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Full Schedule

Full Schedule

  • Wednesday, September 25, 2024
  • 8:00 AM – 12:00 PM ET
    SPC01--AM: Increasing Our Awareness to School & Vocation Success in CF Interdisciplinary Care
  • 8:00 AM – 3:00 PM ET
    PEP--Partnership Enhancement Program
  • 8:00 AM – 5:00 PM ET
    SPC03--Airway Clearance
  • 8:00 AM – 5:00 PM ET
    SPC04--Nuts & Bolts for the New CF Team Member
  • 10:30 AM – 2:30 PM ET
    PCM--Psychosocial Collaborative Meeting: Uplift. Connect. Relate.
  • 1:00 PM – 5:00 PM ET
    SPC02--PM: Parenting Strategies for Adults with CF Who are Parenting & Parents of Children with CF: Promoting Access to Parent Management Training Strategies
  • 3:00 PM – 5:00 PM ET
    DG01--Talk the Talk: Using Essential Communication & Core Skills
  • 3:00 PM – 5:00 PM ET
    DG02--Making the Unbearable Bearable: CF Cost of Care Hacks for the Care Team
  • 3:00 PM – 7:00 PM ET
    SC02--Bloat is Not the G.O.A.T: Managing Digestion, Bloating & Constipation/DIOS
  • 3:00 PM – 7:00 PM ET
    SC03--Pharmacy "Potpourri” for APPs
  • 3:00 PM – 7:00 PM ET
    SC04--Communication Skills to Enhance Equity & Inclusion
  • 5:15 PM – 6:45 PM ET
    APP-NRS: Open Forum Discussion
  • 5:15 PM – 6:45 PM ET
    NRS: Open Forum Discussion
  • 5:15 PM – 6:45 PM ET
    PEAS--Parent Forum: Education, Advocacy and Support

    Chair: Julie Lehrmann, LMSW (she/her/hers) – University of Michigan Health

    Chair: Gail Yashar, MS, MSW,LCSW (she/her/hers) – Duke Hospital

    Community Speaker: Joe Hallisy – University of Michigan

    Community Speaker: Stacie Hallisy

  • 5:15 PM – 6:45 PM ET
    PHARM: Open Forum Discussion
  • Thursday, September 26, 2024
  • 7:45 AM – 9:45 AM ET
    PGR--Physicians Grand Rounds

    Chair: Clement L. Ren, MD, MBA (he/him/his) – Children’s Hospital Of Philadelphia

    Chair: Manu Jain, MD, MSc – Northwestern University

  • 7:45 AM – 9:45 AM ET
    W01--Effect of CFTR Modulator Therapy on Infection & Inflammation in CF

    Chair: Emanuela M. Bruscia, PhD – Yale University

    Chair: Raul Rascon – Nationwide Children's Hospital

    IMI

    APPTT

  • 7:45 AM – 9:45 AM ET
    W02--Agnostic Avenues: Alternatives to CF Gene Therapy

    Chair: Martina Gentzsch, PhD (she/her/hers) – University of North Carolina

    Chair: Nam Soo Joo, PhD (he/him/his) – Stanford University

    APPTT

  • 7:45 AM – 9:45 AM ET
    DG03--Who Ya' Gonna Call? - Mentoring & Education in CF
  • 7:45 AM – 9:45 AM ET
    DG04--Ethics for Mental Health Practitioners
  • 7:45 AM – 9:45 AM ET
    DG05--Trivia Night
  • 7:45 AM – 9:45 AM ET
    DG06--Cutting Edge Nutrition Topics
  • 7:45 AM – 9:45 AM ET
    DG07--PharmASSISTing the Multidisciplinary Team: Transitions of Care & Care Models
  • 7:45 AM – 9:45 AM ET
    DG08--Tools for Your Practice: Updates & Resources for Genetic Counseling for CF & CRMS/CFSPID
  • 7:45 AM – 9:45 AM ET
    DG09--APP Grand Rounds
  • 7:45 AM – 9:45 AM ET
    DG10--Technology in Research
  • 9:00 AM – 9:50 AM ET
    RFPT01--Nucleotide-Based Therapeutics: Delivery & Gene Editing

    Chair: Patrick Harrison – University College Cork

    Chair: Shingo Suzuki, PhD (he/him/his) – University of Alabama at Birmingham

    PTAC/CFTR

  • 9:00 AM – 9:50 AM ET
    RFPT02--Aging

    Chair: Sophie Corriveau, MD, FRCPC – McMaster University

    Chair: Julian S. Tam, MD – University of Saskatchewan

    CLIN

  • 10:15 AM – 11:45 AM ET
    TPS01--Pharmacotherapy

    Chair: Cori Muirhead, PharmD, BCPPS – Doernbecher Children's Hospital

    Chair: Madison Hill, PharmD (she/her/hers) – Primary Children's Cystic Fibrosis Clinic

    PHARM

  • 10:15 AM – 12:15 PM ET
    W03--New Insights Regarding CFTR Basic Biology & Implications for Future Therapeutics

    Chair: Carlos M. Farinha, PhD (he/him/his) – Faculty of Sciences, University of Lisboa, BioISI - Biosystems and Integrative Sciences Institute

    Chair: Kenichi Okuda – Marsico Lung Institute/Cystic Fibrosis Research Center, University of North Carolina at Chapel Hill, Chapel Hill, NC, USA

    PTAC/CFTR

  • 10:15 AM – 12:15 PM ET
    W04--Advanced Lung Disease & Lung Transplant

    Chair: Kathleen J. Ramos – University of Washington

    Chair: Grant Turner, MD, MHA (he/him/his) – UCLA

    CLIN

  • 10:15 AM – 12:15 PM ET
    W05--Advances Along the Path to a Cure

    Chair: John D. Lueck, Ph.D. – University of Rochester School of Medicine and Dentistry

    Chair: Alexandra S. Piotrowski-Daspit, PhD (she/her/hers) – University of Michigan

    PTAC/CFTR

  • 10:15 AM – 12:15 PM ET
    W06--The ABCs of Cancer Screening

    Chair: Katherine Stull, PA-C – Thomas Jefferson University Hospital

    Chair: Lynne M. Fries, PA-C, MPAS, DPT, AE-C (she/her/hers) – Cystic Fibrosis Center of Western New York

    NRS

  • 10:15 AM – 12:15 PM ET
    W07--Best Abstracts in GI & Hepatology

    Chair: Tanja Gonska, MD – the Hospital for Sick Children

    Chair: Linda C. Cummings, MD, MS – University Hospitals Cleveland Medical Center/Case Western Reserve University

    CLIN

  • 10:15 AM – 12:15 PM ET
    W08--PT & RT Research: Year in Review

    Chair: DeeAnna Serna, RRT-NPS, AE-C (she/her/hers) – University of California Los Angeles (UCLA)

    Chair: Clare Smith, BScPT (she/her/hers) – University of Calgary

    PT&RT

  • 10:15 AM – 12:15 PM ET
    W09--Airway Ions, Fluid, & Mucus Transport

    Chair: Juan P. Ianowski, PhD (he/him/his) – University of Saskatchewan

    Chair: Ian Thornell, PhD (he/him/his) – University of Iowa

    APPTT

  • 10:15 AM – 12:15 PM ET
    W10--Psychosocial Research Showcase

    Chair: Janelle Heddings, PhD (she/her/hers) – WVU School of Medicine

    Chair: Bob Goodholm, LCSW (he/him/his) – Mayo Clinic Florida

    SW/PSYCH

  • 10:15 AM – 12:15 PM ET
    W11--Best Practice & Innovative Approaches in Clinical Research

    Chair: Lisa Bendy, BA, CCRC – Indiana University

    Chair: Samantha K. Johnson (she/her/hers) – National Jewish Health

    CLIN

  • 10:15 AM – 12:15 PM ET
    W12--Pathogenesis of CF Airway Infection

    Chair: Jaime L. Hook, MD – Icahn School of Medicine at Mount Sinai

    Chair: Christine H. Rumpf, n/a (she/her/hers) – Institute of Medical Microbiology, University Hospital Muenster, Muenster, Germany

    IMI

  • 10:15 AM – 12:15 PM ET
    W13--Best Abstracts in Endocrinology

    Chair: Marissa Kilberg, MD – Children's Hospital of Philadelphia

    Chair: Christine L. Chan, MD (she/her/hers) – University of Colorado

    CLIN

  • 10:15 AM – 12:15 PM ET
    W14--Equity in Action

    Chair: Thida Ong, MD (she/her/hers) – Seattle Children's Hospital/UW

    Chair: Melissa Alao, MSW, LICSW (she/her/hers) – Boston Children's Hospital/Brigham and Women's Hospital

    HEAC

  • 11:30 AM – 12:15 PM ET
    Affiliate Program Directors' Meeting
  • 12:30 PM – 1:20 PM ET
    FSC01--Fireside Chat Phil Thomas
  • 12:30 PM – 1:20 PM ET
    FSC02--Fireside Chat with Maggie McIlwaine
  • 12:30 PM – 1:20 PM ET
    RFPT03--Health Equity, Access, & Care Delivery

    Chair: Meghan McGarry, MD – Seattle Children's Hospital

    Chair: Bryan Garcia, MD (he/him/his) – UAB

    HEAC

  • 12:30 PM – 1:20 PM ET
    RFPT04--Quality Improvement

    Chair: Sophie Corriveau, MD, FRCPC – McMaster University

    Chair: Amy Dettori, MD (she/her/hers) – University of Washington / Seattle Children's Hospital

    CLIN

  • 12:30 PM – 1:30 PM ET
    Core Center & Affiliate Program Meeting
  • 12:30 PM – 2:00 PM ET
    Junior Investigator Poster Judging Time
  • 12:30 PM – 2:00 PM ET
    Best Practices for Mental Health Screening for Parents of Children with CF & Next Steps for Positive Screens
  • 12:30 PM – 2:00 PM ET
    Biomarker or Bumpkis? Validating Markers of Inflammation Post-ETI
  • 12:30 PM – 2:00 PM ET
    Case Closed: Building a Compelling Case for the Pharmacy Technician in CF Care
  • 12:30 PM – 2:00 PM ET
    CFF RT Mentoring Program
  • 12:30 PM – 2:00 PM ET
    Chronic Pancreatitis
  • 12:30 PM – 2:00 PM ET
    Constipation
  • 12:30 PM – 2:00 PM ET
    Eating Disorders
  • 12:30 PM – 2:00 PM ET
    Education, Training, & Mentoring New Psychosocial Providers
  • 12:30 PM – 2:00 PM ET
    Enter the Matrix: Navigating Patient Assistance Programs in Matrix Model Insurance Plans
  • 12:30 PM – 2:00 PM ET
    Fetal CF therapy
  • 12:30 PM – 2:00 PM ET
    Follow the Rainbow: Medications in Gender Affirming Care
  • 12:30 PM – 2:00 PM ET
    GI Cancers
  • 12:30 PM – 2:00 PM ET
    Incorporating QI into Clinic
  • 12:30 PM – 2:00 PM ET
    Infant Nutrition
  • 12:30 PM – 2:00 PM ET
    Ins & Outs of Tube Feeding
  • 12:30 PM – 2:00 PM ET
    Is Our Clinic Safe? Investigating Possible Infection Outbreaks in Your Program
  • 12:30 PM – 2:00 PM ET
    Key to successful transition from the pediatric to the adult CF program
  • 12:30 PM – 2:00 PM ET
    Micronutrients
  • 12:30 PM – 2:00 PM ET
    Navigating Infection Control in the Community
  • 12:30 PM – 2:00 PM ET
    Newborn CF Care – Protocol for NICU Care, Outpatient Care After Diagnosis
  • 12:30 PM – 2:00 PM ET
    Nutrition QI
  • 12:30 PM – 2:00 PM ET
    Parent/Caregiver: Helping Your Young Adult in Adulting
  • 12:30 PM – 2:00 PM ET
    PEP Skills for Difficult Conversations Including Advanced Lung Disease
  • 12:30 PM – 2:00 PM ET
    PERT After Modulators
  • 12:30 PM – 2:00 PM ET
    Remaining Happy as Well as Fulfilled as a Psychosocial Professional & Member of the CF
  • 12:30 PM – 2:00 PM ET
    Resources Across the Life Span
  • 12:30 PM – 2:00 PM ET
    Screening Adolescents with CF for Substance Use
  • 12:30 PM – 2:00 PM ET
    Smoke Exposure & CF What are the Consequences?
  • 12:30 PM – 2:00 PM ET
    Sports Nutrition, Supplements, & Creatine
  • 12:30 PM – 2:00 PM ET
    Surviving & Thriving as a Small Center
  • 12:30 PM – 2:00 PM ET
    Tactical Strategies for Overcoming Patient Assistance Program (PAP) Barriers
  • 12:30 PM – 2:00 PM ET
    The Fungus Among Us: Biologics for ABPA Treatment
  • 12:30 PM – 2:00 PM ET
    Tips for Creating a Safe Clinic Space for LGBTQIA+ Patients
  • 12:30 PM – 2:00 PM ET
    To Be or Not to Be?: Strategies for Success with 340B
  • 12:30 PM – 2:00 PM ET
    Translation Please? Explaining Nuances of Medication Insurance to People with CF
  • 12:30 PM – 2:00 PM ET
    Treatment of Overweight & Obesity in PwCF
  • 12:30 PM – 2:00 PM ET
    Use of CGM in CFRD
  • 12:30 PM – 2:00 PM ET
    Wellness Programs
  • 12:30 PM – 2:00 PM ET
    Wellness Resources for Adults with CF & Their Families
  • 12:30 PM – 2:00 PM ET
    LL01--Leveling Up Your ACT with CF Practice
  • 12:30 PM – 2:00 PM ET
    LL02--Alveoli: A Player in the CF Lung?
  • 12:30 PM – 2:00 PM ET
    LL03--Prenatal & Postnatal Management of ETI Exposed Infants
  • 12:30 PM – 2:00 PM ET
    LL04--Strategies for Strengthening Multi-Disciplinary Care
  • 12:30 PM – 2:00 PM ET
    LL05--Navigating Nutrition: Recent Research Findings
  • 12:30 PM – 2:00 PM ET
    LL06--Smart & a Little Scattered: Assessing & Intervening for Success
  • 12:30 PM – 2:00 PM ET
    LL07--Navigating Challenges with Health Insurance Coverage
  • 12:30 PM – 2:30 PM ET
    TPS02--Bugs & Drugs & Immunologic Thugs

    Chair: Daniel Cook, MD, PhD – University of Iowa

    Chair: Sheryl Fernandes (she/her/hers) – Cedars Sinai Medical Center

    IMI

    APPTT

  • 1:30 PM – 2:20 PM ET
    FSC03--Fireside Chat with Toni Moran
  • 1:30 PM – 2:20 PM ET
    FSC04--Fireside Chat with Lauren Ahrens
  • 1:30 PM – 2:20 PM ET
    RFPT05--Detection & Diagnosis of Infection

    Chair: Gina Hong, M.D., M.H.S. (she/her/hers) – University of Pennsylvania Perelman School of Medicine

    Chair: Matthew M. Schaefers, n/a (he/him/his) – Boston Children's Hospital

    IMI

  • 1:30 PM – 2:20 PM ET
    RFPT06--Psychosocial Research Showcase: The Sequel

    Chair: Sarah Pritt – Adult CF Clinic Center, Geisinger Healthcare System

    Chair: Kristina G. Mertz, MSW (she/her/hers) – Providence Medical Group

    SW/PSYCH

  • 2:30 PM – 4:00 PM ET
    TPS03--Biomarkers of Infection & Inflammation

    Chair: Scott Sagel, MD, PhD – Children's Hospital Colorado/University of Colorado Anschutz Medical Campus

    Chair: Christina S. Thornton, MD PhD – University of Calgary

    CLIN

  • 2:30 PM – 4:30 PM ET
    S01--Fungal Infections in CF

    Chair: Deborah A. Hogan, PhD (she/her/hers) – Geisel School of Medicine at Dartmouth

    Chair: Stephen K. Dolan, PhD (he/him/his) – Clemson University

    IMI

  • 2:30 PM – 4:30 PM ET
    S02--Paradigm Shift in CF Care Model

    Chair: Rebekah F. Brown, MD (she/her/hers) – Vanderbilt University Medical Center

    Chair: Patrick A. Flume, MD (he/him/his) – Medical University of South Carolina

    CLIN

  • 2:30 PM – 4:30 PM ET
    S03--Golden Girls: Care Considerations for the Aging CF Female

    Chair: Suzanne Roberson, BSN (she/her/hers) – University of South Florida Tampa General Physician Group

    Chair: Cheryl Kushner

    NRS

  • 2:30 PM – 4:30 PM ET
    S04--CF Around the World: Challenges & Opportunities

    Chair: Dana Albon, MD, MS – University of Virginia

    Chair: Golnar Raissi, ND, integrative physician – Columbia University

    HEAC

  • 2:30 PM – 4:30 PM ET
    S05--An Evolving Understanding of ETI: Potential Mechanisms of Lingering Disease

    Chair: Jerry A. Nick, MD (he/him/his) – National Jewish Health

    Chair: Jennifer Guimbellot – Arkansas Children's Hospital/Arkansas Children's Research Institute

    CLIN

  • 2:30 PM – 4:30 PM ET
    S06--Feeling Burnt Out?

    Chair: Alexandra L. Quittner, PhD (she/her/hers) – Joe DiMaggio Cystic Fibrosis Center

    Chair: Amy Sangvai, MSW, LCSW – UNC Health, Pediatric Cystic Fibrosis Center, Chapel Hill, NC, USA

    SW/PSYCH

  • 2:30 PM – 4:30 PM ET
    S07--CFTR 2024: Better Understanding of the Underlying CF Disease Mechanism

    Chair: Jeff L. Brodsky, PhD (he/him/his) – University of Pittsburgh

    Chair: Kathryn E. Oliver, PhD, MS (she/her/hers) – Emory University School of Medicine

    PTAC/CFTR

  • 2:30 PM – 4:30 PM ET
    S08--The Impact of Highly Effective Modulator Therapy (HEMT) on the Vicious Cycle of Obstruction, Infection, & Inflammation

    Chair: Deepika Polineni, MD MPH – Washington University in St. Louis

    Chair: Marcus A. Mall, MD – Department of Pediatric Respiratory Medicine, Immunology and Intensive Care Medicine, Charité, Universitätsmedizin, Berlin, Germany

    Community Chair: Tré LaRosa

    APPTT

    IMI

  • 2:30 PM – 4:30 PM ET
    S09--Revolutionizing Health in Nutrition, Endocrinology, & Gastroenterology

    Chair: Gretchen Garlow, LDN – Massachusetts General Hospital

    Chair: Sara Hendrix, RD (she/her/hers) – Medical University of South Carolina

    NTR

  • 2:30 PM – 4:30 PM ET
    S10--Your Case: Airway Clearance vs Exercise in the New Era

    Chair: Melissa Richmond, MPT – BC Children's Hospital

    Chair: Jennifer Walzel, PT, DPT – Dell Children's Medical Center of Central Texas

    PT&RT

  • 2:30 PM – 4:30 PM ET
    S11--Nucleotide-Based Therapeutics Across Diverse Populations

    Chair: Jennifer L. Taylor-Cousar, Denver, USA (she/her/hers) – National Jewish Health

    Chair: Nicole Mayer Hamblett, PhD – University of Washington

    PTAC/CFTR

  • 2:30 PM – 4:30 PM ET
    S12--Sugar, Spice, & Everything Nice- Recipes for Sweet Success in Pediatrics & Pregnancy Management

    Chair: Kevin P. Lonabaugh, PharmD (he/him/his) – UVA Health

    Chair: Taylor Imburgia, PharmD, BCPPS – The Johns Hopkins Hospital

    PHARM

  • 5:00 PM – 6:30 PM ET
    Innovative Strategies to Overcome the Challenges of Developing Genetic Therapies for CF
  • Friday, September 27, 2024
  • 7:45 AM – 9:45 AM ET
    Adult Fellows

    Chair: Joseph Pilewski, MD (he/him/his) – University of Pittsburgh

    Chair: Natalie E. West, MD, MHS – Johns Hopkins University

  • 7:45 AM – 9:45 AM ET
    Pediatric Fellows

    Chair: Felix Ratjen, MD, PhD, FRCPC, FERS – University of Toronto

    Chair: Marie E. Egan, MD – Yale University School of Medicine

  • 7:45 AM – 9:45 AM ET
    W15--Microbial Ecology of CF Airway Infection

    Chair: Sage J. B. Dunham, PhD (he/him/his) – UC Irvine

    Chair: Ajai A. Dandekar, MD, PhD (he/him/his) – University of Washington

    IMI

  • 7:45 AM – 9:45 AM ET
    W16--From the Gene Editor's Desk: Rewriting Mutant CFTR Using CRISPR & Other Technologies

    Chair: Sriram Vaidyanathan, PhD – Nationwide Children’s Hospital, The Ohio State University, Columbus, OH, 43215

    Chair: Greg Newby, PhD (he/him/his) – Johns Hopkins University School of Medicine

    PTAC/CFTR

  • 7:45 AM – 9:45 AM ET
    W17--Financial Toxicity in CF Care

    Chair: Gregory S. Sawicki, MD, MPH (he/him/his) – Boston Children's Hospital

    Chair: Jamie Wooldridge, MD – University of Rochester Medical Center

    HEAC

  • 7:45 AM – 9:45 AM ET
    DG11--Bad Bugs, Bad Bugs, What Are You Going to do!?- Rx Management of Infections
  • 7:45 AM – 9:45 AM ET
    DG12--Diet Deceptions & Influencer Illusions: Unmasking Nutritional Nonsense in the Age of Social Media, Exposing the Dark Side of Social Media on Body Image
  • 7:45 AM – 9:45 AM ET
    DG13--Back to Basics
  • 7:45 AM – 9:45 AM ET
    DG14--Cost Implications - Not Just Financial
  • 7:45 AM – 9:45 AM ET
    DG15--Emerging Topics in CF Genetics & Genetic Counseling
  • 7:45 AM – 9:45 AM ET
    DG16--Seeing More than CF, 2.0
  • 7:45 AM – 9:45 AM ET
    DG17--Primary Care Providers - Everyone Needs One!
  • 7:45 AM – 9:45 AM ET
    DG18--Explaining Research to New Populations
  • 9:00 AM – 9:50 AM ET
    RFPT07--Lung Image Analysis to Measure CF Lung Disease

    Chair: Zackary I. Cleveland

    Chair: Daan Caudri, MD, PhD (he/him/his) – Erasmus MC - Sophia Children's Hospital

    APPTT

    CLIN

  • 10:15 AM – 11:45 AM ET
    TPS04--Advances in Anti-Infectives & Anti-Inflammatories

    Chair: Elizabeth B. Burgener, MD (she/her/hers) – Children's Hospital of Los Angeles - Pulmonology

    Chair: Christina S. Thornton, MD PhD – University of Calgary

    IMI

  • 10:15 AM – 12:15 PM ET
    W18--Novel Interventions

    Chair: Natacha D. Emerson, PhD (she/her/hers) – University of California, Los Angeles (UCLA)

    Chair: Rebecca Headley, LCSW (she/her/hers) – St. Luke's Cystic Fibrosis Center of Idaho

    SW/PSYCH

  • 10:15 AM – 12:15 PM ET
    W19--Remote Monitoring

    Chair: Jordana Hoppe, MD (she/her/hers) – University of Colorado

    Chair: Jaclyn Davis, MD – Boston Children's Hospital

    CLIN

  • 10:15 AM – 12:15 PM ET
    W20--Model Systems to Study Non-pulmonary Manifestations of CF

    Chair: Ben Ross

    Chair: Kyu Shik Mun, PhD (he/him/his) – Cedars-Sinai Medical Center

    EPP

    IMI

    PTAC/CFTR

  • 10:15 AM – 12:15 PM ET
    W21--Airway Inflammation in CF: Molecules & Mechanisms

    Chair: Robert Gray

    Chair: Kristin Hudock, MD – University of Cincinnati & Cincinnati Children's

    APPTT

  • 10:15 AM – 12:15 PM ET
    W22--Lungs & Beyond

    Chair: Allison Love, MD, FRCPC – University of British Columbia

    Chair: Sid G. Kapnadak, MD (he/him/his) – University of Washington School of Medicine

    CLIN

  • 10:15 AM – 12:15 PM ET
    W23--Out with the Old & In with the New: Clinical Guideline Updates

    Chair: Darci Pfeil, APP – UW Health Kids CF Center

    Chair: Christi Dodd, RN, MSN, ACNP-BC – Adult Cystic Fibrosis Center of Central Texas

    NRS

  • 10:15 AM – 12:15 PM ET
    W24--Novel Topics in Nutrition & GI

    Chair: Judith Fulton, RD, MPH – Children's Hospital Colorado

    Chair: Rachel Kofsky, MA RD CSP CDN LDN CLC (she/her/hers) – Children's Hospital of Philadelphia

    NTR

  • 10:15 AM – 12:15 PM ET
    W25--Cutting-Edge Research: What's New?

    Chair: Gina Hong, M.D., M.H.S. (she/her/hers) – University of Pennsylvania Perelman School of Medicine

    Chair: Don B. Sanders, MD, MS – Indiana University School of Medicine

    CLIN

  • 10:15 AM – 12:15 PM ET
    W26--I Have a Gut Feeling

    Chair: Dhiren Patel, MD – Saint Louis University

    Chair: Jay Freeman, MD, MSc (he/him/his) – Nationwide Children's Hospital

    EPP

    CLIN

  • 10:15 AM – 12:15 PM ET
    W27--PT & RT Research: Updates in Care

    Chair: John Lowman, PT, PhD, CCS – University of Alabama at Birmingham

    Chair: Eleni Moulis, Doctor of Physical Therapy – Boston Children's Hospital

    PT&RT

  • 10:15 AM – 12:15 PM ET
    W28--Innovations in CF Pharmacotherapy

    Chair: Kalen Manasco, PharmD, BCPS, BCPPS (she/her/hers) – University of Florida College of Pharmacy and UF Health Shands

    Chair: Colleen Sakon, PharmD (she/her/hers) – Indiana University Health

    PHARM

  • 10:15 AM – 12:15 PM ET
    W29--The Power of Data to Impact Patients, Policy, & Population.

    Chair: Edward McKone – School of Medicine, University College Dublin, Ireland

    Chair: Anna V. Faino, MSc (she/her/hers) – Seattle Children's Research Institute

    CLIN

  • 12:30 PM – 1:20 PM ET
    FSC05--Fireside Chat - Bob Kuhn
  • 12:30 PM – 1:20 PM ET
    FSC06--Fireside Chat with Suzanne Michel on Historical Nutrition Perspective
  • 12:30 PM – 1:30 PM ET
    Junior Investigators Best Abstract in Basic Science
  • 12:30 PM – 1:30 PM ET
    Junior Investigators Best Abstract in Clinical Research
  • 12:30 PM – 2:00 PM ET
    Adult Program Directors' Meeting
  • 12:30 PM – 2:00 PM ET
    Pediatric Program Directors' Meeting
  • 12:30 PM – 2:00 PM ET
    US Program Coordinators' Meeting
  • 1:30 PM – 2:20 PM ET
    FSC07--Fireside Chat with Dr. Kristin Riekert
  • 1:30 PM – 2:20 PM ET
    FSC08--Fireside Chat with Cynthia Brady
  • 2:30 PM – 4:00 PM ET
    TPS05--Nutrition Innovations

    Chair: Jessica B. Leonard, RD, LDN, CSP, CCTD, CACFD (she/her/hers) – Dept of Clinical Nutrition, Boston Children's Hospital

    Chair: Ryan Juel, MS, RD, LD – WVU Medicine Children's

    NTR

  • 2:30 PM – 4:30 PM ET
    S13--Hepatology Implementation of the New Liver Guidelines

    Chair: David N. Assis, MD – Yale School of Medicine

    Chair: Amanda C. Fifi, MD (she/her/hers) – University of Miami

    CLIN

  • 2:30 PM – 4:30 PM ET
    S14--Alphabet Soup: PFT-GLI-MBW-LCI

    Chair: Matthew Dartt, BSRT RCP RRT ACCS – UCLA Health

    Chair: Kenny Harker, RRT RPFT – Corewell Health

    PT&RT

  • 2:30 PM – 4:30 PM ET
    S15--Challenges to Efficient, Effective, & Durable CFTR Rescue

    Chair: Martin Mense – CFFT Lab, Cystic Fibrosis Foundation

    Chair: Marianne Carlon, PhD – KU Leuven

    PTAC/CFTR

  • 2:30 PM – 4:30 PM ET
    S16--Year(s) in Review

    Chair: Pierre-Régis Burgel, MD, PhD (he/him/his) – Assistance Publique Hopitaux de Paris and Université de Paris

    Chair: Ranjani Somayaji, MD, MPH, FRCPC (she/her/hers) – University of Calgary

    CLIN

  • 2:30 PM – 4:30 PM ET
    S17--Like Fine Wine - Better with Age

    Chair: Heather Brosius, RN, CPN – Geisinger Medical Center

    Chair: Mary Hendry, RN, MS – Jefferson Adult CF Center

    NRS

  • 2:30 PM – 4:30 PM ET
    S18--Enhancing Care for All: Paving the Path to Equity

    Chair: Terri A. Laguna, MD MSCS ATSF (she/her/hers) – University of Washington

    Chair: Georgene E. Hergenroeder, MD (she/her/hers) – Children's Hospital of Philadelphia, Division of Pulmonary and Sleep Medicine

    HEAC

  • 2:30 PM – 4:30 PM ET
    S19--Fragile State? Bone Health & Vitamin D

    Chair: Vin Tangpricha, MD, PhD (he/him/his) – Emory University School of Medicine

    Chair: Malinda Wu, MD, MSCR (she/her/hers) – Johns Hopkins University School of Medicine

    CLIN

  • 2:30 PM – 4:30 PM ET
    S20--ETI & Mental Health: Current Lay of the Land & New Horizons

    Chair: Freda F. Liu, PhD (she/her/hers) – Seattle Children's Hospital

    Chair: David Fedele – University of Florida

    SW/PSYCH

  • 2:30 PM – 4:30 PM ET
    S21--Metabolic Cross-Talk Between Pathogens & Host in Cystic Fibrosis

    Chair: Sebastian Riquelme – Columbia University

    Chair: Hazel Ozuna, PhD (she/her/hers) – Emory University

    IMI

  • 2:30 PM – 4:30 PM ET
    S22--Finding an “Optimal” Dose in Drug Development: The Importance of Exposure/Response Relationships for Advancing Chronic CF Therapies

    Chair: Donald R. VanDevanter, PhD (he/him/his) – Case Western Reserve University School of Medicine

    Chair: Nicole Mayer Hamblett, PhD – University of Washington

    APPTT

    CLIN

    PHARM

    PTAC/CFTR

  • 2:30 PM – 4:30 PM ET
    S23--Updates in CFTR Genetics

    Chair: Johanna Rommens, PhD – SickKids Research Institute

    Chair: Samantha Afonso, MS, CGC, CCGC (she/her/hers) – Adult CF Clinic, St. Michael's Hospital, Unity Health Toronto

    CLIN

  • 2:30 PM – 4:30 PM ET
    S24--Bridging the Gaps: Extrapulmonary Complications Not Addressed by HEMT.

    Chair: Kim McBennett, MD, PhD – Case Western Reserve University

    Chair: Leah Reznikov, PhD – University of Florida

    EPP

  • 5:00 PM – 6:15 PM ET
    PL2--The Tipping Point: The Journey to Understand and Advance Research in CFRD
  • 6:30 PM – 7:30 PM ET
    AGN01--LGBTQIA+ Professionals in CF Affinity Group
  • 6:30 PM – 7:30 PM ET
    AGN02--Black Professionals in CF
  • 6:30 PM – 7:30 PM ET
    AGN03--Hispanic Professionals in CF Affinity Group
  • Saturday, September 28, 2024
  • 7:45 AM – 9:45 AM ET
    W30--Polymicrobial Interactions in CF

    Chair: Catherine R. Armbruster, PhD MPH – Carnegie Mellon University

    Chair: Ken C. Malcolm – National Jewish Health

    IMI

  • 7:45 AM – 9:45 AM ET
    W31--Progress Overcoming Premature Stop Codons in CFTR

    Chair: David M. Bedwell, PhD – Departments of Biochemistry & Molecular Genetics, University of Alabama at Birmingham (UAB), Birmingham, AL

    Chair: Michelle Hastings – Chicago Medical School, Center for Genetic Diseases

    PTAC/CFTR

  • 7:45 AM – 9:45 AM ET
    W32--Airway Differentiation, Pathogenesis, & Repair

    Chair: Margarida Amaral – FCUL-Faculty of Sciences, University of Lisboa

    Chair: Vibha Lama, MD MS – Emory University, Atlanta, GA

    Chair: Gianni Carraro, PhD – Cedars-Sinai Medical Center

    APPTT

    PTAC/CFTR

  • 7:45 AM – 9:45 AM ET
    DG19--East Meets West – Complementary Therapies in CF
  • 7:45 AM – 9:45 AM ET
    DG20--Navigating ETI Mental Health Changes for Children Under 12
  • 7:45 AM – 9:45 AM ET
    DG21--Watch Your Step!: Navigating CFTR Modulator Potholes
  • 7:45 AM – 9:45 AM ET
    DG22--Promoting Airway Clearance: Where are we now?
  • 7:45 AM – 9:45 AM ET
    DG23--Pancreatic Prowess: Navigating CF, Liver Wellness, & Nutritional Implications
  • 7:45 AM – 9:45 AM ET
    DG24--Aging with Grace
  • 7:45 AM – 9:45 AM ET
    DG25--RC Updates & Special Topics
  • 7:45 AM – 9:45 AM ET
    Overview of the Current State & Needs of the U.S. CF Physician Workforce
  • 8:00 AM – 9:15 AM ET
    CC01--Sweating it Out- What do Sweat Tests Really Tell Us?

    Chair: Greg McClelland, PA-C – Ascension Seton, Dell Children’s Medical Group

    Chair: Catherine Enochs, BSN, RN (she/her/hers) – University of Michigan Health

    NRS

  • 8:00 AM – 9:15 AM ET
    CC02--Compelling Cases: Collaboration Between Nutrition & GI

    Chair: Bekah Sommer, MS, RD (she/her/hers) – Indiana University Health

    Chair: Rosara Bass, MD MS (she/her/hers) – Nationwide Children's Hospital

    NTR

  • 8:00 AM – 9:15 AM ET
    CC03--Advanced QI

    Chair: Anna K. Saulitis, AM, LCSW (she/her/hers) – Cystic Fibrosis Foundation

    Chair: Lauren Mitchell, PT, DPT (she/her/hers) – Cystic Fibrosis Foundation

    CLIN

  • 8:00 AM – 9:15 AM ET
    CC04--Complex Cases-Explain Yourself!

    Chair: Darcy Chassé, MScPT (he/him/his) – Health Sciences North - NEO Kids

    Chair: Shontae M. Hill, BS RRT AE-C (she/her/hers) – Primary Children’s Hospital

    PT&RT

  • 8:00 AM – 9:15 AM ET
    CC05--Diagnostic & Counseling Challenges

    Chair: Karen Raraigh, MGC (she/her/hers) – Johns Hopkins University

    Chair: Michael Smiley, MD (he/him/his) – Department of Pediatrics, Cardinal Glennon Children's Hospital, Saint Louis University School of Medicine

    CLIN

  • 8:00 AM – 9:15 AM ET
    CC06--You, Me, & Baby

    Chair: Carol Chace, LICSW (she/her/hers) – Children's National Hospital

    Chair: Andrea H. Roe, MD MPH (she/her/hers) – University of Pennsylvania Perelman School of Medicine

    SW/PSYCH

  • 8:15 AM – 9:45 AM ET
    TPS06--Pre-Clinical Models of CF Organ Disease

    Chair: Rabindra Tirouvanziam, PhD (he/him/his) – Department of Pediatrics, Emory University

    Chair: Eszter K. Vladar, PhD – University of Colorado School of Medicine

    APPTT

  • 10:15 AM – 12:15 PM ET
    S25--Might as Well Jump! Exercise by the Experts

    Chair: Ryan A. Harris, PhD, CEP, FACSM – Georgia Prevention Institute

    Chair: Denee DiPilla George, Orange, Orange – Children's Hospital Orange County

    PT&RT

  • 10:15 AM – 12:15 PM ET
    S26--From Just Surviving to Thriving: Unraveling the Complex Tapestry of CF & Aging

    Chair: Stefanie Krick, MD – Division of Pulmonary and Critical Care Medicine

    Chair: Elizabeth Tullis, MD FRCPC – University of Toronto

    CLIN

  • 10:15 AM – 12:15 PM ET
    S27--Airway Stem Cells: Tools, Targets, & Therapies

    Chair: Viral Shah, MD, PhD – MGH

    Chair: Amy L. Ryan, PhD – University of Iowa

    PTAC/CFTR

  • 10:15 AM – 12:15 PM ET
    S28--Models of CF Airway Infection

    Chair: William H. DePas, PhD – University of Pittsburgh

    Chair: Barbara C. C. Kahl, MD (she/her/hers) – University of Münster

    IMI

  • 10:15 AM – 12:15 PM ET
    S29--It Starts with a Diagnosis, Best Practices for Newborn Screening

    Chair: Susanna A. McColley, MD, FAAP, ATSF (she/her/hers) – Northwestern University Feinberg School of Medicine

    Chair: Marci K. Sontag, PhD (she/her/hers) – Center for Public Health Innovation

    CLIN

  • 10:15 AM – 12:15 PM ET
    S30--GI Symptoms in CF, Let’s Get to the Bottom of it!

    Chair: Jenifer Burke – Rush University Medical Center

    Chair: Joanne Cullina, APRN-CNS – Northwestern University, Department of Medicine, Division of Pulmonary and Critical Care, Chicago, IL, US.

    NRS

  • 10:15 AM – 12:15 PM ET
    S31--Is the Price Really Right?: Keeping Innovations in CF Care Accessible

    Chair: Ryan C. Perkins, MD MPH (he/him/his) – Boston Children’s Hospital/Brigham & Women’s Hospital

    Chair: Olivia Dieni, MPH (she/her/hers) – Cystic Fibrosis Foundation

    HEAC

  • 10:15 AM – 12:15 PM ET
    W33--Impact of RT Education on Patient Care

    Chair: James Reed, RRT/NPS, RPFT (he/him/his) – IU Health

    Chair: Miranda S. Bradley, RT (she/her/hers) – MHealth Fairview, Minneapolis, MN

    PT&RT

  • 10:15 AM – 12:15 PM ET
    W34--Doing DEI in the Real World

    Chair: Chandra Gordon, LMSW (she/her/hers) – University of Kansas Health System

    Community Chair: Brandon M. Wright, MSW, LSW, CDP (he/him/his) – Senior Lifestyle

    SW/PSYCH

  • 10:15 AM – 12:15 PM ET
    W35--Lung Transplantation & Pulmonary Vascular Biology

    Chair: Keven Robinson

    Chair: Don Hayes, Jr., MD (he/him/his) – Cincinnati Children's Hospital Medical Center

    APPTT

  • 10:15 AM – 12:15 PM ET
    W36--Endocrine Screening - What You Need to Know

    Chair: Jennifer Rounds, APRN,NP (she/her/hers) – Nebraska Medicine

    Chair: Mary Sachs, MSN, APRN, CNP (she/her/hers) – Children's Minnesota

    NRS

    CLIN

  • 10:15 AM – 12:15 PM ET
    W37--Leading the Pack: Nutrition Research

    Chair: Alix Wilson, MS, RDN, CDCES (she/her/hers) – National Jewish Health

    Chair: Tara Griffin, MS, RDN, LD CACFD (she/her/hers) – University of Minnesota Adult Cystic Fibrosis Center

    NTR

  • 10:15 AM – 12:15 PM ET
    W38--Epidemiology & Management of Infection in CF

    Chair: Joy E. Gibson, MD, PhD (she/her/hers) – Children's Hospital Los Angeles

    Chair: Bradley S. Quon, MD, MSc, MBA – Centre for Heart Lung Innovation, University of British Columbia, Vancouver, BC, Canada

    IMI

  • 12:30 PM – 2:00 PM ET
    US Center & Program Directors’ Meeting
  • 12:30 PM – 2:00 PM ET
    Airway Clearance Post HEMT: Where Are We Now?
  • 12:30 PM – 2:00 PM ET
    Bronchoscopy as a Clinical & Research Tool in CF
  • 12:30 PM – 2:00 PM ET
    CFTR Outside the Respiratory Track: Importance to Fully Understanding the Disease
  • 12:30 PM – 2:00 PM ET
    CFTR Therapeutics in the Real World: Impact of the Environment on Efficacy
  • 12:30 PM – 2:00 PM ET
    Child Pugh? Medication use in CF Liver Disease
  • 12:30 PM – 2:00 PM ET
    Continuous Glucose Monitoring
  • 12:30 PM – 2:00 PM ET
    Diabetes Post-transplant
  • 12:30 PM – 2:00 PM ET
    Diabetes Technology
  • 12:30 PM – 2:00 PM ET
    Diet Approaches to Heart/Brain Health (Mediterranean, Portfolio, Plant-based)
  • 12:30 PM – 2:00 PM ET
    Expanding the RT Role, Research, Program Coordination, & More!!
  • 12:30 PM – 2:00 PM ET
    From Bedside to Bench to Redcap: The Role of the Research Coordinator in Translational Research
  • 12:30 PM – 2:00 PM ET
    GLI
  • 12:30 PM – 2:00 PM ET
    Help Wanted! How to Manage Staff Turnover
  • 12:30 PM – 2:00 PM ET
    Illuminating the Impact of CFTR in Development
  • 12:30 PM – 2:00 PM ET
    Illuminating the Impact of CFTR in Cancer
  • 12:30 PM – 2:00 PM ET
    I'm a Research Manager, Now What?
  • 12:30 PM – 2:00 PM ET
    Improving OGTT Rates
  • 12:30 PM – 2:00 PM ET
    It's Not so Scary! How to Make the Most of Your Program Site Visit
  • 12:30 PM – 2:00 PM ET
    LGBTQIA+ Participants in Research
  • 12:30 PM – 2:00 PM ET
    Mental Health for RCs & Patients
  • 12:30 PM – 2:00 PM ET
    Models & Assays for CFTR Research
  • 12:30 PM – 2:00 PM ET
    Nutrition Implications of CFTR Modulators
  • 12:30 PM – 2:00 PM ET
    Pass the Torch but Don't Get Burned: Transitioning the Ownership of CF Self Care
  • 12:30 PM – 2:00 PM ET
    Personal Care for Better Patient Care
  • 12:30 PM – 2:00 PM ET
    Phage Therapy in 2024: Clinical Trials or Compassionate Care- What Are the Options Now?
  • 12:30 PM – 2:00 PM ET
    PHARM: Assembling the Avengers: What the Addition of the Pharmacy Technician Brings to the Team
  • 12:30 PM – 2:00 PM ET
    PHARM: Team Work Makes The Dream Work: Pharmacy Technician Role in Pre Visit Planning
  • 12:30 PM – 2:00 PM ET
    PI Oversite
  • 12:30 PM – 2:00 PM ET
    Pulmonary Function Testing Interpretation for APPs, RN, RCs: Taskforce Updates
  • 12:30 PM – 2:00 PM ET
    Running a Successful & Efficient Pre-Clinic Meeting
  • 12:30 PM – 2:00 PM ET
    Severe Vitamin Deficiencies: What to Do When Oral Replacement Fails?
  • 12:30 PM – 2:00 PM ET
    Ships Ahoy!: Navigating the Seas of Medicare
  • 12:30 PM – 2:00 PM ET
    The Biologic Therapies in CF
  • 12:30 PM – 2:00 PM ET
    The Impact of Calcium Signaling Regulation on CFTR
  • 12:30 PM – 2:00 PM ET
    The Patient Navigator: The CF Clinic Superhero!
  • 12:30 PM – 2:00 PM ET
    The Structural Biology of CFTR
  • 12:30 PM – 2:00 PM ET
    Theratyping CFTR Variants
  • 12:30 PM – 2:00 PM ET
    Transition
  • 12:30 PM – 2:00 PM ET
    Transplant Nutrition
  • 12:30 PM – 2:00 PM ET
    What's that Doo Hickey? Review of Devices for Diabetes
  • 12:30 PM – 2:00 PM ET
    LL08--Eradication Protocols
  • 12:30 PM – 2:00 PM ET
    LL09--Site Collaboration
  • 12:30 PM – 2:00 PM ET
    LL10--I've Got 15 Minutes: Show Me a Brief Clinical Intervention
  • 12:30 PM – 2:00 PM ET
    LL11--Gut Games
  • 12:30 PM – 2:00 PM ET
    LL12--Building Trust in the Care Relationship
  • 12:30 PM – 2:00 PM ET
    LL13--What's Up with Mary Jane?
  • 12:30 PM – 2:00 PM ET
    LL14--Highs & Lows of GI & Endocrine
  • 12:30 PM – 2:00 PM ET
    LL15--Athletes with CF: Pairing Exercise and Nutrition Through the Years
  • 2:30 PM – 3:45 PM ET
    Addressing Reproductive and Sexual Health in People with CF