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  • Wednesday, Sep 25th
    3:00 PM – 5:00 PM ET
    DG02--Making the Unbearable Bearable: CF Cost of Care Hacks for the Care Team
    Location: 107 AB
    Chair: Debbie Benitez, RN, MSN, ACNP-BC (she/her/hers) – USC Anton Yelchin CF Center
    Chair: Jana Yeley, NP – Indiana University
    Speaker: Hanna Phan, PharmD, FCCP, FPPA (she/her/hers) – University of Michigan
    Speaker: Lauren Willis, MS, RRT-NPS, AE-C, CHES – Arkansas Children's Hospital
    Speaker: Kyle Fischer, PharmD, APh – Keck Medicine of USC Specialty Pharmacy
    Speaker: Jessica Fraser – Cystic Fibrosis Foundation
    Speaker: Rebecca McWilliams, MCHES ®, CRS (she/her/hers) – Cystic Fibrosis Foundation
    HEAC
  • Wednesday, Sep 25th
    3:00 PM – 7:00 PM ET
    SC04--Communication Skills to Enhance Equity & Inclusion
    Location: 257 AB
    Chair: Cynthia George, RN, FNP, MSN (she/her/hers) – Cystic Fibrosis Foundation
    Chair: Chandler Swope, LICSW (she/her/hers) – Cystic Fibrosis Foundation
    Speaker: Brooke Jefferson (she/her/hers) – Cystic Fibrosis Foundation
    Speaker: Chandra Gordon, LMSW (she/her/hers) – University of Kansas Health System
    Speaker: Abraham I. Sender, PA-C, PA-C – University of Vermont Medical Center
    Speaker: Karen M. von Berg, PT, DPT (she/her/hers) – Johns Hopkins Hospital
    Speaker: R. Ellen Pearlman, MD (she/her/hers) – Donald and Barbara Zucker School of Medicine at Hofstra/Northwell
    Speaker: Denise Davis, MD (she/her/hers) – University of California San Francisco
    HEAC
  • Thursday, Sep 26th
    10:15 AM – 12:15 PM ET
    W14--Equity in Action
    Location: 205 A-C
    Chair: Thida Ong, MD (she/her/hers) – Seattle Children's Hospital/UW
    Chair: Melissa Alao, MSW, LICSW (she/her/hers) – Boston Children's Hospital/Brigham and Women's Hospital
    HEAC
  • Thursday, Sep 26th
    10:15 AM – 12:15 PM ET
    W14.1- Perspectives and Experiences of LGBTQIA+ People with CF
    Location: 205 A-C
    Speaker: Rachel E. Salyer (she/her/hers) – West Virginia University Department of Pediatrics
    HEAC
  • Thursday, Sep 26th
    10:15 AM – 12:15 PM ET
    W14.2- Role of a patient registry and clinical matchmaking service for the cystic fibrosis research community: Emily’s Entourage experience
    Location: 205 A-C
    Speaker: Beth S. Lavin, MBA (she/her/hers) – Emily's Entourage
    HEAC
  • Thursday, Sep 26th
    10:15 AM – 12:15 PM ET
    W14.3- Implicit bias workshop increases bias literacy and acknowledgement of personal bias among psychosocial CF care team members
    Location: 205 A-C
    Speaker: Freda F. Liu, PhD (she/her/hers) – Seattle Children's Hospital
    HEAC
  • Thursday, Sep 26th
    10:15 AM – 12:15 PM ET
    W14.4- Improving Timeliness of Sweat Chloride Scheduling for Infants in Georgia with Abnormal CF Newborn Screen
    Location: 205 A-C
    Speaker: Brittany Truitt, MD – Emory University/ Children's Healthcare of Atlanta
    HEAC
  • Thursday, Sep 26th
    10:15 AM – 12:15 PM ET
    W14.5- Barriers to Enrollment in LTx READY CF 2, a multicenter trial of lung transplant education
    Location: 205 A-C
    Speaker: Tijana Milinic, MD – University of Washington
    HEAC
  • Thursday, Sep 26th
    12:30 PM – 1:20 PM ET
    RFPT03--Health Equity, Access, & Care Delivery
    Location: Theater B (Exhibit & Poster Hall)
    Chair: Meghan McGarry, MD (she/her/hers) – Seattle Children's Hospital
    Chair: Bryan Garcia, MD – UAB
    HEAC
  • Thursday, Sep 26th
    12:30 PM – 1:20 PM ET
    RFPT03.1- Discovering the disparities: delayed referral to sweat testing in racially diverse infants
    Location: Theater B (Exhibit & Poster Hall)
    Speaker: Erica Rubin, DO – MUSC
    HEAC
  • Thursday, Sep 26th
    12:30 PM – 1:20 PM ET
    RFPT03.2- Equity in modulator access: a scoping review of country-specific access approaches to Elexacaftor/Tezacaftor/Ivacaftor for those with rare mutations
    Location: Theater B (Exhibit & Poster Hall)
    Speaker: Paul DW Eckford, PhD (he/him/his) – Cystic Fibrosis Canada
    HEAC
  • Thursday, Sep 26th
    12:30 PM – 1:20 PM ET
    RFPT03.3- Defining the composition, experiences, and needs of the current United States physician workforce in cystic fibrosis care
    Location: Theater B (Exhibit & Poster Hall)
    Speaker: Alex Despotes, MD (she/her/hers) – The University of North Carolina at Chapel Hill
    HEAC
  • Thursday, Sep 26th
    12:30 PM – 1:20 PM ET
    RFPT03.4- Care of the LGBTQIA+ Community Living with CF: A National Survey of Multidisciplinary United States CF Providers
    Location: Theater B (Exhibit & Poster Hall)
    Speaker: Traci M. Kazmerski, MD, MS (she/her/hers) – University of Pittsburgh School of Medicine
    HEAC
  • Thursday, Sep 26th
    12:30 PM – 1:20 PM ET
    RFPT03.5- Mechanisms used to access CFTR modulators in countries without reimbursement
    Location: Theater B (Exhibit & Poster Hall)
    Speaker: Grace Hennessy, BSc – Imperial College London
    HEAC
  • Thursday, Sep 26th
    12:30 PM – 1:20 PM ET
    RFPT03.6- llness burden in adults with cystic fibrosis is associated with sex, race/ethnicity, and social risk factors
    Location: Theater B (Exhibit & Poster Hall)
    Speaker: Janice Wang, MD – Northwell Health
    HEAC
  • Thursday, Sep 26th
    12:30 PM – 1:20 PM ET
    RFPT03.7- Does where you live matter? The impact of residency location on financial outcomes.
    Location: Theater B (Exhibit & Poster Hall)
    Speaker: Ryan C. Perkins, MD MPH – Boston Children’s Hospital/Brigham & Women’s Hospital
    HEAC
  • Thursday, Sep 26th
    12:30 PM – 2:00 PM ET
    LL07--Navigating Challenges with Health Insurance Coverage
    Location: 257 AB
    Chair: Jessica Fraser – Cystic Fibrosis Foundation
    Chair: Rebecca McWilliams, MCHES ®, CRS (she/her/hers) – Cystic Fibrosis Foundation
    Speaker: Kelly Muldowney, BA (she/her/hers) – Cystic Fibrosis Foundation
    Speaker: Jessica Fraser – Cystic Fibrosis Foundation
    HEAC
  • Thursday, Sep 26th
    2:30 PM – 4:30 PM ET
    S04--CF Around the World: Challenges & Opportunities
    Location: 205 A-C
    Chair: Dana Albon – University of Virginia
    Chair: Golnar Raissi, ND, integrative physician – Columbia University
    HEAC
  • Friday, Sep 27th
    7:45 AM – 9:45 AM ET
    W17--Financial Toxicity in CF Care
    Location: 153 A-C
    Chair: Gregory S. Sawicki, MD, MPH (he/him/his) – Boston Children's Hospital
    Chair: Jamie Wooldridge, MD (she/her/hers) – University of Rochester Medical Center
    HEAC
  • Friday, Sep 27th
    7:45 AM – 9:45 AM ET
    COST-CF: Exploring financial stressors on daily life and access to care within the CF community
    Location: 153 A-C
    Speaker: Aricca D. Van Citters, MS – Geisel School of Medicine at Dartmouth
    HEAC
  • Friday, Sep 27th
    7:45 AM – 9:45 AM ET
    W17.2- Impact of CFTR modulator (CFTR-M) therapy on basic life needs and financial concerns in people with cystic fibrosis (PwCF): Data from the Well-ME Survey
    Location: 153 A-C
    Speaker: Heather Boas, MD (she/her/hers) – Children's Hospital of Philadelphia
    HEAC
  • Friday, Sep 27th
    7:45 AM – 9:45 AM ET
    W17.3- Clinician perspectives and practices related to cost of care discussions among people with cystic fibrosis
    Location: 153 A-C
    Speaker: Ryan C. Perkins, MD MPH – Boston Children’s Hospital/Brigham & Women’s Hospital
    HEAC
  • Friday, Sep 27th
    7:45 AM – 9:45 AM ET
    W17.4- The next step – Identification of financial vulnerabilities for people with cystic fibrosis and a framework for intervention
    Location: 153 A-C
    Speaker: Karen R. Carey, CRS (she/her/hers) – Cystic Fibrosis Foundation
    HEAC
  • Friday, Sep 27th
    7:45 AM – 9:45 AM ET
    W17.5- Research and development expenditure for CFTR modulators versus revenues after marketing: Striking the balance?
    Location: 153 A-C
    Speaker: Jonathan Guo, MBBS, BSc (he/him/his) – Imperial College London
    HEAC
  • Friday, Sep 27th
    2:30 PM – 4:30 PM ET
    S18--Enhancing Care for All: Paving the Path to Equity
    Location: 205 A-C
    Chair: Terri A. Laguna, MD MSCS ATSF (she/her/hers) – University of Washington
    Chair: Georgene E. Hergenroeder, MD (she/her/hers) – Children's Hospital of Philadelphia, Division of Pulmonary and Sleep Medicine
    Community Speaker: Raquel Garcia
    HEAC
  • Saturday, Sep 28th
    10:15 AM – 12:15 PM ET
    S31--Is the Price Really Right?: Keeping Innovations in CF Care Accessible
    Location: 205 A-C
    Chair: Ryan C. Perkins, MD MPH – Boston Children’s Hospital/Brigham & Women’s Hospital
    Chair: Olivia Dieni, MPH (she/her/hers) – Cystic Fibrosis Foundation
    HEAC
  • Saturday, Sep 28th
    12:30 PM – 2:00 PM ET
    LL12--Building Trust in the Care Relationship
    Location: 257 AB
    Chair: Chandra Gordon, LMSW (she/her/hers) – University of Kansas Health System
    Chair: Stacy Van Gorp, PhD (she/her/hers) – See What I Mean LLC
    Community Speaker: Rowan Greenlaw (he/him or they/them) – Patient Advocate
    HEAC