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Full Schedule

Full Schedule

  • Tuesday, September 24, 2024
  • 5:00 PM – 8:00 PM ET
    Mental Health Advisory Committee Meeting
  • Wednesday, September 25, 2024
  • 6:00 AM – 6:30 PM ET
    Registration Open
  • 8:00 AM – 12:00 PM ET
    SPC01--AM: Increasing Our Awareness to School & Vocation Success in CF Interdisciplinary Care
  • 8:00 AM – 3:00 PM ET
    PEP--Partnership Enhancement Program
  • 8:00 AM – 5:00 PM ET
    SPC03--Airway Clearance
  • 8:00 AM – 5:00 PM ET
    SPC04--Nuts & Bolts for the New CF Team Member
  • 10:30 AM – 2:30 PM ET
    PCM--Psychosocial Collaborative Meeting: Uplift. Connect. Relate.
  • 11:00 AM – 3:00 PM ET
    Quality Improvement Consortium for Cystic Fibrosis Newborn Screening
  • 11:15 AM – 12:45 PM ET
    BPCFRD
  • 12:00 PM – 1:45 PM ET
    Women in Science and Medicine - CF Annual Luncheon
  • 12:30 PM – 2:30 PM ET
    Patient Registry Luncheon
  • 1:00 PM – 5:00 PM ET
    SPC02--PM: Parenting Strategies for Adults with CF Who are Parenting & Parents of Children with CF: Promoting Access to Parent Management Training Strategies
  • 2:00 PM – 2:45 PM ET
    Convention Center Tour 1
  • 2:30 PM – 3:30 PM ET
    RARE Study Meeting
  • 3:00 PM – 5:00 PM ET
    DG01--Talk the Talk: Using Essential Communication & Core Skills
  • 3:00 PM – 5:00 PM ET
    DG02--Making the Unbearable Bearable: CF Cost of Care Hacks for the Care Team
  • 3:00 PM – 6:00 PM ET
    DIGEST/EnVision/PACE Training
  • 3:00 PM – 7:00 PM ET
    SC02--Bloat is Not the G.O.A.T: Managing Digestion, Bloating & Constipation/DIOS
  • 3:00 PM – 7:00 PM ET
    SC03--Pharmacy "Potpourri” for APPs
  • 3:00 PM – 7:00 PM ET
    SC04--Communication Skills to Enhance Equity & Inclusion
  • 3:45 PM – 4:30 PM ET
    STRONG-CF
  • 4:00 PM – 6:00 PM ET
    Canadian CF Social Workers' Annual Meeting
  • 4:00 PM – 7:00 PM ET
    Poster Set-up Time
  • 5:15 PM – 6:45 PM ET
    PEAS--Parent Forum: Education, Advocacy and Support

    Chair: Julie Lehrmann, LMSW – University of Michigan Health

    Chair: Gail Yashar, MS, MSW,LCSW – Duke Hospital

    Community Speaker: Joe Hallisy – Michigan Medicine

    Community Speaker: Stacie Hallisy, RN – Corewell Health

  • 5:15 PM – 6:45 PM ET
    PHARM: Open Forum Discussion
  • 5:15 PM – 6:45 PM ET
    NRS: Open Forum Discussion
  • 5:15 PM – 6:45 PM ET
    APP: Open Forum Discussion
  • 6:15 PM – 7:00 PM ET
    Convention Center Tour 2
  • 7:00 PM – 9:00 PM ET
    RC Mentoring Meeting
  • 7:30 PM – 9:00 PM ET
    CF Foundation Combined Care Programs Reception
  • 8:30 PM – 10:00 PM ET
    US PT Specialty Meeting
  • Thursday, September 26, 2024
  • 6:00 AM – 6:45 AM ET
    Boston Running Tour
  • 6:00 AM – 6:30 PM ET
    Registration Open
  • 6:30 AM – 8:00 AM ET
    Poster Set-up Time
  • 7:00 AM – 9:30 AM ET
    CFF EnVision Mentees Meeting
  • 7:15 AM – 8:30 AM ET
    Breakfast
  • 7:45 AM – 9:45 AM ET
    PGR--Physicians Grand Rounds
    Chair: Clement L. Ren, MD, MBA (he/him/his) – Children’s Hospital Of Philadelphia
    Chair: Manu Jain, MD, MSc – Northwestern University
  • 7:45 AM – 9:45 AM ET
    W01--Effect of CFTR Modulator Therapy on Infection & Inflammation in CF
    Chair: Emanuela M. Bruscia, PhD – Yale University
    Chair: Raul Rascon – Nationwide Children's Hospital
    IMIAPPTT
  • 7:45 AM – 9:45 AM ET
    W02--Agnostic Avenues: Alternatives to CF Gene Therapy
    Chair: Martina Gentzsch, PhD (she/her/hers) – University of North Carolina
    Chair: Nam Soo Joo – Stanford University
    APPTT
  • 7:45 AM – 9:45 AM ET
    DG03--Who Ya' Gonna Call? - Mentoring & Education in CF
  • 7:45 AM – 9:45 AM ET
    DG04--Ethics for Mental Health Practitioners
  • 7:45 AM – 9:45 AM ET
    DG05--Trivia Night
  • 7:45 AM – 9:45 AM ET
    DG06--Cutting Edge Nutrition Topics
  • 7:45 AM – 9:45 AM ET
    DG07--PharmASSISTing the Multidisciplinary Team: Transitions of Care & Care Models
  • 7:45 AM – 9:45 AM ET
    DG08--Tools for Your Practice: Updates & Resources for Genetic Counseling for CF & CRMS/CFSPID
  • 7:45 AM – 9:45 AM ET
    DG09--APP Grand Rounds
  • 7:45 AM – 9:45 AM ET
    DG10--Technology in Research
  • 8:00 AM – 9:00 AM ET
    Registry Data Update
  • 8:00 AM – 5:00 PM ET
    Exhibit & Poster Hall Open
  • 8:15 AM – 8:35 AM ET
    Full Body Restorative Stretch & Relaxation
  • 9:00 AM – 9:50 AM ET
    RFPT01--Nucleotide-Based Therapeutics: Delivery & Gene Editing
  • 9:00 AM – 9:50 AM ET
    RFPT01--Nucleotide-Based Therapeutics: Delivery & Gene Editing
    Chair: Patrick Harrison – University College Cork
    Chair: Shingo Suzuki, PhD (he/him/his) – University of Alabama at Birmingham
    PTAC/CFTR
  • 9:00 AM – 9:50 AM ET
    RFPT02--Aging
    Chair: Sophie Corriveau, MD, FRCPC – McMaster University
    Chair: Julian S. Tam, MD (he/him/his) – University of Saskatchewan
    CLIN
  • 9:00 AM – 10:00 AM ET
    Next Generation Registry (NGR)
  • 9:00 AM – 11:00 AM ET
    Coffee Break
  • 10:15 AM – 11:30 AM ET
    Registry Classroom Open Q/A Session
  • 10:15 AM – 11:45 AM ET
    TPS01--Pharmacotherapy
    Chair: Cori Muirhead, PharmD, BCPPS – Doernbecher Children's Hospital
    Chair: Madison Hill, PharmD (she/her/hers) – Primary Children's Cystic Fibrosis Clinic
    PHARM
  • 10:15 AM – 12:15 PM ET
    W03--New Insights Regarding CFTR Basic Biology & Implications for Future Therapeutics
    Chair: Carlos M. Farinha, PhD (he/him/his) – Faculty of Sciences, University of Lisboa, BioISI - Biosystems and Integrative Sciences Institute
    Chair: Kenichi Okuda – Marsico Lung Institute/Cystic Fibrosis Research Center, University of North Carolina at Chapel Hill, Chapel Hill, NC, USA
    PTAC/CFTR
  • 10:15 AM – 12:15 PM ET
    W04--Advanced Lung Disease & Lung Transplant
    Chair: Kathleen J. Ramos, MD MS (she/her/hers) – University of Washington
    CLIN
  • 10:15 AM – 12:15 PM ET
    W05--Advances Along the Path to a Cure
    Chair: John D. Lueck, Ph.D. – University of Rochester School of Medicine and Dentistry
    Chair: Alexandra S. Piotrowski-Daspit, PhD (she/her/hers) – University of Michigan
    PTAC/CFTR
  • 10:15 AM – 12:15 PM ET
    W06--The ABCs of Cancer Screening
    Chair: Katherine Stull, PA-C – Thomas Jefferson University Hospital
    Chair: Lynne M. Fries, PA-C, MPAS, DPT, AE-C – Cystic Fibrosis Center of Western New York
    NRS
  • 10:15 AM – 12:15 PM ET
    W07--Best Abstracts in GI & Hepatology
    Chair: Tanja Gonska, MD – the Hospital for Sick Children
    Chair: Linda C. Cummings, MD, MS – University Hospitals Cleveland Medical Center/Case Western Reserve University
    CLIN
  • 10:15 AM – 12:15 PM ET
    W08--PT & RT Research: Year in Review
    Chair: DeeAnna Serna, RRT-NPS, AE-C (she/her/hers) – University of California Los Angeles (UCLA)
    Chair: Clare Smith, BScPT (she/her/hers) – University of Calgary
    PT&RT
  • 10:15 AM – 12:15 PM ET
    W08--PT and RT Research: Year in Review
  • 10:15 AM – 12:15 PM ET
    W09--Airway Ions, Fluid, & Mucus Transport
    Chair: Juan P. Ianowski, PhD (he/him/his) – University of Saskatchewan
    Chair: Ian Thornell – University of Iowa
    APPTT
  • 10:15 AM – 12:15 PM ET
    W10--Psychosocial Research Showcase
    Chair: Janelle Heddings, PhD (she/her/hers) – WVU School of Medicine
    Chair: Bob Goodholm, LCSW (he/him/his) – Mayo Clinic Florida
    SW/PSYCH
  • 10:15 AM – 12:15 PM ET
    W11--Best Practice & Innovative Approaches in Clinical Research
    Chair: Lisa Bendy, BA, CCRC – Indiana University
    Chair: Samantha K. Johnson (she/her/hers) – National Jewish Health
    CLIN
  • 10:15 AM – 12:15 PM ET
    W12--Pathogenesis of CF Airway Infection
    Chair: Jaime L. Hook, MD – Icahn School of Medicine at Mount Sinai
    Chair: Christine H. Rumpf, n/a (she/her/hers) – Institute of Medical Microbiology, University Hospital Muenster, Muenster, Germany
    IMI
  • 10:15 AM – 12:15 PM ET
    W13--Best Abstracts in Endocrinology
    Chair: Marissa Kilberg, MD, MSEd (she/her/hers) – Children's Hospital of Philadelphia
    Chair: Christine L. Chan, MD (she/her/hers) – University of Colorado
    CLIN
  • 10:15 AM – 12:15 PM ET
    W14--Equity in Action
    Chair: Thida Ong, MD (she/her/hers) – Seattle Children's Hospital/UW
    Chair: Melissa Alao, MSW, LICSW (she/her/hers) – Boston Children's Hospital/Brigham and Women's Hospital
    HEAC
  • 10:20 AM – 10:40 AM ET
    Lower Body Relaxation
  • 10:50 AM – 11:10 AM ET
    Lower Body Relaxation
  • 11:30 AM – 12:15 PM ET
    Affiliate Program Directors' Meeting
  • 12:15 PM – 2:30 PM ET
    Lunch Time
  • 12:30 PM – 1:20 PM ET
    FSC01--Fireside Chat with Phil Thomas
  • 12:30 PM – 1:20 PM ET
    FSC02--Fireside Chat with Maggie McIlwaine
  • 12:30 PM – 1:20 PM ET
    RFPT03--Health Equity, Access, & Care Delivery
    Chair: Meghan McGarry, MD (she/her/hers) – Seattle Children's Hospital
    Chair: Bryan Garcia, MD – UAB
    HEAC
  • 12:30 PM – 1:20 PM ET
    RFPT04--Quality Improvement
    Chair: Sophie Corriveau, MD, FRCPC – McMaster University
    Chair: Amy Dettori, MD (she/her/hers) – University of Washington / Seattle Children's Hospital
    CLIN
  • 12:30 PM – 1:30 PM ET
    Core Center & Affiliate Program Meeting
  • 12:30 PM – 2:00 PM ET
    Junior Investigator Poster Judging Time
  • 12:30 PM – 2:00 PM ET
    LL01--Leveling Up Your ACT with CF Practice
  • 12:30 PM – 2:00 PM ET
    LL02--Alveoli: A Player in the CF Lung?
  • 12:30 PM – 2:00 PM ET
    LL03--Prenatal & Postnatal Management of ETI Exposed Infants
  • 12:30 PM – 2:00 PM ET
    LL04--Strategies for Strengthening Multi-Disciplinary Care
  • 12:30 PM – 2:00 PM ET
    LL05--Navigating Nutrition: Recent Research Findings
  • 12:30 PM – 2:00 PM ET
    LL06--Smart & a Little Scattered: Assessing & Intervening for Success
  • 12:30 PM – 2:00 PM ET
    LL07--Navigating Challenges with Health Insurance Coverage
  • 12:30 PM – 2:00 PM ET
    Group 1 Roundtables
  • 12:30 PM – 2:00 PM ET
    Group 2 Roundtables
  • 12:30 PM – 2:00 PM ET
    Group 3 Roundtables
  • 12:30 PM – 2:00 PM ET
    Group 4 Roundtables
  • 12:30 PM – 2:00 PM ET
    Group 5 Roundtables
  • 12:30 PM – 2:00 PM ET
    TPS02--Bugs & Drugs & Immunologic Thugs
    Chair: Daniel Cook, MD, PhD – University of Iowa
    Chair: Sheryl Fernandes (she/her/hers) – Cedars Sinai Medical Center
    IMIAPPTT
  • 12:30 PM – 2:30 PM ET
    TPS02--Bugs & Drugs & Immunologic Thugs

    Chair: Daniel Cook, MD, PhD – University of Iowa

    Chair: Sheryl Fernandes – Cedars Sinai Medical Center

  • 1:30 PM – 2:20 PM ET
    FSC03--Fireside Chat with Toni Moran
  • 1:30 PM – 2:20 PM ET
    FSC04--Fireside Chat with Lauren Ahrens
  • 1:30 PM – 2:20 PM ET
    RFPT05--Detection & Diagnosis of Infection
    Chair: Gina Hong, M.D., M.H.S. – University of Pennsylvania Perelman School of Medicine
    Chair: Matthew M. Schaefers, n/a (he/him/his) – Boston Children's Hospital
    IMI
  • 1:30 PM – 2:20 PM ET
    RFPT06--Psychosocial Research Showcase: The Sequel
    Chair: Sarah Pritt, PsyD – Adult CF Clinic Center, Geisinger Healthcare System
    Chair: Kristina G. Mertz, LICSW (she/her/hers) – Providence Medical Group
    SW/PSYCH
  • 2:00 PM – 2:45 PM ET
    Advanced Lung Disease (ALD)
  • 2:30 PM – 4:00 PM ET
    TPS03--Biomarkers of Infection & Inflammation
    Chair: Scott Sagel, MD, PhD – Children's Hospital Colorado/University of Colorado Anschutz Medical Campus
    Chair: Christina S. Thornton, MD PhD – University of Calgary
    CLIN
  • 2:30 PM – 4:30 PM ET
    S01--Fungal Infections in CF
    Chair: Deborah Hogan – Geisel School of Medicine at Dartmouth
    Chair: Stephen K. Dolan, PhD (he/him/his) – Clemson University
    IMI
  • 2:30 PM – 4:30 PM ET
    S02--Paradigm Shift in CF Care Model
    Chair: Rebekah F. Brown, MD (she/her/hers) – Vanderbilt University Medical Center
    Chair: Patrick A. Flume, MD – Medical University of South Carolina
    CLIN
  • 2:30 PM – 4:30 PM ET
    S03--Golden Girls: Care Considerations for the Aging CF Female
    Chair: Suzanne Roberson, BSN (she/her/hers) – University of South Florida Tampa General Physician Group
    Chair: Cheryl Kushner, APRN – Joe DiMaggio Cystic Fibrosis, Pulmonary and Sleep Center
    NRS
  • 2:30 PM – 4:30 PM ET
    S04--CF Around the World: Challenges & Opportunities
    Chair: Dana Albon – University of Virginia
    Chair: Golnar Raissi, ND, integrative physician – Columbia University
    HEAC
  • 2:30 PM – 4:30 PM ET
    S05--An Evolving Understanding of ETI: Potential Mechanisms of Lingering Disease
    Chair: Jerry A. Nick, MD (he/him/his) – National Jewish Health
    Chair: Jennifer Guimbellot – Arkansas Children's Hospital/Arkansas Children's Research Institute
    CLIN
  • 2:30 PM – 4:30 PM ET
    S06--Feeling Burnt Out?
    Chair: Alexandra L. Quittner, PhD (she/her/hers) – Joe DiMaggio Cystic Fibrosis Center
    Chair: Amy Sangvai, MSW, LCSW – UNC Health, Pediatric Cystic Fibrosis Center, Chapel Hill, NC, USA
    SW/PSYCH
  • 2:30 PM – 4:30 PM ET
    S07--CFTR 2024: Better Understanding of the Underlying CF Disease Mechanism
    Chair: Jeff L. Brodsky, PhD (he/him/his) – University of Pittsburgh
    Chair: Kathryn E. Oliver, PhD, MS (she/her/hers) – Emory University School of Medicine
    PTAC/CFTR
  • 2:30 PM – 4:30 PM ET
    S08--The Impact of Highly Effective Modulator Therapy (HEMT) on the Vicious Cycle of Obstruction, Infection, & Inflammation
    Chair: Deepika Polineni, MD MPH – Washington University in St. Louis
    Chair: Marcus A. Mall – Department of Pediatric Respiratory Medicine, Immunology and Intensive Care Medicine, Charité, Universitätsmedizin, Berlin, Germany
    Community Chair: Tré LaRosa
    APPTTIMI
  • 2:30 PM – 4:30 PM ET
    S09--Revolutionizing Health in Nutrition, Endocrinology, & Gastroenterology
    Chair: Gretchen Garlow, LDN – Massachusetts General Hospital
    Chair: Sara Hendrix, RD (she/her/hers) – Medical University of South Carolina
    NTR
  • 2:30 PM – 4:30 PM ET
    S10--Your Case: Airway Clearance vs Exercise in the New Era
    Chair: Melissa Richmond, MPT – BC Children's Hospital
    Chair: Jennifer Walzel, PT, DPT, PCS – Dell Children's Medical Center of Central Texas
    PT&RT
  • 2:30 PM – 4:30 PM ET
    S11--Nucleotide-Based Therapeutics Across Diverse Populations
    Chair: Jennifer L. Taylor-Cousar, MD (she/her/hers) – National Jewish Health
    Chair: Nicole Mayer Hamblett, PhD (she/her/hers) – University of Washington
    PTAC/CFTR
  • 2:30 PM – 4:30 PM ET
    S12--Sugar, Spice, & Everything Nice- Recipes for Sweet Success in Pediatrics & Pregnancy Management
    Chair: Taylor Imburgia, PharmD, BCPPS – The Johns Hopkins Hospital
    PHARM
  • 3:00 PM – 4:30 PM ET
    Registry Tools (PortCF and CFSmartReports)
  • 4:05 PM – 4:15 PM ET
    Foot Reflexology
  • 4:20 PM – 4:30 PM ET
    Foot Reflexology
  • 5:00 PM – 6:30 PM ET
    PL1--Challenges & Progress in the Pursuit of Genetic Therapies for Cystic Fibrosis
  • 6:45 PM – 7:45 PM ET
    Welcome Reception
  • Friday, September 27, 2024
  • 6:00 AM – 6:45 AM ET
    Bodyweight Bootcamp
  • 6:00 AM – 6:30 PM ET
    Registration Open
  • 7:00 AM – 9:30 AM ET
    DIGEST Faculty & Trainee Breakfast
  • 7:15 AM – 8:30 AM ET
    Breakfast
  • 7:45 AM – 9:45 AM ET
    Adult Fellows
    Chair: Joseph M. Pilewski – University of Pittsburgh
    Chair: Natalie E. West, MD, MHS (she/her/hers) – Johns Hopkins University
    Facilitator: Thaddeus R. Cybulski, MD, PhD (he/him/his) – Northwestern Feinberg School of Medicine
  • 7:45 AM – 9:45 AM ET
    Pediatric Fellows
    Chair: Felix Ratjen, MD (he/him/his) – University of Toronto
    Chair: Marie E. Egan, MD – Yale University School of Medicine
    Facilitator: Saharon Less Elazari, MD – Schneider Children's Medical Center of Israel
  • 7:45 AM – 9:45 AM ET
    W15--Microbial Ecology of CF Airway Infection
    Chair: Sage J. B. Dunham, PhD – UC Irvine
    Chair: Ajai Dandekar – University of Washington
    IMI
  • 7:45 AM – 9:45 AM ET
    W16--From the Gene Editor's Desk: Rewriting Mutant CFTR Using CRISPR & Other Technologies
    Chair: Sriram Vaidyanathan – Nationwide Children’s Hospital, The Ohio State University, Columbus, OH, 43215
    Chair: Greg Newby – Johns Hopkins University School of Medicine
    PTAC/CFTR
  • 7:45 AM – 9:45 AM ET
    W17--Financial Toxicity in CF Care
    Chair: Gregory S. Sawicki, MD, MPH (he/him/his) – Boston Children's Hospital
    Chair: Jamie Wooldridge, MD (she/her/hers) – University of Rochester Medical Center
    HEAC
  • 7:45 AM – 9:45 AM ET
    DG11--Bad Bugs, Bad Bugs, What Are You Going to do!?- Rx Management of Infections
  • 7:45 AM – 9:45 AM ET
    DG12--Diet Deceptions & Influencer Illusions: Unmasking Nutritional Nonsense in the Age of Social Media, Exposing the Dark Side of Social Media on Body Image
  • 7:45 AM – 9:45 AM ET
    DG13--Back to Basics
  • 7:45 AM – 9:45 AM ET
    DG14--Cost Implications - Not Just Financial
  • 7:45 AM – 9:45 AM ET
    DG15--Emerging Topics in CF Genetics & Genetic Counseling
  • 7:45 AM – 9:45 AM ET
    DG16--Seeing More than CF, 2.0
  • 7:45 AM – 9:45 AM ET
    DG17--Primary Care Providers - Everyone Needs One!
  • 7:45 AM – 9:45 AM ET
    DG18--Explaining Research to New Populations
  • 8:00 AM – 9:00 AM ET
    Registry Data Update
  • 8:00 AM – 5:00 PM ET
    Exhibit & Poster Hall Open
  • 9:00 AM – 9:50 AM ET
    RFPT07--Lung Image Analysis to Measure CF Lung Disease
    Chair: Zackary I. Cleveland, PhD (he/him/his) – Cincinnati Children's Hospital Medical Center
    Chair: Daan Caudri, MD, PhD (he/him/his) – Erasmus MC - Sophia Children's Hospital
    APPTTCLIN
  • 9:00 AM – 10:00 AM ET
    Next Generation Registry (NGR)
  • 9:00 AM – 11:00 AM ET
    Coffee Break
  • 9:10 AM – 9:40 AM ET
    Full Body Restorative Stretch & Relaxation
  • 10:15 AM – 11:30 AM ET
    Registry Classroom Open Q/A Session
  • 10:15 AM – 11:45 AM ET
    TPS04--Advances in Anti-Infectives & Anti-Inflammatories
    Chair: Elizabeth B. Burgener, MD (she/her/hers) – Children's Hospital of Los Angeles - Pulmonology
    Chair: Christina S. Thornton, MD PhD – University of Calgary
    IMI
  • 10:15 AM – 12:15 PM ET
    W18--Novel Interventions
    Chair: Natacha D. Emerson, PhD (she/her/hers) – University of California, Los Angeles (UCLA)
    Chair: Rebecca Headley, LCSW (she/her/hers) – St. Luke's Cystic Fibrosis Center of Idaho
    SW/PSYCH
  • 10:15 AM – 12:15 PM ET
    W19--Remote Monitoring
    Chair: Jordana Hoppe, MD (she/her/hers) – University of Colorado
    Chair: Jaclyn Davis, MD (she/her/hers) – Boston Children's Hospital
    CLIN
  • 10:15 AM – 12:15 PM ET
    W20--Model Systems to Study Non-pulmonary Manifestations of CF
    Chair: Ben Ross
    Chair: Kyu Shik Mun, PhD – Cedars-Sinai Medical Center
    EPPIMIPTAC/CFTR
  • 10:15 AM – 12:15 PM ET
    W21--Airway Inflammation in CF: Molecules & Mechanisms
    Chair: Kristin Hudock, MD, MSTR – University of Cincinnati & Cincinnati Children's
    APPTT
  • 10:15 AM – 12:15 PM ET
    W22--Lungs & Beyond
    Chair: Allison Love, MD, FRCPC – University of British Columbia
    Chair: Sid G. Kapnadak, MD (he/him/his) – University of Washington School of Medicine
    CLIN
  • 10:15 AM – 12:15 PM ET
    W23--Out with the Old & In with the New: Clinical Guideline Updates
    Chair: Darci Pfeil, APP – UW Health Kids CF Center
    Chair: Christi Dodd, RN, MSN, ACNP-BC – Adult Cystic Fibrosis Center of Central Texas
    NRS
  • 10:15 AM – 12:15 PM ET
    W24--Novel Topics in Nutrition & GI
    Chair: Judith Fulton, MPH, RD – Children's Hospital Colorado
    Chair: Rachel Kofsky, MA RD CSP CDN LDN CLC (she/her/hers) – Children's Hospital of Philadelphia
    NTR
  • 10:15 AM – 12:15 PM ET
    W25--Cutting-Edge Research: What's New?
    Chair: Gina Hong, M.D., M.H.S. – University of Pennsylvania Perelman School of Medicine
    Chair: Don B. Sanders, MD, MS – Indiana University School of Medicine
    CLIN
  • 10:15 AM – 12:15 PM ET
    W26--I Have a Gut Feeling
    Chair: Dhiren Patel, MD (he/him/his) – Saint Louis University
    Chair: Jay Freeman, MD, MSc (he/him/his) – Nationwide Children's Hospital
    EPPCLIN
  • 10:15 AM – 12:15 PM ET
    W27--PT & RT Research: Updates in Care
    Chair: John Lowman, PT, PhD, CCS – University of Alabama at Birmingham
    Chair: Eleni Moulis, Doctor of Physical Therapy – Boston Children's Hospital
    PT&RT
  • 10:15 AM – 12:15 PM ET
    W28--Innovations in CF Pharmacotherapy
    Chair: Kalen Manasco, PharmD, BCPS, BCPPS (she/her/hers) – University of Florida College of Pharmacy and UF Health Shands
    Chair: Joshua W. Fleming, PharmD, BCACP – University of Mississippi School of Pharmacy
    PHARM
  • 10:15 AM – 12:15 PM ET
    W29--The Power of Data to Impact Patients, Policy, & Population.
    Chair: Edward McKone – School of Medicine, University College Dublin, Ireland
    Chair: Anna V. Faino, MSc (she/her/hers) – Seattle Children's Research Institute
    CLIN
  • 10:15 AM – 12:15 PM ET
    W29--The Power of Data to Impact Patients, Policy, & Population
  • 12:15 PM – 1:15 PM ET
    Poster Session: All Odd Numbered Posters
  • 12:15 PM – 2:30 PM ET
    Lunch Time
  • 12:30 PM – 1:00 PM ET
    Full Body Restorative Stretch & Relaxation
  • 12:30 PM – 1:20 PM ET
    FSC05--Fireside Chat with Bob Kuhn
  • 12:30 PM – 1:20 PM ET
    FSC06--Fireside Chat with Suzanne Michel
  • 12:30 PM – 1:30 PM ET
    Junior Investigators Best Abstract in Basic Science
  • 12:30 PM – 1:30 PM ET
    Junior Investigators Best Abstract in Clinical Research
  • 12:30 PM – 2:00 PM ET
    Adult Program Directors' Meeting
  • 12:30 PM – 2:00 PM ET
    Pediatric Program Directors' Meeting
  • 12:30 PM – 2:00 PM ET
    US Program Coordinators' Meeting
  • 1:00 PM – 2:15 PM ET
    CF Global Data and Research Collaboration
  • 1:15 PM – 2:15 PM ET
    Poster Session: All Even Numbered Posters
  • 1:30 PM – 2:00 PM ET
    Full Body Restorative Stretch & Relaxation
  • 1:30 PM – 2:20 PM ET
    FSC07--Fireside Chat with Dr. Kristin Riekert
  • 1:30 PM – 2:20 PM ET
    FSC08--Fireside Chat with Cynthia Brady
  • 2:00 PM – 2:45 PM ET
    Advanced Lung Disease (ALD)
  • 2:30 PM – 4:00 PM ET
    TPS05--Nutrition Innovations
    Chair: Jessica B. Leonard, RD, LDN, CSP, CCTD, CACFD (she/her/hers) – Dept of Clinical Nutrition, Boston Children's Hospital
    Chair: Ryan Juel, MS, RD, LD – WVU Medicine Children's
    NTR
  • 2:30 PM – 4:30 PM ET
    S13--Hepatology Implementation of the New Liver Guidelines
    Chair: David N. Assis, MD – Yale School of Medicine
    Chair: Amanda C. Fifi, MD (she/her/hers) – University of Miami
    CLIN
  • 2:30 PM – 4:30 PM ET
    S14--Alphabet Soup: PFT-GLI-MBW-LCI
    Chair: Kenny Harker, RRT RPFT – Corewell Health
    PT&RT
  • 2:30 PM – 4:30 PM ET
    S15--Challenges to Efficient, Effective, & Durable CFTR Rescue
    Chair: Martin Mense – CFFT Lab, Cystic Fibrosis Foundation
    Chair: Marianne Carlon – KU Leuven
    PTAC/CFTR
  • 2:30 PM – 4:30 PM ET
    S16--Year(s) in Review
    Chair: Pierre-Régis Burgel, MD, PhD (he/him/his) – Assistance Publique Hopitaux de Paris and Université de Paris
    Chair: Ranjani Somayaji, MD, MPH, FRCPC (she/her/hers) – University of Calgary
    CLIN
  • 2:30 PM – 4:30 PM ET
    S17--Like Fine Wine - Better with Age
    Chair: Heather Brosius, RN, CPN – Geisinger Medical Center
    Chair: Mary Hendry, RN, MS – Jefferson Adult CF Center
    NRS
  • 2:30 PM – 4:30 PM ET
    S18--Enhancing Care for All: Paving the Path to Equity
    Chair: Terri A. Laguna, MD MSCS ATSF (she/her/hers) – University of Washington
    Chair: Georgene E. Hergenroeder, MD (she/her/hers) – Children's Hospital of Philadelphia, Division of Pulmonary and Sleep Medicine
    Community Speaker: Raquel Garcia
    HEAC
  • 2:30 PM – 4:30 PM ET
    S19--Demystifying CF Bone Disease: From Pathophysiology to Treatment
    Chair: Vin Tangpricha, MD, PhD – Emory University School of Medicine
    Chair: Malinda Wu, MD, MSCR (she/her/hers) – Johns Hopkins University School of Medicine
    CLIN
  • 2:30 PM – 4:30 PM ET
    S20--ETI & Mental Health: Current Lay of the Land & New Horizons
    Chair: Freda F. Liu, PhD (she/her/hers) – Seattle Children's Hospital
    Chair: David Fedele, PhD, ABPP (he/him/his) – Nemours Children's Health
    SW/PSYCH
  • 2:30 PM – 4:30 PM ET
    S21--Metabolic Cross-Talk Between Pathogens & Host in Cystic Fibrosis
    Chair: Sebastian Riquelme – Columbia University
    Chair: Hazel Ozuna, PhD (she/her/hers) – Emory University
    IMI
  • 2:30 PM – 4:30 PM ET
    S22--Finding an “Optimal” Dose in Drug Development: The Importance of Exposure/Response Relationships for Advancing Chronic CF Therapies
    Chair: Donald R. VanDevanter, PhD – Case Western Reserve University School of Medicine
    Chair: Nicole Mayer Hamblett, PhD (she/her/hers) – University of Washington
    APPTTCLINPHARMPTAC/CFTR
  • 2:30 PM – 4:30 PM ET
    S23--Updates in CFTR Genetics
    Chair: Johanna Rommens, PhD – SickKids Research Institute
    Chair: Samantha Afonso, MS, CGC, CCGC (she/her/hers) – Adult CF Clinic, St. Michael's Hospital, Unity Health Toronto
    CLIN
  • 2:30 PM – 4:30 PM ET
    S24--Bridging the Gaps: Extrapulmonary Complications Not Addressed by HEMT.
    Chair: Kim McBennett, MD, PhD – Case Western Reserve University
    Chair: Leah Reznikov, PhD – University of Florida
    EPP
  • 3:00 PM – 4:30 PM ET
    Registry Tools (PortCF and CFSmartReports)
  • 4:05 PM – 4:15 PM ET
    Foot Reflexology
  • 4:20 PM – 4:30 PM ET
    Foot Reflexology
  • 5:00 PM – 6:15 PM ET
    PL2--The Tipping Point: The Journey to Understand & Advance Research in CFRD
  • 6:30 PM – 7:30 PM ET
    Right to Breathe Update
  • 6:30 PM – 7:30 PM ET
    Tri-Service Military CF Affiliate Center annual meeting
  • 6:30 PM – 7:30 PM ET
    AGN01--LGBTQIA+ Professionals in CF Affinity Group
  • 6:30 PM – 7:30 PM ET
    AGN02--Black Professionals in CF
  • 6:30 PM – 7:30 PM ET
    AGN03--Hispanic Professionals in CF Affinity Group
  • 6:30 PM – 8:00 PM ET
    New Program Directors' Reception
  • 6:30 PM – 8:30 PM ET
    RC Reception
  • 7:00 PM – 8:30 PM ET
    Speakers Reception
  • 8:00 PM – 10:30 PM ET
    Emily's Entourage Reception
  • Saturday, September 28, 2024
  • 7:00 AM – 2:30 PM ET
    Registration Open
  • 7:15 AM – 8:30 AM ET
    Breakfast
  • 7:45 AM – 9:45 AM ET
    W30--Polymicrobial Interactions in CF
    Chair: Catherine R. Armbruster, PhD MPH – Carnegie Mellon University
    Chair: Ken C. Malcolm – National Jewish Health
    IMI
  • 7:45 AM – 9:45 AM ET
    W31--Progress Overcoming Premature Stop Codons in CFTR
    Chair: David M. Bedwell – Departments of Biochemistry & Molecular Genetics, University of Alabama at Birmingham (UAB), Birmingham, AL
    Chair: Michelle L. Hastings, PhD (she/her/hers) – University of Michigan
    PTAC/CFTR
  • 7:45 AM – 9:45 AM ET
    W32--Airway Differentiation, Pathogenesis, & Repair
    Chair: Margarida Amaral – FCUL-Faculty of Sciences, University of Lisboa
    Chair: Vibha Lama, MD MS – Emory University, Atlanta, GA
    Chair: Gianni Carraro, PhD – Cedars-Sinai Medical Center
    APPTTPTAC/CFTR
  • 7:45 AM – 9:45 AM ET
    DG19--East Meets West – Complementary Therapies in CF
  • 7:45 AM – 9:45 AM ET
    DG20--Navigating ETI Mental Health Changes for Children Under 12
  • 7:45 AM – 9:45 AM ET
    DG21--Watch Your Step!: Navigating CFTR Modulator Potholes
  • 7:45 AM – 9:45 AM ET
    DG22--Promoting Airway Clearance: Where are we now?
  • 7:45 AM – 9:45 AM ET
    DG23--Pancreatic Prowess: Navigating CF, Liver Wellness, & Nutritional Implications
  • 7:45 AM – 9:45 AM ET
    DG24--Aging with Grace
  • 7:45 AM – 9:45 AM ET
    DG25--RC Updates & Special Topics
  • 7:45 AM – 9:45 AM ET
    Overview of the Current State & Needs of the U.S. CF Physician Workforce
  • 8:00 AM – 9:15 AM ET
    CC01--Sweating it Out- What do Sweat Tests Really Tell Us?
    Chair: Greg McClelland, PA-C – Ascension Seton, Dell Children’s Medical Group
    Chair: Catherine Enochs, BSN, RN (she/her/hers) – University of Michigan Health
    NRS
  • 8:00 AM – 9:15 AM ET
    CC02--Compelling Cases: Collaboration Between Nutrition & GI
    Chair: Bekah Sommer, MS, RD (she/her/hers) – Indiana University Health
    Chair: Rosara Bass, MD MS (she/her/hers) – Nationwide Children's Hospital
    NTR
  • 8:00 AM – 9:15 AM ET
    CC03--Advanced QI

    Chair: Anna K. Saulitis, AM, LCSW – Cystic Fibrosis Foundation

    Chair: Lauren Mitchell, PT, DPT – Johns Hopkins Hospital & Cystic Fibrosis Foundation

  • 8:00 AM – 9:15 AM ET
    CC04--Complex Cases-Explain Yourself!
    Chair: Darcy Chassé, MScPT (he/him/his) – Health Sciences North - NEO Kids
    Chair: Shontae M. Hill, BS RRT AE-C (she/her/hers) – Primary Children’s Hospital
    PT&RT
  • 8:00 AM – 9:15 AM ET
    CC05--Diagnostic & Counseling Challenges
    Chair: Karen Raraigh, MGC (she/her/hers) – Johns Hopkins University
    Chair: Michael Smiley, MD (he/him/his) – Department of Pediatrics, Cardinal Glennon Children's Hospital, Saint Louis University School of Medicine
    CLIN
  • 8:00 AM – 9:15 AM ET
    CC06--Pregnancy in the Modern Era of CF: Questions Old and New
    Chair: Carol Chace, LICSW (she/her/hers) – Children's National Hospital
    Chair: Andrea H. Roe, MD MPH (she/her/hers) – University of Pennsylvania Perelman School of Medicine
    SW/PSYCH
  • 8:00 AM – 11:00 AM ET
    Exhibit & Poster Hall Open
  • 8:15 AM – 9:45 AM ET
    TPS06--Pre-Clinical Models of CF Organ Disease
    Chair: Rabindra Tirouvanziam, PhD (he/him/his) – Department of Pediatrics, Emory University
    Chair: Eszter K. Vladar, PhD – University of Colorado School of Medicine
    APPTT
  • 9:00 AM – 9:30 AM ET
    Full Body Restorative Stretch & Relaxation
  • 9:00 AM – 11:00 AM ET
    Coffee Break in the Exhibit Hall
  • 9:40 AM – 9:55 AM ET
    Foot Reflexology
  • 10:05 AM – 10:35 AM ET
    Full Body Restorative Stretch & Relaxation
  • 10:15 AM – 12:15 PM ET
    S25--Might as Well Jump! Exercise by the Experts
    Chair: Ryan A. Harris, PhD, CEP, FACSM (he/him/his) – Georgia Prevention Institute
    Chair: Denee DiPilla George – Children's Hospital Orange County
    PT&RT
  • 10:15 AM – 12:15 PM ET
    S26--From Just Surviving to Thriving: Unraveling the Complex Tapestry of CF & Aging
    Chair: Stefanie Krick, MD PhD – Division of Pulmonary and Critical Care Medicine
    Chair: Elizabeth Tullis, MD FRCPC – University of Toronto
    CLIN
  • 10:15 AM – 12:15 PM ET
    S27--Airway Stem Cells: Tools, Targets, & Therapies
    Chair: Viral Shah – MGH
    Chair: Amy L. Ryan, PhD – University of Iowa
    PTAC/CFTR
  • 10:15 AM – 12:15 PM ET
    S28--Models of CF Airway Infection
    Chair: William H. DePas, PhD (he/him/his) – University of Pittsburgh
    Chair: Barbara C. Kahl – University of Münster
    IMI
  • 10:15 AM – 12:15 PM ET
    S29--It Starts with a Diagnosis, Best Practices for Newborn Screening
    Chair: Susanna A. McColley, MD, FAAP, ATSF (she/her/hers) – Northwestern University Feinberg School of Medicine
    Chair: Marci K. Sontag, PhD (she/her/hers) – Center for Public Health Innovation
    CLIN
  • 10:15 AM – 12:15 PM ET
    S30--GI Symptoms in CF, Let’s Get to the Bottom of it!
    Chair: Jenifer Burke, Rn, MSN, CPNP (she/her/hers) – Rush University Medical Center
    Chair: Joanne Cullina, APRN-CNS – Northwestern University, Department of Medicine, Division of Pulmonary and Critical Care, Chicago, IL, US.
    NRS
  • 10:15 AM – 12:15 PM ET
    S31--Is the Price Really Right?: Keeping Innovations in CF Care Accessible
    Chair: Ryan C. Perkins, MD MPH – Boston Children’s Hospital/Brigham & Women’s Hospital
    Chair: Olivia Dieni, MPH (she/her/hers) – Cystic Fibrosis Foundation
    HEAC
  • 10:15 AM – 12:15 PM ET
    W33--Impact of RT Education on Patient Care
    Chair: Miranda S. Bradley, RT (she/her/hers) – MHealth Fairview, Minneapolis, MN
    PT&RT
  • 10:15 AM – 12:15 PM ET
    W34--Doing DEI in the Real World
    Chair: Chandra Gordon, LMSW (she/her/hers) – University of Kansas Health System
    Community Chair: Brandon M. Wright, MSW, LSW, CDP (he/him/his) – Senior Lifestyle
    SW/PSYCH
  • 10:15 AM – 12:15 PM ET
    W35--Lung Transplantation & Pulmonary Vascular Biology
    Chair: Keven Mara Robinson, MD (she/her/hers) – University of Pittsburgh
    Chair: Don Hayes, Jr., MD (he/him/his) – Cincinnati Children's Hospital Medical Center
    APPTT
  • 10:15 AM – 12:15 PM ET
    W36--Endocrine Screening - What You Need to Know
    Chair: Mary Sachs, MSN, APRN, CNP (she/her/hers) – Children's Minnesota
    NRSCLIN
  • 10:15 AM – 12:15 PM ET
    W37--Leading the Pack: Nutrition Research
    Chair: Alix Wilson – National Jewish Health
    Chair: Tara Griffin, MS, RDN, LD CACFD (she/her/hers) – University of Minnesota Adult Cystic Fibrosis Center
    NTR
  • 10:15 AM – 12:15 PM ET
    W38--Epidemiology & Management of Infection in CF
    Chair: Joy E. Gibson, MD, PhD (she/her/hers) – Children's Hospital Los Angeles
    Chair: Bradley S. Quon – Centre for Heart Lung Innovation, University of British Columbia, Vancouver, BC, Canada
    IMI
  • 10:15 AM – 12:15 PM ET
    W36--Endocrine Screening - What You Need to Know
  • 10:40 AM – 10:55 AM ET
    Foot Reflexology
  • 12:00 PM – 1:00 PM ET
    Poster Removal
  • 12:15 PM – 2:30 PM ET
    Lunch Time
  • 12:30 PM – 2:00 PM ET
    US Center & Program Directors' Meeting
  • 12:30 PM – 2:00 PM ET
    LL08--Eradication Protocols
  • 12:30 PM – 2:00 PM ET
    LL09--Site Collaboration
  • 12:30 PM – 2:00 PM ET
    LL10--I've Got 15 Minutes: Show Me a Brief Clinical Intervention
  • 12:30 PM – 2:00 PM ET
    LL11--Gut Games
  • 12:30 PM – 2:00 PM ET
    LL12--Building Trust in the Care Relationship
  • 12:30 PM – 2:00 PM ET
    LL13--What's Up with Mary Jane?
  • 12:30 PM – 2:00 PM ET
    LL14--Highs & Lows of GI & Endocrine
  • 12:30 PM – 2:00 PM ET
    LL15--Athletes with CF: Pairing Exercise and Nutrition Through the Years
  • 12:30 PM – 2:00 PM ET
    Group 1 Roundtables
  • 12:30 PM – 2:00 PM ET
    Group 2 Roundtables
  • 12:30 PM – 2:00 PM ET
    Group 3 Roundtables
  • 12:30 PM – 2:00 PM ET
    Group 4 Roundtables
  • 12:30 PM – 2:00 PM ET
    Group 5 Roundtables
  • 2:30 PM – 3:45 PM ET
    PL3--Reproductive Health in Cystic Fibrosis
  • 7:00 PM – 10:00 PM ET
    Closing Event