Speaker: Erin Scallorn, MS, RD, LD, CDCES (she/her/hers) – Baylor Scott and white

Speaker: Susan L. Gemma, MS, RD – Nationwide Children's Hospital

NTR

7:45 AM – 9:45 AM ET

DG07--PharmASSISTing the Multidisciplinary Team: Transitions of Care & Care Models
Location:160 A-C

Chair: Wendy Bullington – MUSC Health

Chair: Brittany Martin, CPhT – T. C. Thompson's Children's Hospital at Erlanger

Speaker: Sarah Kubiak, PharmD, BCPS – Boston Children's Hospital

Speaker: Brittany A. Wright, PharmD, BCACP – University of Iowa Hospitals and Clinics

Speaker: Lilly LaFemina

Speaker: Kelly Leal, CPhT-Adv (she/her/hers) – UofL Health Adult Cystic Fibrosis Center

Speaker: Emily Seamans, PharmD, CSP – Dartmouth-Hitchcock Medical Center

PHARM

7:45 AM – 9:45 AM ET

DG08--Tools for Your Practice: Updates & Resources for Genetic Counseling for CF & CRMS/CFSPID
Location:254 AB

Chair: Sumedha Ghate, MS, CGC (she/her/hers) – St. Vincent Hospital - Medical Genetics

Chair: Renee Temme, MS, CGC (she/her/hers) – Children's Minnesota - Medical Genetics

Speaker: Chelsea Wagner, MS, CGC (she/her/hers) – BillionToOne

Speaker: Angelique Mercier

Speaker: Denise Kay, Ph.D.

CLIN

7:45 AM – 9:45 AM ET

DG09--APP Grand Rounds
Location:257 AB

Chair: Brandi Middour-Oxler:, DNP, CPNP – Emory University

Chair: Angela M. Dziok, MSN, BS, RRT, FNP-C (she/her/hers) – Rhode Island Hospital / Hasbro Children's Hospital

NRS

7:45 AM – 9:45 AM ET

DG10--Technology in Research
Location:162 AB

Chair: Robert Fowler, MA, CCRC – Boston Children's Hospital

Chair: Jonathan Greenberg, MA – Boston Children's Hospital

CLIN

9:00 AM – 9:50 AM ET

RFPT01--Nucleotide-Based Therapeutics: Delivery & Gene Editing
Location:Exhibit Hall

Chair: Patrick Harrison – University College Cork

Chair: Shingo Suzuki, PhD (he/him/his) – University of Alabama at Birmingham

PTAC/CFTR

9:00 AM – 9:50 AM ET

RFPT02--Aging
Location:Exhibit Hall

Chair: Sophie Corriveau, MD, FRCPC – McMaster University

Chair: Julian S. Tam, MD – University of Saskatchewan

CLIN

10:15 AM – 11:45 AM ET

TPS01--Pharmacotherapy
Location:Exhibit Hall

Chair: Cori Muirhead, PharmD, BCPPS – Doernbecher Children's Hospital

Chair: Madison Hill, PharmD (she/her/hers) – Primary Children's Cystic Fibrosis Clinic

PHARM

10:15 AM – 12:15 PM ET

W03--New Insights Regarding CFTR Basic Biology & Implications for Future Therapeutics
Location:157 A-C

Chair: Carlos M. Farinha, PhD (he/him/his) – Faculty of Sciences, University of Lisboa, BioISI - Biosystems and Integrative Sciences Institute

Chair: Kenichi Okuda – Marsico Lung Institute/Cystic Fibrosis Research Center, University of North Carolina at Chapel Hill, Chapel Hill, NC, USA

PTAC/CFTR

10:15 AM – 12:15 PM ET

W04--Advanced Lung Disease & Lung Transplant
Location:253 A-C

Chair: Kathleen J. Ramos – University of Washington

Chair: Grant Turner, MD, MHA (he/him/his) – UCLA

CLIN

10:15 AM – 12:15 PM ET

W05--Advances Along the Path to a Cure
Location:210 A-C

Chair: John D. Lueck, Ph.D. – University of Rochester School of Medicine and Dentistry

Chair: Alexandra S. Piotrowski-Daspit, PhD (she/her/hers) – University of Michigan

PTAC/CFTR

10:15 AM – 12:15 PM ET

W06--The ABCs of Cancer Screening
Location:156 A-C

Chair: Katherine Stull, PA-C – Thomas Jefferson University Hospital

Chair: Lynne M. Fries, PA-C, MPAS, DPT, AE-C (she/her/hers) – Cystic Fibrosis Center of Western New York

NRS

10:15 AM – 12:15 PM ET

W07--Best Abstracts in GI & Hepatology
Location:207

Chair: Tanja Gonska, MD – the Hospital for Sick Children

Chair: Linda C. Cummings, MD, MS – University Hospitals Cleveland Medical Center/Case Western Reserve University

CLIN

10:15 AM – 12:15 PM ET

W08--PT & RT Research: Year in Review
Location:153 A-C

Chair: DeeAnna Serna, RRT-NPS, AE-C (she/her/hers) – University of California Los Angeles (UCLA)

Chair: Clare Smith, BScPT (she/her/hers) – University of Calgary

PT&RT

10:15 AM – 12:15 PM ET

W09--Airway Ions, Fluid, & Mucus Transport
Location:109 AB

Chair: Juan P. Ianowski, PhD (he/him/his) – University of Saskatchewan

Chair: Ian Thornell, PhD (he/him/his) – University of Iowa

APPTT

10:15 AM – 12:15 PM ET

W10--Psychosocial Research Showcase
Location:102 AB

Chair: Janelle Heddings, PhD (she/her/hers) – WVU School of Medicine

Chair: Bob Goodholm, LCSW (he/him/his) – Mayo Clinic Florida

SW/PSYCH

10:15 AM – 12:15 PM ET

W11--Best Practice & Innovative Approaches in Clinical Research
Location:258 A-C

Chair: Lisa Bendy, BA, CCRC – Indiana University

Chair: Samantha K. Johnson (she/her/hers) – National Jewish Health

CLIN

10:15 AM – 12:15 PM ET

W12--Pathogenesis of CF Airway Infection
Location:206 AB

Chair: Jaime L. Hook, MD – Icahn School of Medicine at Mount Sinai

Chair: Christine H. Rumpf, n/a (she/her/hers) – Institute of Medical Microbiology, University Hospital Muenster, Muenster, Germany

IMI

10:15 AM – 12:15 PM ET

W13--Best Abstracts in Endocrinology
Location:104 AB

Chair: Marissa Kilberg, MD – Children's Hospital of Philadelphia

Chair: Christine L. Chan, MD (she/her/hers) – University of Colorado

CLIN

10:15 AM – 12:15 PM ET

W14--Equity in Action
Location:205 A-C

Chair: Thida Ong, MD (she/her/hers) – Seattle Children's Hospital/UW

Chair: Melissa Alao, MSW, LICSW (she/her/hers) – Boston Children's Hospital/Brigham and Women's Hospital

HEAC

11:30 AM – 12:15 PM ET

Affiliate Program Directors' Meeting
Location:Omni Boston Hotel at the Seaport

12:30 PM – 1:20 PM ET

FSC01--Fireside Chat Phil Thomas
Location:Exhibit Hall

PTAC/CFTR

12:30 PM – 1:20 PM ET

FSC02--Fireside Chat with Maggie McIlwaine
Location:Exhibit Hall

Speaker: Maggie McIlwaine, PhD – University of British Columbia

Facilitator: Melissa Richmond, MPT – BC Children's Hospital

PT&RT

12:30 PM – 1:20 PM ET

RFPT03--Health Equity, Access, & Care Delivery
Location:Exhibit Hall

Chair: Meghan McGarry, MD – Seattle Children's Hospital

Chair: Bryan Garcia, MD (he/him/his) – UAB

HEAC

12:30 PM – 1:20 PM ET

RFPT04--Quality Improvement
Location:Exhibit Hall

Chair: Sophie Corriveau, MD, FRCPC – McMaster University

Chair: Amy Dettori, MD (she/her/hers) – University of Washington / Seattle Children's Hospital

CLIN

12:30 PM – 1:30 PM ET

Core Center & Affiliate Program Meeting
Location:Omni Boston Hotel at the Seaport

12:30 PM – 2:00 PM ET

Junior Investigator Poster Judging Time
Location:Exhibit Hall

Chair: Kathryn E. Oliver, PhD, MS (she/her/hers) – Emory University School of Medicine

Chair: Katherine B. Hisert, MD, PhD (she/her/hers) – National Jewish Health

Chair: Anna Georgiopoulos, MD (she/her/hers) – Massachusetts General Hospital, Boston, MA, USA

Chair: Don B. Sanders, MD, MS – Indiana University School of Medicine

Judge: Katherine Tuggle

Judge: Clemente J. Britto, MD – Yale University

Judge: Sebastián A. Riquelme – Columbia University Irving Medical Center

Judge: Craig Hodges, PhD – CWRU

Judge: Martina Gentzsch, PhD (she/her/hers) – University of North Carolina

Judge: Jessica A. Alvarez, PhD, RD (she/her/hers) – Emory University

Judge: Lane L. Clarke, DVM, PhD – University of Missouri

Judge: Alexandra L. Quittner, PhD (she/her/hers) – Joe DiMaggio Cystic Fibrosis Center

Judge: Denis Hadjiliadis, MD, MHS, FRCP(C) – University of Pennsylvania

Judge: Elizabeth L. Yu (she/her/hers) – Cystic Fibrosis Foundation

Judge: Dara Riva

Judge: Nicholas J. Antos, MD (he/him/his) – Department of Pediatrics, Medical College of Wisconsin, Children's Wisconsin

Kathryn E. Oliver, PhD, MS (she/her/hers) – Emory University School of Medicine ### 1403161###Chair###Assistant Professor###Emory University School of Medicine###
Chair: Kathryn E. Oliver, PhD, MS (she/her/hers) – Emory University School of Medicine
### she/her/hers @@@ Katherine B. Hisert, MD, PhD (she/her/hers) – National Jewish Health ### 1404679###Chair###Assistant Professor###National Jewish Health###
Chair: Katherine B. Hisert, MD, PhD (she/her/hers) – National Jewish Health
### she/her/hers @@@ Anna Georgiopoulos, MD (she/her/hers) – Massachusetts General Hospital, Boston, MA, USA ### 1716005###Chair###Psychiatrist###Massachusetts General Hospital, Boston, MA, USA###
Chair: Anna Georgiopoulos, MD (she/her/hers) – Massachusetts General Hospital, Boston, MA, USA
### she/her/hers @@@ Don B. Sanders, MD, MS – Indiana University School of Medicine ### 1651468###Chair###Associate Professor###Indiana University School of Medicine###
Chair: Don B. Sanders, MD, MS – Indiana University School of Medicine
### @@@ Katherine Tuggle ### 62327###Judge#########
Judge: Katherine Tuggle
### @@@ Clemente J. Britto, MD – Yale University ### 69926###Judge###Assistant Professor###Yale University###
Judge: Clemente J. Britto, MD – Yale University
### @@@ Sebastián A. Riquelme – Columbia University Irving Medical Center ### 1691772###Judge###Assistant Professor of Immunology###Columbia University Irving Medical Center###
Judge: Sebastián A. Riquelme – Columbia University Irving Medical Center
### @@@ Craig Hodges, PhD – CWRU ### 1717724###Judge###Associate Professor###CWRU###
Judge: Craig Hodges, PhD – CWRU
### @@@ Martina Gentzsch, PhD (she/her/hers) – University of North Carolina ### 59324###Judge###Associate Professor###University of North Carolina###
Judge: Martina Gentzsch, PhD (she/her/hers) – University of North Carolina
### she/her/hers @@@ Jessica A. Alvarez, PhD, RD (she/her/hers) – Emory University ### 2075676###Judge###Associate Professor###Emory University###
Judge: Jessica A. Alvarez, PhD, RD (she/her/hers) – Emory University
### she/her/hers @@@ Lane L. Clarke, DVM, PhD – University of Missouri ### 59236###Judge###Professor###University of Missouri###
Judge: Lane L. Clarke, DVM, PhD – University of Missouri
### @@@ Alexandra L. Quittner, PhD (she/her/hers) – Joe DiMaggio Cystic Fibrosis Center ### 1402957###Judge###Senior Scientist###Joe DiMaggio Cystic Fibrosis Center###
Judge: Alexandra L. Quittner, PhD (she/her/hers) – Joe DiMaggio Cystic Fibrosis Center
### she/her/hers @@@ Denis Hadjiliadis, MD, MHS, FRCP(C) – University of Pennsylvania ### 1403951###Judge###Paul F Harron Jr Professor of Medicine###University of Pennsylvania###
Judge: Denis Hadjiliadis, MD, MHS, FRCP(C) – University of Pennsylvania
### @@@ Elizabeth L. Yu (she/her/hers) – Cystic Fibrosis Foundation ### 1691931###Judge###Clinical Training and Resources Director###Cystic Fibrosis Foundation###
Judge: Elizabeth L. Yu (she/her/hers) – Cystic Fibrosis Foundation
### she/her/hers @@@ Dara Riva ### 2106118###Judge###Director of Clinical Research Programs, Sr.######
Judge: Dara Riva
### @@@ Nicholas J. Antos, MD (he/him/his) – Department of Pediatrics, Medical College of Wisconsin, Children's Wisconsin ### 1717179###Judge###Associate Professor; Director, CF Center###Department of Pediatrics, Medical College of Wisconsin, Children's Wisconsin###
Judge: Nicholas J. Antos, MD (he/him/his) – Department of Pediatrics, Medical College of Wisconsin, Children's Wisconsin
### he/him/his

12:30 PM – 2:00 PM ET

Best Practices for Mental Health Screening for Parents of Children with CF & Next Steps for Positive Screens

Facilitator: Gail Yashar, MS, MSW,LCSW (she/her/hers) – Duke Hospital

SW/PSYCH

12:30 PM – 2:00 PM ET

Biomarker or Bumpkis? Validating Markers of Inflammation Post-ETI

Facilitator: Mimi Saavedra, MD – National Jewish Health

IMI

12:30 PM – 2:00 PM ET

Case Closed: Building a Compelling Case for the Pharmacy Technician in CF Care

Facilitator: Tarah Chidiac, CPhT – Banner

PHARM

12:30 PM – 2:00 PM ET

CFF RT Mentoring Program

Facilitator: Gina Collins, MPH, RRT (she/her/hers) – Inova Fairfax Hospital Adult Cystic Fibrosis Center

PT&RT

12:30 PM – 2:00 PM ET

Chronic Pancreatitis

Facilitator: Elissa Downs – University of Minnesota

CLIN

12:30 PM – 2:00 PM ET

Constipation

Facilitator: Sujal Rangwalla, DO – Ascension Seton, Dell Children’s Medical Group

CLIN

12:30 PM – 2:00 PM ET

Eating Disorders

Facilitator: Amber Neece, MA RDN CD (she/her/hers) – University of Utah

NTR

12:30 PM – 2:00 PM ET

Education, Training, & Mentoring New Psychosocial Providers

Facilitator: Megan Pluymert

SW/PSYCH

12:30 PM – 2:00 PM ET

Enter the Matrix: Navigating Patient Assistance Programs in Matrix Model Insurance Plans

Facilitator: Laura Kirschenmann, CPhT-Adv (she/her/hers) – Billings Clinic

PHARM

12:30 PM – 2:00 PM ET

Fetal CF therapy

Facilitator: Ambika Shenoy, MD – Children's Hospital of Philadelphia

CLIN

12:30 PM – 2:00 PM ET

Follow the Rainbow: Medications in Gender Affirming Care

Facilitator: Marin Valentino, PharmD – University of Rochester Medical Center

PHARM

12:30 PM – 2:00 PM ET

GI Cancers

Facilitator: Mitchell Ramsey – The Ohio State University Wexner Medical Center

CLIN

12:30 PM – 2:00 PM ET

Incorporating QI into Clinic

Facilitator: Mary A. Jones-Gant, MSN, NP-C (she/her/hers) – ChristianaCare

NRS

12:30 PM – 2:00 PM ET

Infant Nutrition

Facilitator: Erin Seffrood, MS, RD, CSP (she/her/hers) – UW health kids

NTR

12:30 PM – 2:00 PM ET

Ins & Outs of Tube Feeding

Facilitator: Jillian Sullivan, MD, MSCS – Larner College of Medicine at the University of Vermont

CLIN

12:30 PM – 2:00 PM ET

Is Our Clinic Safe? Investigating Possible Infection Outbreaks in Your Program

Facilitator: Jane E. Gross, MD, PhD (she/her/hers) – National Jewish Health

IMI

12:30 PM – 2:00 PM ET

Key to successful transition from the pediatric to the adult CF program

Facilitator: Pi Chun (Jennifer) Cheng, MD, MS – Indiana University School of Medicine, Riley Hospital for Children

CLIN

12:30 PM – 2:00 PM ET

Micronutrients

Facilitator: Asim Maqbool

CLIN

12:30 PM – 2:00 PM ET

Navigating Infection Control in the Community

Facilitator: Lynn Bonitz, RN, MS (she/her/hers) – Cohen Children's Medical Center

NRS

12:30 PM – 2:00 PM ET

Newborn CF Care – Protocol for NICU Care, Outpatient Care After Diagnosis

Facilitator: Jenn Stewart, APRN, FNP-C (she/her/hers) – University of Utah

NRS

12:30 PM – 2:00 PM ET

Nutrition QI

Facilitator: Kristen Nowak, MS, RD, LDN, CNSC – Rush University Medical Center

NTR

12:30 PM – 2:00 PM ET

Parent/Caregiver: Helping Your Young Adult in Adulting

Facilitator: Julie Lehrmann, LMSW (she/her/hers) – University of Michigan Health

SW/PSYCH

12:30 PM – 2:00 PM ET

PEP Skills for Difficult Conversations Including Advanced Lung Disease

Facilitator: Kathryn K. McAndrews, MSN, ACNP (she/her/hers) – Rush University Medical Center

NRS

12:30 PM – 2:00 PM ET

PERT After Modulators

Facilitator: Vivek K. Shenoy, MD

CLIN

12:30 PM – 2:00 PM ET

Remaining Happy as Well as Fulfilled as a Psychosocial Professional & Member of the CF

Facilitator: Bill W( Taub, MSW (he/him/his) – Duke University

SW/PSYCH

12:30 PM – 2:00 PM ET

Resources Across the Life Span

Facilitator: Kim Garver

SW/PSYCH

12:30 PM – 2:00 PM ET

Screening Adolescents with CF for Substance Use

Facilitator: Eric A. Schleich, MSW, LCSW (he/him/his) – Johns Hopkins All Children's Hospital

SW/PSYCH

12:30 PM – 2:00 PM ET

Smoke Exposure & CF What are the Consequences?

Facilitator: Lauren Willis, MS, RRT-NPS, AE-C, CHES – Arkansas Children's Hospital

PT&RT

12:30 PM – 2:00 PM ET

Sports Nutrition, Supplements, & Creatine

Facilitator: Staci Hunter

NTR

12:30 PM – 2:00 PM ET

Surviving & Thriving as a Small Center

Facilitator: Michele Prater, MSN, RN, CPNP – McLane Children's Hospital

NRS

12:30 PM – 2:00 PM ET

Tactical Strategies for Overcoming Patient Assistance Program (PAP) Barriers

Facilitator: Kris Nystrom

PHARM

12:30 PM – 2:00 PM ET

The Fungus Among Us: Biologics for ABPA Treatment

Facilitator: Marie Backus, PharmD (she/her/hers) – Dayton Children's Hospital

PHARM

12:30 PM – 2:00 PM ET

Tips for Creating a Safe Clinic Space for LGBTQIA+ Patients

Facilitator: Abraham I. Sender, PA-C, PA-C – University of Vermont Medical Center

NRS

12:30 PM – 2:00 PM ET

To Be or Not to Be?: Strategies for Success with 340B

Facilitator: Adrienne Medina Williford, CPhT (she/her/hers) – Ascension Adult CF Center of Central Texas

PHARM

12:30 PM – 2:00 PM ET

Translation Please? Explaining Nuances of Medication Insurance to People with CF

Facilitator: Allie Trevillian

PHARM

12:30 PM – 2:00 PM ET

Treatment of Overweight & Obesity in PwCF

Facilitator: LesleAnn Hayward Story – OHSU

CLIN

12:30 PM – 2:00 PM ET

Use of CGM in CFRD

Facilitator: Jennifer Apsan, MD – Northwell Health

CLIN

12:30 PM – 2:00 PM ET

Wellness Programs

Facilitator: Linda Brennan, MPH (she/her/hers) – Cystic Fibrosis Foundation

Facilitator: Aimee Jeffrey, MSN (she/her/hers) – Cystic Fibrosis Foundation

NRS

12:30 PM – 2:00 PM ET

Wellness Resources for Adults with CF & Their Families

Facilitator: Susanne' Muenzel, LCSW (she/her/hers) – Children's Hospital of Georgia

SW/PSYCH

12:30 PM – 2:00 PM ET

LL01--Leveling Up Your ACT with CF Practice
Location:162 AB

Chair: C Virginia O'Hayer, PhD (she/her/hers) – Thomas Jefferson University Hospital

Chair: Christopher F. Drescher, PhD (he/him/his) – Augusta University

Speaker: Heather Bruschwein, PsyD (she/her/hers) – University of Virginia

SW/PSYCH

12:30 PM – 2:00 PM ET

LL02--Alveoli: A Player in the CF Lung?
Location:259 AB

Chair: Wanda K. O'Neal, PhD – University of North Carolina at Chapel Hill Departments of Medicine and Genetics

Chair: Raymond J. Pickles, PhD – University of North Carolina at Chapel Hill

Speaker: Raymond J. Pickles, PhD – University of North Carolina at Chapel Hill

Speaker: Wanda K. O'Neal, PhD – University of North Carolina at Chapel Hill Departments of Medicine and Genetics

APPTT

PTAC/CFTR

12:30 PM – 2:00 PM ET

LL03--Prenatal & Postnatal Management of ETI Exposed Infants
Location:160 A-C

Chair: Sylvia E. Szentpetery, MD (she/her/hers) – Medical University of South Carolina

Chair: Aaron Trimble, MD (he/him/his) – Oregon Health & Science University

Speaker: Charles R. Esther, Jr., MD, PhD – UNC

Speaker: Christopher Fortner, MD, PhD (he/him/his) – SUNY Upstate Medical University

Speaker: Beth L. Pineles, MD PhD (she/her/hers) – University of Pennsylvania

CLIN

12:30 PM – 2:00 PM ET

LL04--Strategies for Strengthening Multi-Disciplinary Care
Location:254 AB

Chair: Shine-Ann Pai, BSRC, RRT – Ascension Seton SCC, Dell Children's Medical Center

Chair: Denise M. Gibbs, PT, DPT, CNT, Schroth Therapist (she/her/hers) – Morgan Stanely Childrens Hospital

Speaker: Shine-Ann Pai, BSRC, RRT – Ascension Seton SCC, Dell Children's Medical Center

Speaker: Denise M. Gibbs, PT, DPT, CNT, Schroth Therapist (she/her/hers) – Morgan Stanely Childrens Hospital

Speaker: Lindsay Miller, RRT – St. Luke's

Speaker: Jhoanna Rae L. Marquez, PT, MAc – Lehigh Valley Pediatric CF Center | Lehigh Valley Reilly Children's Hospital

Speaker: Gabriela Rodrigues

Speaker: Lauren Lalo, OTR/L (she/her/hers) – NYP Columbia Morgan Stanley Children's Hosptial

Speaker: Yelzaveta Sher, MD, FACLP (she/her/hers) – Stanford University School of Medicine

Speaker: Charles Illingworth

PT&RT

Shine-Ann Pai, BSRC, RRT – Ascension Seton SCC, Dell Children's Medical Center ### 1402855###Chair###Pediatric CF Program Coordinator, QIL, and Respiratory Therapist###Ascension Seton SCC, Dell Children's Medical Center###
Chair: Shine-Ann Pai, BSRC, RRT – Ascension Seton SCC, Dell Children's Medical Center
### @@@ Denise M. Gibbs, PT, DPT, CNT, Schroth Therapist (she/her/hers) – Morgan Stanely Childrens Hospital ### 2252024###Chair###Physical Therapy###Morgan Stanely Childrens Hospital###
Chair: Denise M. Gibbs, PT, DPT, CNT, Schroth Therapist (she/her/hers) – Morgan Stanely Childrens Hospital
### she/her/hers @@@ Shine-Ann Pai, BSRC, RRT – Ascension Seton SCC, Dell Children's Medical Center ### 1402855###Speaker###Pediatric CF Program Coordinator, QIL, and Respiratory Therapist###Ascension Seton SCC, Dell Children's Medical Center###
Speaker: Shine-Ann Pai, BSRC, RRT – Ascension Seton SCC, Dell Children's Medical Center
### @@@ Denise M. Gibbs, PT, DPT, CNT, Schroth Therapist (she/her/hers) – Morgan Stanely Childrens Hospital ### 2252024###Speaker###Physical Therapy###Morgan Stanely Childrens Hospital###
Speaker: Denise M. Gibbs, PT, DPT, CNT, Schroth Therapist (she/her/hers) – Morgan Stanely Childrens Hospital
### she/her/hers @@@ Lindsay Miller, RRT – St. Luke's ### 1629690###Speaker###Respiratory Therapist###St. Luke's###
Speaker: Lindsay Miller, RRT – St. Luke's
### @@@ Jhoanna Rae L. Marquez, PT, MAc – Lehigh Valley Pediatric CF Center | Lehigh Valley Reilly Children's Hospital ### 2296300###Speaker###Physical Therapy###Lehigh Valley Pediatric CF Center | Lehigh Valley Reilly Children's Hospital###
Speaker: Jhoanna Rae L. Marquez, PT, MAc – Lehigh Valley Pediatric CF Center | Lehigh Valley Reilly Children's Hospital
### @@@ Gabriela Rodrigues ### 2296301###Speaker#########
Speaker: Gabriela Rodrigues
### @@@ Lauren Lalo, OTR/L (she/her/hers) – NYP Columbia Morgan Stanley Children's Hosptial ### 2296302###Speaker###Occupational Therapist###NYP Columbia Morgan Stanley Children's Hosptial###
Speaker: Lauren Lalo, OTR/L (she/her/hers) – NYP Columbia Morgan Stanley Children's Hosptial
### she/her/hers @@@ Yelzaveta Sher, MD, FACLP (she/her/hers) – Stanford University School of Medicine ### 2252055###Speaker###Clinical Professor of Psychiatry###Stanford University School of Medicine###
Speaker: Yelzaveta Sher, MD, FACLP (she/her/hers) – Stanford University School of Medicine
### she/her/hers @@@ Charles Illingworth ### 2323886###Speaker#########
Speaker: Charles Illingworth
###

12:30 PM – 2:00 PM ET

LL05--Navigating Nutrition: Recent Research Findings
Location:107 AB

Chair: Jessica A. Alvarez, PhD, RD (she/her/hers) – Emory University

Chair: Julianna Bailey, PhD, RD – Alfred Health

Speaker: Julianna Bailey, PhD, RD – Alfred Health

Speaker: Jessica A. Alvarez, PhD, RD (she/her/hers) – Emory University

Speaker: Stephanie S. Filigno, PhD (she/her/hers) – CCHMC Division of Behavioral Medicine, UCCOM

NTR

12:30 PM – 2:00 PM ET

LL06--Smart & a Little Scattered: Assessing & Intervening for Success
Location:252 B

Chair: Katherine Papia, LCSW (she/her/hers) – Northwell Health

Chair: Pasley Kimberly, PsyD (she/her/hers) – Nationwide Children's Hospital

Speaker: Carolyn J. Snell, PhD (she/her/hers) – Boston Children's Hospital Pulmonary

Speaker: Krista Ingle, PhD (she/her/hers) – Duke University Medical Center

Community Speaker: Jayden Warren

SW/PSYCH

12:30 PM – 2:00 PM ET

LL07--Navigating Challenges with Health Insurance Coverage
Location:257 AB

Chair: Jessica Fraser – Cystic Fibrosis Foundation

HEAC

12:30 PM – 2:30 PM ET

TPS02--Bugs & Drugs & Immunologic Thugs
Location:Exhibit Hall

Chair: Daniel Cook, MD, PhD – University of Iowa

Chair: Sheryl Fernandes (she/her/hers) – Cedars Sinai Medical Center

IMI

APPTT

1:30 PM – 2:20 PM ET

FSC03--Fireside Chat with Toni Moran
Location:Exhibit Hall

Speaker: Toni Moran

CLIN

1:30 PM – 2:20 PM ET

FSC04--Fireside Chat with Lauren Ahrens
Location:Exhibit Hall

Speaker: Lauren Miller, RN, BSN (she/her/hers) – Department of Pediatrics

Facilitator: Katie Whitley – Phoenix Children's Hospital

NRS

1:30 PM – 2:20 PM ET

RFPT05--Detection & Diagnosis of Infection
Location:Exhibit Hall

Chair: Gina Hong, M.D., M.H.S. (she/her/hers) – University of Pennsylvania Perelman School of Medicine

Chair: Matthew M. Schaefers, n/a (he/him/his) – Boston Children's Hospital

IMI

1:30 PM – 2:20 PM ET

RFPT06--Psychosocial Research Showcase: The Sequel
Location:Exhibit Hall

Chair: Sarah Pritt – Adult CF Clinic Center, Geisinger Healthcare System

Chair: Kristina G. Mertz, MSW (she/her/hers) – Providence Medical Group

SW/PSYCH

2:30 PM – 4:00 PM ET

TPS03--Biomarkers of Infection & Inflammation
Location:Exhibit Hall

Chair: Scott Sagel, MD, PhD – Children's Hospital Colorado/University of Colorado Anschutz Medical Campus

Chair: Christina S. Thornton, MD PhD – University of Calgary

CLIN

2:30 PM – 4:30 PM ET

S01--Fungal Infections in CF
Location:104 AB

Chair: Deborah A. Hogan, PhD (she/her/hers) – Geisel School of Medicine at Dartmouth

Chair: Stephen K. Dolan, PhD (he/him/his) – Clemson University

IMI

2:30 PM – 4:30 PM ET

S01.1- Patient experience with fungal infection
Location:104 AB

Speaker: Jessica Teqja

2:30 PM – 4:30 PM ET

S01.2- Effects of ETI on Aspergillus
Location:104 AB

Speaker: Robert Cramer, Ph.D. (he/him/his) – Dartmouth College

2:30 PM – 4:30 PM ET

S01.3- Immune responses to fungal infections in CF
Location:104 AB

Speaker: Carsten Schwarz, MD (he/him/his) – HMU-Health and Medical University Potsdam, Clinic Westbrandenburg, Division Cystic Fibrosis, Potsdam, Germany

2:30 PM – 4:30 PM ET

S01.4- Considerations for antifungal treatment in CF: Pharmacist Perspective
Location:104 AB

Speaker: Lauren C. Magee , PharmD, BCPS (she/her/hers) – Virginia Commonwealth University Health System

2:30 PM – 4:30 PM ET

S01.5- Considerations for antifungal treatment in CF: Clinician Perspective
Location:104 AB

Speaker: Imogen C. Felton, MRCP BSc PhD – Royal Brompton Hospital

2:30 PM – 4:30 PM ET

S02--Paradigm Shift in CF Care Model
Location:253 A-C

Chair: Rebekah F. Brown, MD (she/her/hers) – Vanderbilt University Medical Center

Chair: Patrick A. Flume, MD (he/him/his) – Medical University of South Carolina

CLIN

2:30 PM – 4:30 PM ET

S02.1- Setting the Stage
Location:253 A-C

Speaker: Rebekah F. Brown, MD (she/her/hers) – Vanderbilt University Medical Center

2:30 PM – 4:30 PM ET

S02.2- Guidance on the Cystic Fibrosis Team Structure
Location:253 A-C

Speaker: Charlotte T. Close, MS, CGC (she/her/hers) – Columbia University Irving Medical Center

2:30 PM – 4:30 PM ET

S02.3- Envisioning the New Cystic Fibrosis Model of Care
Location:253 A-C

Speaker: Danielle M. Goetz, MD (she/her/hers) – UBMD Pediatric Pulmonology/Oishei Children's Hospital

2:30 PM – 4:30 PM ET

S02.4- Where Do We Go From Here?
Location:253 A-C

Speaker: Patrick A. Flume, MD (he/him/his) – Medical University of South Carolina

2:30 PM – 4:30 PM ET

S03--Golden Girls: Care Considerations for the Aging CF Female
Location:156 A-C

Chair: Suzanne Roberson, BSN (she/her/hers) – University of South Florida Tampa General Physician Group

Chair: Cheryl Kushner

NRS

2:30 PM – 4:30 PM ET

S03.1- Embodied Knowledge and the CF Menstrual Link
Location:156 A-C

Speaker: Sandy Sufian, PhD, MPH (she/her/hers) – University of Illinois at Chicago

2:30 PM – 4:30 PM ET

S03.2- Hormonal Effects of Aging and Menopause in Females with CF
Location:156 A-C

Speaker: Raksha Jain, MD, MSc (she/her/hers) – University of Texas Southwestern Medical Center

2:30 PM – 4:30 PM ET

S03.3- Bridging the Gap: Understanding Drug Interactions in Medications and Herbal Treatments Utilized in Mature CF Women
Location:156 A-C

Speaker: Lindsey Fitzpatrick, PharmD, BCPS (she/her/hers) – The University of Kansas Health System

2:30 PM – 4:30 PM ET

S03.4- Salty Golden Girls
Location:156 A-C

Community Speaker: Suzanne Joyce

2:30 PM – 4:30 PM ET

S04--CF Around the World: Challenges & Opportunities
Location:205 A-C

Chair: Dana Albon, MD, MS – University of Virginia

Chair: Golnar Raissi, ND, integrative physician – Columbia University

HEAC

2:30 PM – 4:30 PM ET

S04.1- Genetic diversity across the world
Location:205 A-C

Speaker: Karen Raraigh, MGC (she/her/hers) – Johns Hopkins University

2:30 PM – 4:30 PM ET

S04.2- Quality of Care worldwide – how can we help?-
Location:205 A-C

Speaker: Hector Gutierrez, MD – University of Alabama at Birmingham

2:30 PM – 4:30 PM ET

S04.3- Harmonization of CF data registries internationally
Location:205 A-C

Speaker: Anne L. Stephenson, MD PhD – St. Michael's Hospital, Unity Health Toronto

2:30 PM – 4:30 PM ET

S04.4- IMTI experience in Jordan
Location:205 A-C

Speaker: Muna Kilani, MBBS – The Hashemite University

Speaker: Ahmet Uluer, DO, MPH (he/him/his) – Boston Children's Hospital, Brigham & Women's Hospital

2:30 PM – 4:30 PM ET

S05--An Evolving Understanding of ETI: Potential Mechanisms of Lingering Disease
Location:210 A-C

Chair: Jerry A. Nick, MD (he/him/his) – National Jewish Health

Chair: Jennifer Guimbellot – Arkansas Children's Hospital/Arkansas Children's Research Institute

CLIN

2:30 PM – 4:30 PM ET

S05.1- Variability in response: What’s PK got to do with it?
Location:210 A-C

Speaker: Jennifer Guimbellot – Arkansas Children's Hospital/Arkansas Children's Research Institute

2:30 PM – 4:30 PM ET

S05.2- What are the long-term effects of ETI on inflammation?
Location:210 A-C

2:30 PM – 4:30 PM ET

S05.3- Prenatal to menopause: Is ETI closing or widening the gender gap in CF?
Location:210 A-C

Speaker: Jamie Duckers, MD (he/him/his) – All Wales Adult CF Centre, Cardiff and Vale University Health Board, Cardiff, UK

2:30 PM – 4:30 PM ET

S05.4- What we know and don’t know about ETI dosing: Model this!
Location:210 A-C

Speaker: Paul M. Beringer, Los Angeles, USA – University of Southern California

2:30 PM – 4:30 PM ET

S06--Feeling Burnt Out?
Location:102 AB

Chair: Alexandra L. Quittner, PhD (she/her/hers) – Joe DiMaggio Cystic Fibrosis Center

Chair: Amy Sangvai, MSW, LCSW – UNC Health, Pediatric Cystic Fibrosis Center, Chapel Hill, NC, USA

SW/PSYCH

2:30 PM – 4:30 PM ET

S06.1- Self-Care in Healthcare
Location:102 AB

Speaker: Neha Sangwan

2:30 PM – 4:30 PM ET

S06.2- Professional Quality of Life and Assessment of Burnout: A National Survey of Healthcare providers on CF Teams
Location:102 AB

Speaker: Alexandra L. Quittner, PhD (she/her/hers) – Joe DiMaggio Cystic Fibrosis Center

2:30 PM – 4:30 PM ET

S06.3- Health of the Healthcare Team
Location:102 AB

Speaker: Katie Poch – National Jewish Health

2:30 PM – 4:30 PM ET

S06.4- Learning How to Ride the Rapids of Burnout Together: A pediatric CF Team's approach
Location:102 AB

Speaker: Mary Beth Prieur, PhD (she/her/hers) – UNC Medical Center

2:30 PM – 4:30 PM ET

S07--CFTR 2024: Better Understanding of the Underlying CF Disease Mechanism
Location:104 C

Chair: Jeff L. Brodsky, PhD (he/him/his) – University of Pittsburgh

Chair: Kathryn E. Oliver, PhD, MS (she/her/hers) – Emory University School of Medicine

PTAC/CFTR

2:30 PM – 4:30 PM ET

S07.1- The CFTR folding pathway explains why modulators act on multitude of variants
Location:104 C

Speaker: Ineke Braakman, Ph.D.

2:30 PM – 4:30 PM ET

S07.2- Unifying Principles for the Variant-Specific Effects of Correctors
Location:104 C

Speaker: Jonathan Schlebach

2:30 PM – 4:30 PM ET

S07.3- Understanding the functional defects of CFTR variants and their pharmacological rescue in a native cell model
Location:104 C

Speaker: Nicoletta Pedemonte – IRCCS Istituto Giannina Gaslini

2:30 PM – 4:30 PM ET

S07.4- Stop codon readthrough as a therapeutic approach to CF attributable to nonsense mutations
Location:104 C

Speaker: Allan Jacobson, PhD – UMass Chan Medical School

2:30 PM – 4:30 PM ET

S08--The Impact of Highly Effective Modulator Therapy (HEMT) on the Vicious Cycle of Obstruction, Infection, & Inflammation
Location:109 AB

Chair: Deepika Polineni, MD MPH – Washington University in St. Louis

Chair: Marcus A. Mall, MD – Department of Pediatric Respiratory Medicine, Immunology and Intensive Care Medicine, Charité, Universitätsmedizin, Berlin, Germany

Community Chair: Tré LaRosa

APPTT

IMI

2:30 PM – 4:30 PM ET

S08.1- Elexacaftor-tezacaftor-ivacaftor effects in non-F508del and unapproved CFTR genotypes
Location:109 AB

Speaker: Pierre-Régis Burgel, MD, PhD (he/him/his) – Assistance Publique Hopitaux de Paris and Université de Paris

2:30 PM – 4:30 PM ET

S08.2- Airway epithelial homeostasis and host defense impacts of HEMT: new understandings at single cell level
Location:109 AB

Speaker: Irina Lehmann

2:30 PM – 4:30 PM ET

S08.3- What’s old is new again: emerging evidence on mucus obstruction, infection and inflammation in children taking HEMT
Location:109 AB

Speaker: Felix Ratjen, MD, PhD, FRCPC, FERS – University of Toronto

2:30 PM – 4:30 PM ET

S08.4- Long term data on inflammation and infection in adults
Location:109 AB

Speaker: David Nichols, MD

2:30 PM – 4:30 PM ET

S09--Revolutionizing Health in Nutrition, Endocrinology, & Gastroenterology
Location:206 AB

Chair: Gretchen Garlow, LDN – Massachusetts General Hospital

Chair: Sara Hendrix, RD (she/her/hers) – Medical University of South Carolina

NTR

2:30 PM – 4:30 PM ET

S09.1- GI on Linzess/vibrating pill/new C diff medication
Location:206 AB

Speaker: Christopher Velez, MD – Massachusetts General Hospital

2:30 PM – 4:30 PM ET

S09.2- International perspectives on use of CGM in CFRD
Location:206 AB

Speaker: Amy McCluskey

2:30 PM – 4:30 PM ET

S09.3- Nutrition Informatics
Location:206 AB

Speaker: Maria R. Santini, RD LDN CNSC – Hasbro Children's Hospital

2:30 PM – 4:30 PM ET

S09.4- Body composition technology (body comp, HGS, etc.)
Location:206 AB

Speaker: David Proud, MSc (he/him/his) – University Hospital Llandough, NHS, UK

2:30 PM – 4:30 PM ET

S10--Your Case: Airway Clearance vs Exercise in the New Era
Location:153 A-C

Chair: Melissa Richmond, MPT – BC Children's Hospital

Chair: Jennifer Walzel, PT, DPT – Dell Children's Medical Center of Central Texas

PT&RT

2:30 PM – 4:30 PM ET

S10.1- Team Airway Clearance I
Location:153 A-C

Speaker: Gemma Stanford, BSc (HONS) Physiotherapy, PhD (she/her/hers) – Royal Brompton Hospital, Guys and St Thomas's NHS Foundation Trust

2:30 PM – 4:30 PM ET

S10.2- Team Exercise I
Location:153 A-C

Speaker: Lisa Morrison

2:30 PM – 4:30 PM ET

S10.3- Team Airway Clearance II
Location:153 A-C

Speaker: Clare Smith, BScPT (she/her/hers) – University of Calgary

2:30 PM – 4:30 PM ET

S10.4- Team Exercise II
Location:153 A-C

Speaker: Karen M. von Berg, PT, DPT (she/her/hers) – Johns Hopkins Hospital

2:30 PM – 4:30 PM ET

S11--Nucleotide-Based Therapeutics Across Diverse Populations
Location:157 A-C

Chair: Jennifer L. Taylor-Cousar, Denver, USA (she/her/hers) – National Jewish Health

Chair: Nicole Mayer Hamblett, PhD – University of Washington

PTAC/CFTR

2:30 PM – 4:30 PM ET

The Final Frontier for All PwCF: NABTs from the Investigator and Community Perspective
Location:157 A-C

Speaker: Scott C. Bell, MBBS MD (he/him/his) – University of Queensland

Community Speaker: Rena Barrow, CPhT – CVS Health/ CEO and Founder of Two Salty Okes

Community Speaker: Stephanie Hansen

2:30 PM – 4:30 PM ET

S11.2- Clinical Trial Design and Recruitment Considerations to Advance a Pipeline of NABTs
Location:157 A-C

Speaker: Nicole Mayer Hamblett, PhD – University of Washington

2:30 PM – 4:30 PM ET

S11.3- Forecasting the Future: Long-Term Follow-up and Including Children in NABT Trials
Location:157 A-C

Speaker: Jane C. Davies, MD, MBChB, MRCP – National Heart and Lung Institute, Imperial College London

2:30 PM – 4:30 PM ET

S11.4- Towards CFTR Directed Therapies for All: From Development to Access
Location:157 A-C

Speaker: Damian Downey – School of Medicine, Queens University Belfast, Northern Ireland

2:30 PM – 4:30 PM ET

S12--Sugar, Spice, & Everything Nice- Recipes for Sweet Success in Pediatrics & Pregnancy Management
Location:258 A-C

Chair: Kevin P. Lonabaugh, PharmD (he/him/his) – UVA Health

Chair: Taylor Imburgia, PharmD, BCPPS – The Johns Hopkins Hospital

PHARM

2:30 PM – 4:30 PM ET

S12.1- Elexacaftor/Tezacaftor/Ivacaftor (ETI) in Pediatrics: Assessing side effects, dose modifications, and mental health
Location:258 A-C

Speaker: Sarah Kubiak, PharmD, BCPS – Boston Children's Hospital

Speaker: Lena Joseph, MSN, RN, CPN (she/her/hers) – Boston Children's Hospital

2:30 PM – 4:30 PM ET

S12.2- Pregnancy and Infant Care with ETI: CF-PHARM Collaborative.
Location:258 A-C

Speaker: Sabrina Sherwood, PharmD, BCPS – St Lukes Cystic Fibrosis Center of Idaho

2:30 PM – 4:30 PM ET

S12.3-
Location:258 A-C

2:30 PM – 4:30 PM ET

S12.4- Family Planning and CFTR Modulators
Location:258 A-C

Speaker: Lauren Miller, RN, BSN (she/her/hers) – Department of Pediatrics

5:00 PM – 6:30 PM ET

PL1--Challenges and Progress in the Pursuit of Genetic Therapies for Cystic Fibrosis

Location:Ballroom East&West

Speaker: Daniel Siegwart

Speaker: Joseph M. Pilewski – University of Pittsburgh